- Revenue 2024
- $1,378,212
- Expenses 2024
- $897,934
Program services were 85.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G12
- Classification
- 1000
- Street
- 5727 63RD ST
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
SERVING THE COURAGEOUS LIVING WITH PULMONARY HYPERTENSION THROUGH SUPPORT, PROGRAMS, EDUCATION AND RESEARCH. WE FUND MEDICAL RESEARCH AND IMPLEMENT PROGRAMMING FOCUSED ON REMOVING PATIENTS FROM ISOLATION, PROVIDING HOPE, AND ADDRESSING AND ALLEVIATING THEIR UNMET NEEDS THROUGH FINANCIAL SUPPORT.
Activities or mission (Part I)
SERVING THE COURAGEOUS LIVING WITH PULMONARY HYPERTENSION THROUGH SUPPORT, PROGRAMS, EDUCATION AND RESEARCH SINCE 2012. WE FUND MEDICAL RESEARCH AND IMPLEMENT PROGRAMMING FOCUSED ON REMOVING PATIENTS FROM ISOLATION, PROVIDING HOPE, AND ADDRESSING AND ALLEVIATING THEIR UNMET NEEDS THROUGH FINANCIAL SUPPORT.
-
TEAM PHENOMENAL HOPE PROVIDED $58,014 TO PULMONARY HYPERTENSION PATIENTS EXPERIENCING UNMET NEEDS AND /OR RESIDING IN A DISASTER AREA. FORMAL REQUESTS ARE SUBMITTED BY INDIVIDUALS AND REVIEWED BY A TEAM PHENOMENAL HOPE COMMITTEE. $500 PER INDIVIDUAL IS AWARDED BASED ON ACCEPTANCE OF THEIR APPLICATION FOR THE GRANT. INCLUDES FEES FOR TRANSFER COSTS.
Expenses $115,831 · Grants $58,014
-
TEAM PHENOMENAL HOPE PROVIDED $50,000 FOR A FEASIBILITY TRIAL FOR THE CANADIAN RIGHT VENTRICULAR ADAPTIVE (CRAVE) PLATFORM TRIAL OF THERAPIES TARGETING RIGHT VENTRICULAR FAILURE.
Expenses $99,830 · Grants $50,000
-
ANNUAL 2023 AND 2024 PHENOMENAL HOPE CONFERENCE: KNOWLEDGE, RESEARCH & ADVOCACY IN PH IS A SYMPOSIUM OFFERING A COMBINATION OF ORAL PRESENTATIONS, EXPERT PANEL DISCUSSIONS, AND POSTER SESSIONS IN AN ENVIRONMENT THAT FOSTERS COLLABORATION AND A DEEPER EXPLORATION OF PULMONARY HYPERTENSION PATIENT-CENTERED RESEARCH. ESTABLISHED EXPERTS, THOUGHT LEADERS, YOUNG INVESTIGATORS, AND HEALTHCARE PROVIDERS COMMITTED TO ADVANCING CLINICAL SCIENCE AND CARE IN THE FIELD OF PULMONARY HYPERTENSION ATTEND AND ARE OFFERED THE OPPORTUNITY TO SHARE ORIGINAL RESEARCH.
Expenses $548,066 · Revenue $247,500
-
PHENOMENAL CONNECTIONS: PHENOMENAL CONNECTIONS MATCHES TRAINED PEER SUPPORTERS LIVING WITH PH TO OTHER PATIENTS AND PROVIDES UNDERSTANDING AND HOPE TO THOSE WHO NEED SUPPORT AFTER RECEIVING A PH DIAGNOSIS. PATIENTS ARE MATCHED BASED ON THE TYPE OF PH, AGE, GENDER, AND OTHER FACTORS THAT MAY FOSTER A BENEFICIAL CONNECTION AND EASE OF COMMUNICATION. PEER VOLUNTEERS ARE TRAINED IN BASIC COUNSELING SKILLS, ARE REGULARLY UPDATED ABOUT TPH AND COMMUNITY RESOURCES, AND ARE COMMITTED TO CONFIDENTIALITY.
