WORLD FEDERATION OF HEMOPHILIA USA

As filed

Subsection

03

NTEE code

G20

Classification

1000

Street

PMB 142 911 CENTRAL AVE

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

• The WFH Humanitarian Aid program improves the lack of access to care and treatment by providing support to national member organizations hemophilia treatment centres and healthcare practitioners in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy.The reported $59.37 million deficit is primarily attributable to fluctuations in the value of donated pharmaceutical products which are recorded as in-kind revenue and expense. These are non-cash transactions impacting the total change in net assets without reflecting a change in operating cash flow or program delivery. WFH USA provides tens of thousands of people with hemophilia reliable access to care enabling prophylaxis and elective surgeries in over seventy countries worldwide. Per the Collaboration Agreement with the WFH WFH USA is exclusively responsible for soliciting in-kind contributions of pharmaceutical products and monetary donations for the program. WFH USA periodically grants the received contributions to the WFH as needed to carry out the program.

  Expenses $1,153,880,637 · Grants $1,153,186,208 · Revenue $1,094,378,239

• The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources that are available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Training and Education programs to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Training and Education Program.

  Expenses $647,000 · Grants $582,300 · Revenue $647,000

• The WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building programs. The objective of this program is to provide National Member Organizations NMOs and Hemophilia Treatment Centers HTCs with the tools to increase their capacity the framework to collect data on people with bleeding disorders and the education and training to use that data to conduct research and advocate for better care. In accordance with the Collaboration Agreement between the WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Research Program to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Research Program.

  Expenses $155,000 · Grants $139,500 · Revenue $155,000

• Other programs include the Awareness Building and Travel Fund. This initiative is dedicated to increasing awareness about bleeding disorders in the United States and worldwide.

  Expenses $33,165

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

• 2024

  Revenue

  $1,095,526,264

  Expenses

  $1,154,898,723

  Contributions

  $1,095,452,756

  Grants paid

  $1,154,048,112

• 2024

  Revenue

  $1,095,526,264

  Expenses

  $1,154,898,723

  Contributions

  $1,095,452,756

  Grants paid

  $1,154,048,112

• 2023

  Revenue

  $1,131,296,825

  Expenses

  $1,070,872,912

  Contributions

  $1,131,275,449

  Grants paid

  $1,067,532,407

• 2022

  Revenue

  $684,615,118

  Expenses

  $684,510,863

  Contributions

  $684,598,697

  Grants paid

  $684,198,174

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $822,953,008

  Expenses

  $822,759,749

  Assets (EOY)

  $2,014,564

• 2020 · 990

  Revenue

  $398,517,418

  Expenses

  $398,297,253

  Assets (EOY)

  $1,360,104

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

• HEMOPHILIA OF GEORGIA INC

  $525,000

  2023 · FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS

• HEMOPHILIA ALLIANCE GROUP PURCHASING ORGANIZATION INC

  $260,000

  2022 · PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.

• HEMOPHILIA ALLIANCE GROUP PURCHASING ORGANIZATION INC

  $145,000

  2023 · PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.

• HEMOPHILIA ALLIANCE GROUP PURCHASING ORGANIZATION INC

  $135,000

  2024 · SEE PART IV

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $128,100

  2024 · For grant recipient's exempt purposes

• INDIANA HEMOPHILIA AND THROMBOSIS CENTER INC

  $100,000

  2024 · SEE PART IV

• INDIANA HEMOPHILIA AND THROMBOSIS CENTER INC

  $100,000

  2023 · SEE PART IV

• NATIONAL BLEEDING DISORDERS FOUNDATION

  $90,000

  2024 · WOMEN & GIRLS WITH BLEEDING DISORDERS, AND CHAPTERS CHALLENGE GRANTS

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $45,100

  2022 · For grant recipient's exempt purposes

• POSITUDES INC

  $33,000

  2022 · SOLIDARY FUND UKRAINE RELIEF

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Other IRS files