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Nonprofiteer
← EPILEPSY FOUNDATION OF GREATER CHICAGO

Form 990 for tax year 2023

Filed by EPILEPSY FOUNDATION OF GREATER CHICAGO.

Totals

Total revenue
$2,628,997
Total expenses
$2,866,336
Contributions and grants received
$2,687,364
Grants paid
$46,250
Program service revenue
$0
Investment income
$137,562
Other revenue
-$195,929
Total assets, end of year
$6,177,903
Total liabilities, end of year
$1,859,454
Net assets or fund balances, end of year
$4,318,449
Program services expenses (Part IX)
$1,569,621
Management and general expenses
$784,183
Fundraising expenses
$512,532
Program service expenses (Part III)
$1,569,621

Program services were 54.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $482,636

  • 1e · Government grants (contributions)

    $1,170,061

  • 1f · All other contributions, gifts and grants

    $1,034,667

  • 3 · Investment income

    total $137,562 · excluded $137,562

  • 8a · Fundraising events: gross income

    $50,152

  • 8a · Fundraising events: contributions included on line 1c

    $482,636

  • 8b · Fundraising events: direct expenses

    $246,081

  • 8c · Net income from fundraising events

    total -$195,929 · excluded -$195,929

Functional expenses

Part IX, the statement of functional expenses.

  • 2 · Grants to domestic individuals

    total $46,250 · program services $46,250

  • 5 · Compensation of officers, directors and key employees

    total $89,193 · program services $48,181 · management and general $24,802 · fundraising $16,210

  • 7 · Other salaries and wages

    total $1,340,809 · program services $724,286 · management and general $372,840 · fundraising $243,683

  • 8 · Pension plan contributions

    total $88,509 · program services $47,811 · management and general $24,612 · fundraising $16,086

  • 9 · Other employee benefits

    total $144,887 · program services $78,266 · management and general $40,289 · fundraising $26,332

  • 10 · Payroll taxes

    total $88,936 · program services $48,041 · management and general $24,731 · fundraising $16,164

  • 11b · Fees: legal

    total $33,025 · program services $17,840 · management and general $9,183 · fundraising $6,002

  • 11c · Fees: accounting

    total $105,128 · program services $56,789 · management and general $29,233 · fundraising $19,106

  • 11d · Fees: lobbying

    total $72,000 · program services $38,893 · management and general $20,021 · fundraising $13,086

  • 11g · Fees: other

    total $252,247 · program services $136,261 · management and general $70,142 · fundraising $45,844

  • 12 · Advertising and promotion

    total $39,813 · program services $21,506 · management and general $11,071 · fundraising $7,236

  • 13 · Office expenses

    total $72,009 · program services $38,898 · management and general $20,024 · fundraising $13,087

  • 14 · Information technology

    total $16,502 · program services $8,914 · management and general $4,589 · fundraising $2,999

  • 16 · Occupancy

    total $216,672 · program services $117,043 · management and general $60,250 · fundraising $39,379

  • 17 · Travel

    total $25,046 · program services $13,530 · management and general $6,964 · fundraising $4,552

  • 22 · Depreciation, depletion and amortization

    total $28,180 · program services $15,222 · management and general $7,836 · fundraising $5,122

  • 23 · Insurance

    total $9,552 · program services $5,160 · management and general $2,656 · fundraising $1,736

  • 24a · Other expenses: CATERING AND FACILITY R

    total $89,275 · program services $48,225 · management and general $24,825 · fundraising $16,225

  • 24b · Other expenses: DUES AND SUBSCRIPTIONS

    total $51,173 · program services $27,643 · management and general $14,230 · fundraising $9,300

  • 24c · Other expenses: BANK SERVICE CHARGES

    total $13,713 · program services $7,409 · management and general $3,812 · fundraising $2,492

  • 24d · Other expenses: EMPLOYEE RELATIONS

    total $11,239 · program services $6,072 · management and general $3,125 · fundraising $2,042

  • 24e · All other expenses

    total $32,178 · program services $17,381 · management and general $8,948 · fundraising $5,849

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $2,546,355 · end of year $436,547

  • 2 · Savings and temporary cash investments

    beginning of year $2,250,345 · end of year $3,690,126

  • 3 · Pledges and grants receivable

    beginning of year $214,794 · end of year $278,677

  • 4 · Accounts receivable

    beginning of year $0 · end of year $29,940

  • 9 · Prepaid expenses and deferred charges

    beginning of year $47,554 · end of year $210,272

  • 10a · Land, buildings and equipment: cost or other basis

    $235,955

  • 10b · Land, buildings and equipment: accumulated depreciation

    $80,313

  • 10c · Land, buildings and equipment, net

    beginning of year $171,556 · end of year $155,642

  • 14 · Intangible assets

    beginning of year $1,444,901 · end of year $1,366,783

  • 15 · Other assets

    beginning of year $9,916 · end of year $9,916

  • 17 · Accounts payable and accrued expenses

    beginning of year $78,887 · end of year $180,646

  • 19 · Deferred revenue

    beginning of year $109,569 · end of year $73,356

  • 21 · Escrow or custodial account liability

    beginning of year $299,244 · end of year $43,914

  • 25 · Other liabilities

    beginning of year $1,642,402 · end of year $1,561,538

  • 27 · Net assets without donor restrictions

    beginning of year $4,555,319 · end of year $4,318,449

Mission and programs · 2023

Mission

TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION.