Expenses $6,313 · Revenue $85,000
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Eric BorsteinERIC BORSTEIN
BOARD CHAIR
- Total calculated
- $0
- Hours/week
- 5
-
Allen FarberALLEN FARBER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Carl HicksCARL HICKS
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
Harrison Farber MDHARRISON FARBER MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 5
-
Lenise WhitleyLENISE WHITLEY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Stacey McCarthySTACEY MCCARTHY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Camm EpsteinCAMM EPSTEIN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Gareth GwynGARETH GWYN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Abby PomsABBY POMS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Susie McDevitt Dnp Acnp-BcSUSIE MCDEVITT DNP ACNP-BC
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Vijay Balasubramanian MD MrcpukfccpVIJAY BALASUBRAMANIAN MD MRCPUKFCCP
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Ericka Berman RosenzweigERICKA BERMAN ROSENZWEIG
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Jennifer Keeley Dnp Anp-BcJENNIFER KEELEY DNP ANP-BC
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Leslie OrlovskyLESLIE ORLOVSKY
EXECUTIVE DIRECTOR
- Total calculated
- $120,120
- From this org
- $110,000
- From related orgs
- $0
- Other
- $10,120
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $1,378,212
- Expenses
- $897,934
- Contributions
- $1,021,811
- Grants paid
- $108,014
-
2023
- Revenue
- $892,834
- Expenses
- $619,909
- Contributions
- $777,889
- Grants paid
- $105,500
-
2022
- Revenue
- $462,736
- Expenses
- $488,145
- Contributions
- $362,841
- Grants paid
- $131,840
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $565,493
- Expenses
- $367,674
- Assets (EOY)
- $556,543
-
2020 · 990
- Revenue
- $239,540
- Expenses
- $340,068
- Assets (EOY)
- $543,554
-
2019 · 990
- Revenue
- $391,179
- Expenses
- $345,323
- Assets (EOY)
- $460,289
-
2018 · 990
- Revenue
- $418,988
- Expenses
- $255,205
- Assets (EOY)
- $413,035
-
2017 · 990
- Revenue
- $377,838
- Expenses
- $230,222
- Assets (EOY)
- $250,610
-
2016 · 990
- Revenue
- $232,955
- Expenses
- $151,312
- Assets (EOY)
- $103,858
-
2015 · 990-EZ
- Revenue
- $39,057
- Expenses
- $67,617
- Assets (EOY)
- $36,118
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
-
2024 A FEASIBILITY TRIAL FOR THE CANADIAN RIGHT VENTRICULAR ADAPTIVE (CRAVE) PLATFORM TRIAL OF THERAPIES TARGETING RIGHT VENTRICULAR FAILURE.
-
2023 TO FURTHER RESEARCH INTO PULMONARY HYPERTENSION FOR DR. GU'S PROJECT ENTITLED "SEX DIFFERENCES AND THE IMPACT OF HIGH INTENSITY INTERVAL TRAINING ON RIGHT VENTRICULAR METABOLISM IN PULMONAYR HYPERTENSION."
-
UNIVERSITY OF CINCINATTI
$50,000
2022 FOR MEDICAL RESEARCH TO IMPROVE TREATMENTS OR FOR FINDING A CURE FOR PULMONARY HYPERTENSION. DR. JOSE RECEIVED THE GRANT FOR HIS SUBMISSION TITLED, "CIRCULATING GUT-DERIVED METABOLITES AS MARKERS OF DISEASE SEVERITY IN PAH."
-
$25,000
2022 FOR MEDICAL RESEARCH TO IMPROVE TREATMENTS OR FOR FINDING A CURE FOR PULMONARY HYPERTENSION. DONATION IS FOR A SAFETY AND FEASIBILITY STUDY OF SUPERIOR VENA CAVA OCCLUSION IN PATIENTS WITH ADVANCED PRE-CAPILLARY PULMONARY HYPERTENSION.
Grants received
-
$30,500
2024 HEALTH
-
$15,000
2023 RELIGION
-
2024 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$10,605
2024 HEALTH
-
$9,329
2022 UNRESTRICTED
-
2024 CHARITABLE DONATION
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.