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Nonprofiteer
← UNITED MITOCHONDRIAL DISEASE FOUNDATION INC

Form 990 for tax year 2023

Filed by UNITED MITOCHONDRIAL DISEASE FOUNDATION INC.

Totals

Total revenue
$3,685,049
Total expenses
$4,660,117
Contributions and grants received
$2,903,291
Grants paid
$1,665,902
Program service revenue
$486,328
Investment income
$121,594
Other revenue
$173,836
Total assets, end of year
$6,427,384
Total liabilities, end of year
$2,190,202
Net assets or fund balances, end of year
$4,237,182
Program services expenses (Part IX)
$3,603,433
Management and general expenses
$288,914
Fundraising expenses
$767,770
Program service expenses (Part III)
$3,603,433

Program services were 77.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $4,123

  • 1c · Fundraising events

    $767,321

  • 1f · All other contributions, gifts and grants

    $2,131,847

  • 2a · Program service revenue: Symposium & Seminars

    total $486,328 · related or exempt $486,328

  • 3 · Investment income

    total $141,617 · excluded $141,617

  • 7a · Gross sales of assets other than inventory

    securities $1,009,544

  • 7b · Less cost or other basis and sales expenses

    securities $1,029,567

  • 7c · Gain or loss

    securities -$20,023

  • 7d · Net gain or loss

    total -$20,023 · excluded -$20,023

  • 8a · Fundraising events: gross income

    $482,760

  • 8a · Fundraising events: contributions included on line 1c

    $767,321

  • 8b · Fundraising events: direct expenses

    $308,924

  • 8c · Net income from fundraising events

    total $173,836 · excluded $173,836

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,399,547 · program services $1,399,547

  • 2 · Grants to domestic individuals

    total $61,355 · program services $61,355

  • 3 · Grants to foreign organizations and individuals

    total $205,000 · program services $205,000

  • 5 · Compensation of officers, directors and key employees

    total $496,274 · program services $262,866 · management and general $59,771 · fundraising $173,637

  • 7 · Other salaries and wages

    total $1,102,317 · program services $583,874 · management and general $132,762 · fundraising $385,681

  • 9 · Other employee benefits

    total $317,719 · program services $256,784 · fundraising $60,935

  • 10 · Payroll taxes

    total $124,145 · program services $95,441 · fundraising $28,704

  • 11c · Fees: accounting

    total $18,513 · program services $3,256 · management and general $13,629 · fundraising $1,628

  • 11f · Fees: investment management

    total $19,303 · management and general $19,303

  • 12 · Advertising and promotion

    total $179,201 · program services $132,263 · management and general $2,384 · fundraising $44,554

  • 13 · Office expenses

    total $65,101 · program services $24,545 · management and general $11,510 · fundraising $29,046

  • 14 · Information technology

    total $21,870 · program services $21,870

  • 16 · Occupancy

    total $10,246 · program services $5,123 · management and general $2,561 · fundraising $2,562

  • 17 · Travel

    total $24,484 · program services $9,019 · management and general $3,171 · fundraising $12,294

  • 19 · Conferences, conventions and meetings

    total $520,542 · program services $506,904 · management and general $13,638

  • 23 · Insurance

    total $13,489 · program services $6,744 · management and general $3,373 · fundraising $3,372

  • 24a · Other expenses: Repairs and maintenance

    total $66,117 · program services $22,123 · management and general $21,997 · fundraising $21,997

  • 24b · Other expenses: Miscellaneous expenses

    total $8,775 · program services $4,388 · management and general $2,192 · fundraising $2,195

  • 24c · Other expenses: Licenses and fees

    total $4,661 · program services $2,331 · management and general $1,165 · fundraising $1,165

  • 24d · Other expenses: Recruiting and relocati

    total $1,458 · management and general $1,458

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $488,240 · end of year $368,255