Activities or mission (Part I)

IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION

  • THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S COUNSELING AND CASE MANAGEMENT PROGRAM PROVIDES PEOPLE LIVING WITH EPILEPSY ACCESS TO SUPPORTIVE COUNSELING AND ASSISTANCE THAT WILL ENHANCE THEIR ABILITY TO COPE WITH ISSUES RELATED TO THEIR MEDICAL CONDITION AND IMPROVE THEIR QUALITY OF LIFE. THROUGH SUPPORTIVE COUNSELING, CASE MANAGERS ARE ABLE TO REACH OUT AND ASSURE ANYONE STRUGGLING WITH EPILEPSY IN THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S 44 COUNTY SERVICE AREA THAT THEY ARE NOT ALONE. IN FY24, THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGEMENT TEAM SERVED 556 INDIVIDUAL CLIENTS, PROVIDING ASSISTANCE ON 9,427 OCCASIONS. BY PARTICIPATING IN THIS CASE MANAGEMENT PROGRAM, CLIENTS CAN DEVELOP THE KNOWLEDGE AND SKILLS NECESSARY TO HANDLE COMMON CHALLENGES SUCH AS ISOLATION, MEDICATION COMPLIANCE, NAVIGATING PUBLIC BENEFITS, DIFFICULTIES WITH THE SCHOOL SYSTEM, AND EMPLOYEE DISCRIMINATION. MOST CLIENTS NEEDED ASSISTANCE WITH OBTAINING ACCURATE INFORMATION ON EPILEPSY, EVALUATION AND ASSESSMENT, REFERRAL AND ENTITLEMENT ASSISTANCE, AND EMPLOYMENT ASSISTANCE. THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGERS ALSO ADVOCATED ON BEHALF OF CLIENTS ON HUNDREDS OF OCCASIONS, DEALING WITH EMPLOYMENT, DISCRIMINATION, BENEFITS AND MEDICAL MATTERS. INDIVIDUAL CLINICAL SERVICES OFFERED ARE STRUCTURED TO ADDRESS SPECIFIC ISSUES FACED BY PEOPLE LIVING WITH EPILEPSY AND TO FACILITATE APPROPRIATE LINKAGE TO NECESSARY SERVICES AND BENEFITS. SHORT-TERM, SOLUTION FOCUSED COUNSELING FOR INDIVIDUALS AND FAMILIES, INCLUDING THOSE FACING A NEW DIAGNOSIS OF EPILEPSY, THOSE DECIDING ON SURGICAL INTERVENTIONS AND THOSE SEEKING SUPPORT DURING CHANGES OR ADJUSTMENTS TO MEDICATION AND TREATMENT. EPILEPSY IS INTERMITTENT AND UNPREDICTABLE AND CAN HAVE AN IMPACT ON MOOD AND BEHAVIOR. OUR TRAINED STAFF USES METHODS SUCH AS COGNITIVE BEHAVIOR THERAPY (CBT), PSYCHOEDUCATION AND STRENGTHS-BASED COUNSELING TO PROVIDE RELIEF AND SUPPORT TO THOSE LIVING WITH EPILEPSY.THE EPILEPSY FOUNDATION OF GREATER CHICAGO OFFERS SPECIAL PROGRAMS FOR CHILDREN, TEENS, AND ADULTS LIVING WITH EPILEPSY, AS WELL AS THEIR PARENTS AND CAREGIVERS. THESE SOCIAL, RECREATIONAL AND EDUCATIONAL ACTIVITIES BUILD STRONGER BONDS IN THE EPILEPSY COMMUNITY AND PROVIDE VITAL PEER GROUP INTERACTION AND MEMORABLE, SHARED EXPERIENCES FOR INDIVIDUALS WITH EPILEPSY.

