Totals
- Total revenue
- $1,378,212
- Total expenses
- $897,934
- Contributions and grants received
- $1,021,811
- Grants paid
- $108,014
- Program service revenue
- $0
- Investment income
- $13,482
- Other revenue
- $342,919
- Total assets, end of year
- $1,289,163
- Total liabilities, end of year
- $5,167
- Net assets or fund balances, end of year
- $1,283,996
- Program services expenses (Part IX)
- $770,040
- Management and general expenses
- $44,028
- Fundraising expenses
- $83,866
- Program service expenses (Part III)
- $770,040
Program services were 85.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$1,021,811
-
3 · Investment income
total $13,482 · related or exempt $13,482
-
8a · Fundraising events: gross income
$394,738
-
8b · Fundraising events: direct expenses
$102,419
-
8c · Net income from fundraising events
total $292,319 · excluded $292,319
-
11a · Other revenue: RETURN OF RESEARCH AWA
total $50,000 · related or exempt $50,000
-
11b · Other revenue: CREDIT CARD POINTS
total $600 · related or exempt $600
-
11e · Other revenue, total
$50,600
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $50,000 · program services $50,000
-
2 · Grants to domestic individuals
total $58,014 · program services $58,014
-
5 · Compensation of officers, directors and key employees
total $110,000 · program services $71,500 · management and general $11,000 · fundraising $27,500
-
7 · Other salaries and wages
total $198,938 · program services $168,469 · fundraising $30,469
-
9 · Other employee benefits
total $59,539 · program services $49,119 · management and general $2,977 · fundraising $7,443
-
10 · Payroll taxes
total $28,230 · program services $23,290 · management and general $1,411 · fundraising $3,529
-
11a · Fees: management
total $15,759 · program services $5,200 · management and general $10,559
-
11b · Fees: legal
total $3,233 · management and general $3,233
-
11c · Fees: accounting
total $4,580 · management and general $4,580
-
11g · Fees: other
total $24,834 · program services $12,715 · management and general $9,028 · fundraising $3,091
-
12 · Advertising and promotion
total $26,789 · program services $21,431 · fundraising $5,358
-
17 · Travel
total $7,509 · program services $7,509
-
19 · Conferences, conventions and meetings
total $274,498 · program services $274,498
-
24a · Other expenses: OFFICE SOFTWARE
total $24,262 · program services $19,102 · management and general $940 · fundraising $4,220
-
24b · Other expenses: PHONE & INTERNET
total $6,584 · program services $5,184 · management and general $255 · fundraising $1,145
-
24c · Other expenses: WEBSITE
total $2,907 · program services $2,326 · fundraising $581
-
24d · Other expenses: CONFERENCES
total $1,087 · program services $761 · fundraising $326
-
24e · All other expenses
total $1,171 · program services $922 · management and general $45 · fundraising $204
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $687,427 · end of year $346,499
-
2 · Savings and temporary cash investments
beginning of year $124,734 · end of year $941,325
-
15 · Other assets
beginning of year $33 · end of year $1,339
-
17 · Accounts payable and accrued expenses
beginning of year $8,476 · end of year $5,167
-
29 · Capital stock, trust principal or current funds
beginning of year $0 · end of year $0
-
30 · Paid-in or capital surplus, or land, building or equipment fund
beginning of year $0 · end of year $0
-
31 · Retained earnings, endowment or other funds
beginning of year $803,718 · end of year $1,283,996
Mission and programs · 2024
Mission
SERVING THE COURAGEOUS LIVING WITH PULMONARY HYPERTENSION THROUGH SUPPORT, PROGRAMS, EDUCATION AND RESEARCH. WE FUND MEDICAL RESEARCH AND IMPLEMENT PROGRAMMING FOCUSED ON REMOVING PATIENTS FROM ISOLATION, PROVIDING HOPE, AND ADDRESSING AND ALLEVIATING THEIR UNMET NEEDS THROUGH FINANCIAL SUPPORT.
Activities or mission (Part I)
SERVING THE COURAGEOUS LIVING WITH PULMONARY HYPERTENSION THROUGH SUPPORT, PROGRAMS, EDUCATION AND RESEARCH SINCE 2012. WE FUND MEDICAL RESEARCH AND IMPLEMENT PROGRAMMING FOCUSED ON REMOVING PATIENTS FROM ISOLATION, PROVIDING HOPE, AND ADDRESSING AND ALLEVIATING THEIR UNMET NEEDS THROUGH FINANCIAL SUPPORT.