  • 2 · Savings and temporary cash investments

    beginning of year $1,850,695 · end of year $343,467

  • 3 · Pledges and grants receivable

    beginning of year $1,440,206 · end of year $598,320

  • 4 · Accounts receivable

    beginning of year $136,494 · end of year $1,550

  • 7 · Other notes and loans receivable

    end of year $500,000

  • 9 · Prepaid expenses and deferred charges

    beginning of year $85,106 · end of year $110,667

  • 10a · Land, buildings and equipment: cost or other basis

    $0

  • 10b · Land, buildings and equipment: accumulated depreciation

    $0

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $3,096,730 · end of year $4,398,007

  • 12 · Investments: other securities

    beginning of year $107,118 · end of year $107,118

  • 17 · Accounts payable and accrued expenses

    beginning of year $788,576 · end of year $626,577

  • 18 · Grants payable

    beginning of year $1,557,580 · end of year $1,488,807

  • 19 · Deferred revenue

    end of year $74,818

  • 27 · Net assets without donor restrictions

    beginning of year $2,111,135 · end of year $1,480,076

  • 28 · Net assets with donor restrictions

    beginning of year $2,747,298 · end of year $2,757,106

Mission and programs · 2023

Mission

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

Activities or mission (Part I)

Promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

  • Funding research for cures and treatments of mitochondrial disorders.

    Expenses $2,097,748 · Grants $1,665,902

  • Providing support for affected families - parent education

    Expenses $884,135 · Revenue $486,328

  • Promoting public awareness of mitochondrial disorders

    Expenses $621,550

As filed on the 2023 return.

Listed in Part VII

  • Alicia M Palladino Esq

    Chair , Board of Trustees

    Total calculated
    $0
    Hours/week
    1

  • William Kallaos Jr

    Vice Chair Board of Truste

    Total calculated
    $0
    Hours/week
    1

  • Shari Lopez Albertson

    Secretary

    Total calculated
    $0
    Hours/week
    1

  • Michael Friedberg

    Trustee-at-Large

    Total calculated
    $0
    Hours/week
    1

  • Richard Leach

    Board of Trustees

    Total calculated
    $0
    Hours/week
    1

  • Annette M St Pierre-Mackoul MD

    Board of Trustees

    Total calculated
    $0
    Hours/week
    1

  • Todd Lacey

    Treasurer

    Total calculated
    $0
    Hours/week
    1

  • Alan Breslow

    Board of Trustees

    Total calculated
    $0
    Hours/week
    1

  • Jana Stoudemire

    Board of Trustees

    Total calculated
    $0
    Hours/week
    1

  • Amel Karaa MD

    SMAB Chair

    Total calculated
    $0
    Hours/week
    1

  • Erica Williams

    Board of Trustees

    Total calculated
    $0
    Hours/week
    1

  • Brian T Harman

    President & CEO

    Total calculated
    $239,932
    From this org
    $208,566
    From related orgs
    $0
    Other
    $31,366
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $208,566
    Bonus
    $0
    Other
    $0
    Deferred
    $12,514
    Nontaxable benefits
    $18,852
    Filer's total
    $239,932

  • Mark S Campbell

    Chief Financial Officer

    Total calculated
    $132,144
    From this org
    $118,029
    From related orgs
    $0
    Other
    $14,115
    Hours/week
    40

  • Philip E Yeske PhD

    Science & Alliance Officer

    Total calculated
    $177,660
    From this org
    $150,551
    From related orgs
    $0
    Other
    $27,109
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $150,551
    Bonus
    $0
    Other
    $0
    Deferred
    $8,695
    Nontaxable benefits
    $18,414
    Filer's total
    $177,660

  • Beth Whitehouse

    Former Director of Development (Terminated 5/21/24

    Total calculated
    $159,870
    From this org
    $137,157
    From related orgs
    $0
    Other
    $22,713
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $137,157
    Bonus
    $0
    Other
    $0
    Deferred
    $7,915
    Nontaxable benefits
    $14,798
    Filer's total
    $159,870

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

None.

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
13 May 2025
IRS schema version
2023v6.0
Source object
202521339349307082

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