    Expenses $1,231,645 · Grants $46,250

  • THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S HEALTH EDUCATION AND ADVOCACY (HEA) DEPARTMENT (PREVIOUSLY NAMED THE EDUCATION DEPARTMENT) PROVIDES NO-COST EDUCATIONAL PROGRAMS AND TRAININGS THAT CREATE AND PROMOTE PUBLIC AWARENESS SURROUNDING EPILEPSY TO SCHOOLS, WORKPLACES, LAW ENFORCEMENT, COMMUNITY MEMBERS, AND OTHER COMMUNITY ORGANIZATIONS. THESE TRAININGS EDUCATE PEOPLE ABOUT EPILEPSY AND TEACH THEM HOW TO KEEP OTHERS SAFE DURING A SEIZURE. THERE ARE TWO MAIN TRAININGS PROVIDED TO THE PUBLIC: "SEIZURE TRAINING FOR SCHOOL PERSONNEL, AND "SEIZURE RECOGNITION & FIRST AID". WITH LOCAL PARTNERSHIPS OF THIRD-PARTY EDUCATIONAL PLATFORMS, AND A NATIONAL PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA, EFGC STAFF PROVIDED EDUCATION TO OVER 62,000 PEOPLE THROUGH VIRTUAL AND IN-PERSON PROGRAMMING. ANNUALLY, EFGC HOSTS A FREE, DAY-LONG EDUCATION CONFERENCE WITH SPEAKERS AND EXHIBITORS TO PROVIDE A BROAD PLATFORM GIVING THOSE AFFECTED BY EPILEPSY AND THEIR FAMILIES EASY ACCESS TO A RANGE OF INFORMATION INCLUDING THE LATEST MEDICAL TREATMENT OPTIONS. ON OCTOBER 28TH, 2023, EFGC HOSTED THE 13TH ANNUAL EPILEPSY EDUCATION CONFERENCE IN OAK BROOK, ILLINOIS. THE FREE DAY-LONG CONFERENCE WAS GEARED TOWARD PROVIDING INDIVIDUALS WITH EPILEPSY, THEIR FAMILIES, AND THE GENERAL COMMUNITY WITH THE LATEST INFORMATION ABOUT EPILEPSY. MORE THAN 150 INDIVIDUALS ATTENDED THE 2023 EDUCATION CONFERENCE.

    Expenses $168,988

  • THE EPILEPSY FOUNDATION OF GREATER CHICAGO EDUCATES THE GENERAL COMMUNITY THROUGH VARIOUS PUBLICITY OUTLETS, SUCH AS, ONLINE, TELEVISION, RADIO, AND SOCIAL MEDIA. "ECONNECTIONS," A QUARTERLY E-NEWSLETTER, IS SENT OUT FOUR TIMES TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ENTIRE EMAIL DATABASE. ON AVERAGE, EACH E-BLAST IS SENT TO MORE THAN 12,000 SUBSCRIBERS. "ECONNECTIONS" COVERS A VARIETY OF TOPICS RELATING TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO AND THE EPILEPSY COMMUNITY. DOZENS OF E-BLASTS PROMOTING A SPECIFIC ISSUE, PROGRAM, OR EVENT ARE ADDITIONALLY SENT TO THE TARGETED AUDIENCES. IN FY24, THE EPILEPSY FOUNDATION OF GREATER CHICAGO SENT MORE THAN 90,000 EMAILS TO PEOPLE INTERESTED IN EPILEPSY AND GENERATED MORE THAN 10 MILLION MEDIA IMPRESSIONS THROUGH MARKETING CAMPAIGNS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO UTILIZES POPULAR SOCIAL MEDIA OUTLETS TO INCREASE ITS ONLINE PRESENCE. FACEBOOK, X, INSTAGRAM, YOUTUBE, AND LINKEDIN COLLECTIVELY BOAST MORE THAN 20,000 FOLLOWERS. POSTS REGARDING THE LATEST INFORMATION ABOUT EPILEPSY, HOW IT IMPACTS THE PUBLIC, AS WELL AS THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ACTIVITIES, ARE UPDATED ON A DAILY BASIS.

    Expenses $168,988

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • MATT MCINERNEY

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    1

  • ERIC WEBER

    VICE PRESIDENT AND SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • STEVE CORDA

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • LISA AHERN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TAKIJAH HEARD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DAN HUGO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • JASON HOFFERICA

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • BRAD SEROT

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • GEOFFREY VANCE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • MATT SAMSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • GORDON HARTRANFT

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • NANCY IIDA

    INTERIM PRESIDENT AND CEO

    Total calculated
    $80,653
    From this org
    $80,653
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • ALICIA VEGA

    INTERIM PRESIDENT AND CEO

    Total calculated
    $0
    Hours/week
    40

  • ROBERTA SHOEMAKER

    VP OF OPERATIONS & FINANCE

    Total calculated
    $129,603
    From this org
    $120,443
    From related orgs
    $0
    Other
    $9,160
    Hours/week
    40

  • ANASTASIA MCCARGO

    VP OF CLIENT SERVICES

    Total calculated
    $113,516
    From this org
    $102,919
    From related orgs
    $0
    Other
    $10,597
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2023
Filed
12 May 2025
IRS schema version
2023v6.0
Source object
202521339349303882

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