-
TEAM PHENOMENAL HOPE PROVIDED $58,014 TO PULMONARY HYPERTENSION PATIENTS EXPERIENCING UNMET NEEDS AND /OR RESIDING IN A DISASTER AREA. FORMAL REQUESTS ARE SUBMITTED BY INDIVIDUALS AND REVIEWED BY A TEAM PHENOMENAL HOPE COMMITTEE. $500 PER INDIVIDUAL IS AWARDED BASED ON ACCEPTANCE OF THEIR APPLICATION FOR THE GRANT. INCLUDES FEES FOR TRANSFER COSTS.
Expenses $115,831 · Grants $58,014
-
TEAM PHENOMENAL HOPE PROVIDED $50,000 FOR A FEASIBILITY TRIAL FOR THE CANADIAN RIGHT VENTRICULAR ADAPTIVE (CRAVE) PLATFORM TRIAL OF THERAPIES TARGETING RIGHT VENTRICULAR FAILURE.
Expenses $99,830 · Grants $50,000
-
ANNUAL 2023 AND 2024 PHENOMENAL HOPE CONFERENCE: KNOWLEDGE, RESEARCH & ADVOCACY IN PH IS A SYMPOSIUM OFFERING A COMBINATION OF ORAL PRESENTATIONS, EXPERT PANEL DISCUSSIONS, AND POSTER SESSIONS IN AN ENVIRONMENT THAT FOSTERS COLLABORATION AND A DEEPER EXPLORATION OF PULMONARY HYPERTENSION PATIENT-CENTERED RESEARCH. ESTABLISHED EXPERTS, THOUGHT LEADERS, YOUNG INVESTIGATORS, AND HEALTHCARE PROVIDERS COMMITTED TO ADVANCING CLINICAL SCIENCE AND CARE IN THE FIELD OF PULMONARY HYPERTENSION ATTEND AND ARE OFFERED THE OPPORTUNITY TO SHARE ORIGINAL RESEARCH.
Expenses $548,066 · Revenue $247,500
-
PHENOMENAL CONNECTIONS: PHENOMENAL CONNECTIONS MATCHES TRAINED PEER SUPPORTERS LIVING WITH PH TO OTHER PATIENTS AND PROVIDES UNDERSTANDING AND HOPE TO THOSE WHO NEED SUPPORT AFTER RECEIVING A PH DIAGNOSIS. PATIENTS ARE MATCHED BASED ON THE TYPE OF PH, AGE, GENDER, AND OTHER FACTORS THAT MAY FOSTER A BENEFICIAL CONNECTION AND EASE OF COMMUNICATION. PEER VOLUNTEERS ARE TRAINED IN BASIC COUNSELING SKILLS, ARE REGULARLY UPDATED ABOUT TPH AND COMMUNITY RESOURCES, AND ARE COMMITTED TO CONFIDENTIALITY.
Expenses $6,313 · Revenue $85,000
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Eric BorsteinERIC BORSTEIN
BOARD CHAIR
- Total calculated
- $0
- Hours/week
- 5
-
Allen FarberALLEN FARBER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Carl HicksCARL HICKS
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
Harrison Farber MDHARRISON FARBER MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 5
-
Lenise WhitleyLENISE WHITLEY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Stacey McCarthySTACEY MCCARTHY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Camm EpsteinCAMM EPSTEIN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Gareth GwynGARETH GWYN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Abby PomsABBY POMS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Susie McDevitt Dnp Acnp-BcSUSIE MCDEVITT DNP ACNP-BC
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Vijay Balasubramanian MD MrcpukfccpVIJAY BALASUBRAMANIAN MD MRCPUKFCCP
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Ericka Berman RosenzweigERICKA BERMAN ROSENZWEIG
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Jennifer Keeley Dnp Anp-BcJENNIFER KEELEY DNP ANP-BC
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Leslie OrlovskyLESLIE ORLOVSKY
EXECUTIVE DIRECTOR
- Total calculated
- $120,120
- From this org
- $110,000
- From related orgs
- $0
- Other
- $10,120
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Schedule J
Answered yes
- 2 · Substantiation required before reimbursing expenses
- 3 · Written employment contract
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
The filer's explanations (Part III)
- PART I, LINE 3
- THE BOARD APPROVES AN ANNUAL BUDGET WHICH INCLUDES COMPENSATION FOR STAFF. A COMMITTEE INTERVIEWS AND MAKES RECOMMENDATIONS TO THE BOARD. THE BOARD APPROVES THE FINAL HIRING AND COMPENSATION OF THE EXECUTIVE DIRECTOR.
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
A FEASIBILITY TRIAL FOR THE CANADIAN RIGHT VENTRICULAR ADAPTIVE (CRAVE) PLATFORM TRIAL OF THERAPIES TARGETING RIGHT VENTRICULAR FAILURE.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 14 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202533189349310948
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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