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EPILEPSY FOUNDATION OF GREATER CHICAGO

EIN 36-2317619 CHICAGO, IL

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Revenue 2024
$3,712,804
Expenses 2024
$3,225,890

Program services were 56.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Classification
1000
Street
17 N STATE ST STE 650

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION.

Activities or mission (Part I)

IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION

  • THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S COUNSELING AND CASE MANAGEMENT PROGRAM PROVIDES PEOPLE LIVING WITH EPILEPSY ACCESS TO SUPPORTIVE COUNSELING AND ASSISTANCE THAT WILL ENHANCE THEIR ABILITY TO COPE WITH ISSUES RELATED TO THEIR MEDICAL CONDITION AND IMPROVE THEIR QUALITY OF LIFE. THROUGH SUPPORTIVE COUNSELING, CASE MANAGERS ARE ABLE TO REACH OUT AND ASSURE ANYONE STRUGGLING WITH EPILEPSY IN THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S 44 COUNTY SERVICE AREA THAT THEY ARE NOT ALONE. IN FY25, THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGEMENT TEAM SERVED 601 INDIVIDUAL CLIENTS, PROVIDING ASSISTANCE ON 15,624 OCCASIONS. BY PARTICIPATING IN THIS CASE MANAGEMENT PROGRAM, CLIENTS CAN DEVELOP THE KNOWLEDGE AND SKILLS NECESSARY TO HANDLE COMMON CHALLENGES SUCH AS ISOLATION, MEDICATION COMPLIANCE, NAVIGATING PUBLIC BENEFITS, DIFFICULTIES WITH THE SCHOOL SYSTEM, AND EMPLOYEE DISCRIMINATION. MOST CLIENTS NEEDED ASSISTANCE WITH OBTAINING ACCURATE INFORMATION ON EPILEPSY, EVALUATION AND ASSESSMENT, REFERRAL AND ENTITLEMENT ASSISTANCE, AND EMPLOYMENT ASSISTANCE. THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGERS ALSO ADVOCATED ON BEHALF OF CLIENTS ON HUNDREDS OF OCCASIONS, DEALING WITH EMPLOYMENT, DISCRIMINATION, BENEFITS AND MEDICAL MATTERS. INDIVIDUAL CLINICAL SERVICES OFFERED ARE STRUCTURED TO ADDRESS SPECIFIC ISSUES FACED BY PEOPLE LIVING WITH EPILEPSY AND TO FACILITATE APPROPRIATE LINKAGE TO NECESSARY SERVICES AND BENEFITS. SHORT-TERM, SOLUTION FOCUSED COUNSELING FOR INDIVIDUALS AND FAMILIES, INCLUDING THOSE FACING A NEW DIAGNOSIS OF EPILEPSY, THOSE DECIDING ON SURGICAL INTERVENTIONS AND THOSE SEEKING SUPPORT DURING CHANGES OR ADJUSTMENTS TO MEDICATION AND TREATMENT. EPILEPSY IS INTERMITTENT AND UNPREDICTABLE AND CAN HAVE AN IMPACT ON MOOD AND BEHAVIOR. OUR TRAINED STAFF USES METHODS SUCH AS COGNITIVE BEHAVIOR THERAPY (CBT), PSYCHOEDUCATION AND STRENGTHS-BASED COUNSELING TO PROVIDE RELIEF AND SUPPORT TO THOSE LIVING WITH EPILEPSY. THE EPILEPSY FOUNDATION OF GREATER CHICAGO OFFERS SPECIAL PROGRAMS FOR CHILDREN, TEENS, AND ADULTS LIVING WITH EPILEPSY, AS WELL AS THEIR PARENTS AND CAREGIVERS. THESE SOCIAL, RECREATIONAL AND EDUCATIONAL ACTIVITIES BUILD STRONGER BONDS IN THE EPILEPSY COMMUNITY AND PROVIDE VITAL PEER GROUP INTERACTION AND MEMORABLE, SHARED EXPERIENCES FOR INDIVIDUALS WITH EPILEPSY.

