- Revenue 2023
- $3,685,049
- Expenses 2023
- $4,660,117
Program services were 77.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G80
- Classification
- 1200
- Street
- 8085 SALTSBURG RD STE 201
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2023
Mission
To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
Activities or mission (Part I)
Promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
-
Funding research for cures and treatments of mitochondrial disorders.
Expenses $2,097,748 · Grants $1,665,902
-
Providing support for affected families - parent education
Expenses $884,135 · Revenue $486,328
-
Promoting public awareness of mitochondrial disorders
Expenses $621,550
As filed on the 2023 return.
Officers and directors · 2023
As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Alicia M Palladino Esq
Chair , Board of Trustees
- Total calculated
- $0
- Hours/week
- 1
-
William Kallaos Jr
Vice Chair Board of Truste
- Total calculated
- $0
- Hours/week
- 1
-
Shari Lopez Albertson
Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Michael Friedberg
Trustee-at-Large
- Total calculated
- $0
- Hours/week
- 1
-
Richard Leach
Board of Trustees
- Total calculated
- $0
- Hours/week
- 1
-
Annette M St Pierre-Mackoul MD
Board of Trustees
- Total calculated
- $0
- Hours/week
- 1
-
Todd Lacey
Treasurer
- Total calculated
- $0
- Hours/week
- 1
-
Alan Breslow
Board of Trustees
- Total calculated
- $0
- Hours/week
- 1
-
Jana Stoudemire
Board of Trustees
- Total calculated
- $0
- Hours/week
- 1
-
Amel Karaa MD
SMAB Chair
- Total calculated
- $0
- Hours/week
- 1
-
Erica Williams
Board of Trustees
- Total calculated
- $0
- Hours/week
- 1
-
Brian T Harman
President & CEO
- Total calculated
- $239,932
- From this org
- $208,566
- From related orgs
- $0
- Other
- $31,366
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $208,566
- Bonus
- $0
- Other
- $0
- Deferred
- $12,514
- Nontaxable benefits
- $18,852
- Filer's total
- $239,932
-
Mark S Campbell
Chief Financial Officer
- Total calculated
- $132,144
- From this org
- $118,029
- From related orgs
- $0
- Other
- $14,115
- Hours/week
- 40
-
Philip E Yeske PhD
Science & Alliance Officer
- Total calculated
- $177,660
- From this org
- $150,551
- From related orgs
- $0
- Other
- $27,109
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $150,551
- Bonus
- $0
- Other
- $0
- Deferred
- $8,695
- Nontaxable benefits
- $18,414
- Filer's total
- $177,660
-
Beth Whitehouse
Former Director of Development (Terminated 5/21/24
- Total calculated
- $159,870
- From this org
- $137,157
- From related orgs
- $0
- Other
- $22,713
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $137,157
- Bonus
- $0
- Other
- $0
- Deferred
- $7,915
- Nontaxable benefits
- $14,798
- Filer's total
- $159,870
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2023
- Revenue
- $3,685,049
- Expenses
- $4,660,117
- Contributions
- $2,903,291
- Grants paid
- $1,665,902
-
2022
- Revenue
- $5,296,793
- Expenses
- $3,701,451
- Contributions
- $4,186,139
- Grants paid
- $944,289
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $3,572,403
- Expenses
- $3,198,117
- Assets (EOY)
- $5,075,622
-
2020 · 990
- Revenue
- $3,021,406
- Expenses
- $2,704,378
- Assets (EOY)
- $5,488,767
-
2019 · 990
- Revenue
- $2,789,883
- Expenses
- $2,981,524
- Assets (EOY)
- $4,694,980
-
2018 · 990
- Revenue
- $3,546,866
- Expenses
- $3,127,050
- Assets (EOY)
- $4,395,321
-
2017 · 990
- Revenue
- $3,227,502
- Expenses
- $2,652,219
- Assets (EOY)
- $3,647,852
-
2016 · 990
- Revenue
- $3,487,840
- Expenses
- $3,387,167
- Assets (EOY)
- $3,593,962
-
2015 · 990
- Revenue
- $3,329,597
- Expenses
- $3,304,005
- Assets (EOY)
- $3,489,076
-
2014 · 990
- Revenue
- $3,217,568
- Expenses
- $3,112,993
- Assets (EOY)
- $3,119,637
-
2013 · 990
- Revenue
- $3,015,687
- Expenses
- $2,709,006
- Assets (EOY)
- $2,932,225
-
2012 · 990
- Revenue
- not reported
- Expenses
- $2,868,113
- Assets (EOY)
- $2,526,960
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
-
2023 Research
-
Emmes Endpoint Solutions LLC
$200,000
2022 Research
-
Labcorp
$198,150
2023 Research
-
2022 Research
-
Mayo Clinic
$106,000
2022 Research
-
AIWA Health Inc dba Probably Genetic Inc
$105,000
2023 Research
-
University of Cincinnati
$100,000
2022 Research
-
Perlara PBC
$90,250
2022 Research
-
$73,000
2023 Research & Patient Registry
-
Perlara PBC
$71,250
2023 Research
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
DONOR ADVISED CHARITABLE GIVING
$280,675
2023 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$269,200
2024 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$268,035
2022 HEALTH
-
2022 For grant recipient's exempt purposes
-
2024 For grant recipient's exempt purposes
-
2023 For grant recipient's exempt purposes
-
2022 GENERAL SUPPORT
-
2023 GENERAL SUPPORT
-
THE AYCO CHARITABLE FOUNDATION
$53,500
2024 MEDICAL / PUBLIC SERVICES
-
$51,000
2024 DISEASE/DISORDER
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility GROUP.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2023, the newest we have parsed for this organization.