- Revenue 2023
- $34,668,177
- Expenses 2023
- $27,853,503
Program services were 85.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G200
- Classification
- 1200
- Street
- 8607 ROBERTS DR
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2023
As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
DAVID BURNS
CHIEF GOVERNANCE OFFICER
- Total calculated
- $0
- Hours/week
- 1
-
ALEX POPE
VICE-CHIEF GOVERNANCE OFFICER
- Total calculated
- $0
- Hours/week
- 1
-
TODD RATLIFF
SECRETARY/DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DAN MADDOCK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
DONNEL WARREN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
RADIUM YAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
PAD NARAYANAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
ANDY WURTZEL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
AMY GREENE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
MIKE GOGAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
NICK BLACKMON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
EDITH A ROSATO
CHIEF EXECUTIVE OFFICER
- Total calculated
- $667,442
- From this org
- $622,354
- From related orgs
- $0
- Other
- $45,088
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $532,749
- Bonus
- $89,605
- Other
- $0
- Deferred
- $25,388
- Nontaxable benefits
- $19,700
- Filer's total
- $667,442
-
PAUL PERROTTI
CFO (TO 06/2023)
- Total calculated
- $238,834
- From this org
- $219,597
- From related orgs
- $0
- Other
- $19,237
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $130,417
- Bonus
- $0
- Other
- $89,180
- Deferred
- $4,568
- Nontaxable benefits
- $14,669
- Filer's total
- $238,834
-
LIBBY ISAACK
CFO (STARTED 09/2023)
- Total calculated
- $86,280
- From this org
- $82,767
- From related orgs
- $0
- Other
- $3,513
- Hours/week
- 40
-
ROBERT GILLESPIE
COO (TO 05/2024)
- Total calculated
- $279,966
- From this org
- $250,194
- From related orgs
- $0
- Other
- $29,772
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $208,794
- Bonus
- $41,400
- Other
- $0
- Deferred
- $10,354
- Nontaxable benefits
- $19,418
- Filer's total
- $279,966
-
LEIGH CARPENTER
VP - PHARMACY OPS. (TO 03/2024)
- Total calculated
- $257,593
- From this org
- $225,180
- From related orgs
- $0
- Other
- $32,413
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $194,480
- Bonus
- $30,700
- Other
- $0
- Deferred
- $11,390
- Nontaxable benefits
- $21,023
- Filer's total
- $257,593
-
VICTOR A MCCARTY
CHIEF DEVELOPMENT OFFICER
- Total calculated
- $245,179
- From this org
- $212,288
- From related orgs
- $0
- Other
- $32,891
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $176,259
- Bonus
- $36,029
- Other
- $0
- Deferred
- $10,559
- Nontaxable benefits
- $22,332
- Filer's total
- $245,179
-
ELIZABETH SOLOMON
CHIEF STRATEGY OFFICER
- Total calculated
- $277,983
- From this org
- $258,440
- From related orgs
- $0
- Other
- $19,543
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $223,440
- Bonus
- $35,000
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $19,543
- Filer's total
- $277,983
-
JACKIE SHIPP
VICE PRESIDENT-INFO. TECHNOLOGY
- Total calculated
- $210,262
- From this org
- $185,574
- From related orgs
- $0
- Other
- $24,688
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $167,574
- Bonus
- $18,000
- Other
- $0
- Deferred
- $9,645
- Nontaxable benefits
- $15,043
- Filer's total
- $210,262
-
RESHAM SAHIJRAM
VICE PRESIDENT-PHARMACY OPERATIONS
- Total calculated
- $205,339
- From this org
- $184,915
- From related orgs
- $0
- Other
- $20,424
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $156,915
- Bonus
- $28,000
- Other
- $0
- Deferred
- $5,200
- Nontaxable benefits
- $15,224
- Filer's total
- $205,339
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2023
- Revenue
- $34,668,177
- Expenses
- $27,853,503
- Contributions
- $1,529,753
- Grants paid
- $10,917,055
-
2022
- Revenue
- $28,674,349
- Expenses
- $24,590,121
- Contributions
- $1,567,368
- Grants paid
- $9,182,200
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
$4,509,911
2023 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
EMORY UNIVERSITY
$3,870,581
2022 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
$1,586,529
2023 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
AUGUSTA UNIVERSITY
$1,423,082
2022 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
WORLD FEDERATION OF HEMOPHILIA
$580,000
2022 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
WORLD FEDERATION OF HEMOPHILIA
$525,000
2023 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
2023 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
MEMORIAL HEALTH UNIVERSITY MEDICAL CENTER
$246,071
2022 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
2023 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
HEMOPHILIA FOUNDATION OF GREATER FLORIDA
$132,500
2022 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
2023 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
-
2024 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
-
2022 DATA MANAGEMENT CAPACITY RESEARCH
-
2024 GENERAL SUPPORT
-
2024 GENERAL SUPPORT
-
2022 GENERAL SUPPORT
-
HEMOPHILIA ALLIANCE FOUNDATION
$10,000
2023 PROMOTE HEMOPHILIA
-
HEMOPHILIA ALLIANCE FOUNDATION
$10,000
2024 PROMOTE HEMOPHILIA
-
2023 GENERAL SUPPORT
-
2022 SUPPORT TO US CLINICS & HEALTH CENTERS FOR LOW-INCOME, UNINSURED PATIENTS
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.