    Expenses $1,345,008

  • THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S HEALTH EDUCATION AND ADVOCACY (HEA) DEPARTMENT (PREVIOUSLY NAMED THE EDUCATION DEPARTMENT) PROVIDES NO-COST EDUCATIONAL PROGRAMS AND TRAININGS THAT CREATE AND PROMOTE PUBLIC AWARENESS SURROUNDING EPILEPSY TO SCHOOLS, WORKPLACES, LAW ENFORCEMENT, COMMUNITY MEMBERS, AND OTHER COMMUNITY ORGANIZATIONS. THESE TRAININGS EDUCATE PEOPLE ABOUT EPILEPSY AND TEACH THEM HOW TO KEEP OTHERS SAFE DURING A SEIZURE. THERE ARE TWO MAIN TRAININGS PROVIDED TO THE PUBLIC: "SEIZURE TRAINING FOR SCHOOL PERSONNEL, AND "SEIZURE RECOGNITION & FIRST AID". WITH LOCAL PARTNERSHIPS OF THIRD-PARTY EDUCATIONAL PLATFORMS, AND A NATIONAL PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA, EFGC STAFF PROVIDED EDUCATION TO OVER 9,000 PEOPLE THROUGH VIRTUAL AND IN-PERSON PROGRAMMING. ANNUALLY, EFGC HOSTS A FREE, DAY-LONG EDUCATION CONFERENCE WITH SPEAKERS AND EXHIBITORS TO PROVIDE A BROAD PLATFORM GIVING THOSE AFFECTED BY EPILEPSY AND THEIR FAMILIES EASY ACCESS TO A RANGE OF INFORMATION INCLUDING THE LATEST MEDICAL TREATMENT OPTIONS. ON NOVEMBER 16, 2024, EFGC HOSTED THE 14TH ANNUAL EPILEPSY EDUCATION CONFERENCE IN OAK BROOK, ILLINOIS. THE FREE DAY-LONG CONFERENCE WAS GEARED TOWARD PROVIDING INDIVIDUALS WITH EPILEPSY, THEIR FAMILIES, AND THE GENERAL COMMUNITY WITH THE LATEST INFORMATION ABOUT EPILEPSY. MORE THAN 175 INDIVIDUALS ATTENDED THE 2024 EDUCATION CONFERENCE. ON MARCH 29, 2025, EFGC HOSTED THE 8TH ANNUAL SPANISH EDUCATION CONFERENCE IN THE PILSEN NEIGHBORHOOD OF CHICAGO. MORE THAN 120 INDIVIDUALS ATTENDED.

    Expenses $230,557 · Grants $5,000

  • THE EPILEPSY FOUNDATION OF GREATER CHICAGO EDUCATES THE GENERAL COMMUNITY THROUGH VARIOUS PUBLICITY OUTLETS, SUCH AS, ONLINE, TELEVISION, RADIO, AND SOCIAL MEDIA. "ECONNECTIONS," A QUARTERLY E-NEWSLETTER, IS SENT OUT FOUR TIMES TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ENTIRE EMAIL DATABASE. ON AVERAGE, EACH E-BLAST IS SENT TO MORE THAN 13,500 SUBSCRIBERS. "ECONNECTIONS" COVERS A VARIETY OF TOPICS RELATING TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO AND THE EPILEPSY COMMUNITY. DOZENS OF E-BLASTS PROMOTING A SPECIFIC ISSUE, PROGRAM, OR EVENT ARE ADDITIONALLY SENT TO THE TARGETED AUDIENCES. IN FY25, THE EPILEPSY FOUNDATION OF GREATER CHICAGO SENT MORE THAN 130,000 EMAILS TO PEOPLE INTERESTED IN EPILEPSY AND GENERATED MORE THAN 10 MILLION MEDIA IMPRESSIONS THROUGH MARKETING CAMPAIGNS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO UTILIZES POPULAR SOCIAL MEDIA OUTLETS TO INCREASE ITS ONLINE PRESENCE. FACEBOOK, X, INSTAGRAM, YOUTUBE, AND LINKEDIN COLLECTIVELY BOAST MORE THAN 22,300 FOLLOWERS. POSTS REGARDING THE LATEST INFORMATION ABOUT EPILEPSY, HOW IT IMPACTS THE PUBLIC, AS WELL AS THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ACTIVITIES, ARE UPDATED ON A DAILY BASIS.

    Expenses $230,557 · Grants $5,000

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Nancy Lida

    BOARD CHAIR

    Total calculated
    $8,540
    From this org
    $8,540
    From related orgs
    $0
    Other
    $0
    Hours/week
    1
  • Matt McInerney

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1
  • Jason Hoferica

    TREASURER

    Total calculated
    $0
    Hours/week
    1
  • Eric Weber

    SECRETARY

    Total calculated
    $0
    Hours/week
    1
  • Lisa Ahern

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Takijah Heard

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Dan Hugo

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Brad Serot

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Geoffrey Vance

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Matt Samson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Gordon Hartranft

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Carshae Dahl

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Jason Wendt

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Alison Ruble

    PRESIDENT AND CEO (01/06/25 - CURRENT)

    Total calculated
    $0
    Hours/week
    40
  • Alicia Vega

    INTERIM PRESIDENT AND CEO (07/01/24-01/06/25)

    Total calculated
    $0
    Hours/week
    40
  • Anastasia McCargo

    VP OF CLIENT SERVICES

    Total calculated
    $123,668
    From this org
    $115,539
    From related orgs
    $0
    Other
    $8,129
    Hours/week
    40
  • Ayesha Akhtar

    VP OF OPERATIONS & FINANCE

    Total calculated
    $116,019
    From this org
    $112,693
    From related orgs
    $0
    Other
    $3,326
    Hours/week
    40
  • Eric Alvarez

    VP OF DEVELOPMENT & MARKETING

    Total calculated
    $129,478
    From this org
    $101,746
    From related orgs
    $0
    Other
    $27,732
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $3,712,804
    Expenses
    $3,225,890
    Contributions
    $3,745,608
    Grants paid
    $10,000
  • 2023
    Revenue
    $2,628,997
    Expenses
    $2,866,336
    Contributions
    $2,687,364
    Grants paid
    $46,250
  • 2022
    Revenue
    $2,363,979
    Expenses
    $2,498,384
    Contributions
    $2,562,773
    Grants paid
    $56,250

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $2,507,607
    Expenses
    $2,249,070
    Assets (EOY)
    $6,465,496
  • 2020 · 990

    Revenue
    $2,204,564
    Expenses
    $2,049,605
    Assets (EOY)
    $4,616,342
  • 2019 · 990

    Revenue
    $2,865,735
    Expenses
    $2,064,801
    Assets (EOY)
    $4,427,379
  • 2017 · 990

    Revenue
    $2,411,427
    Expenses
    $2,072,488
    Assets (EOY)
    $3,489,245
  • 2016 · 990

    Revenue
    $2,713,604
    Expenses
    $1,852,156
    Assets (EOY)
    $3,158,845
  • 2015 · 990

    Revenue
    $1,764,417
    Expenses
    $1,734,168
    Assets (EOY)
    $2,274,221
  • 2014 · 990

    Revenue
    $2,444,927
    Expenses
    $1,939,301
    Assets (EOY)
    $2,333,784
  • 2013 · 990

    Revenue
    $2,333,199
    Expenses
    $1,591,722
    Assets (EOY)
    $1,737,564
  • 2012 · 990

    Revenue
    not reported
    Expenses
    $1,544,595
    Assets (EOY)
    $931,032
  • 2011 · 990

    Revenue
    not reported
    Expenses
    $1,453,524
    Assets (EOY)
    $781,026

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2022 return

Declared as related by

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.