Form 990 for tax year 2024

Totals

Total revenue

$3,712,804

Total expenses

$3,225,890

Contributions and grants received

$3,745,608

Grants paid

$10,000

Program service revenue

$0

Investment income

$153,406

Other revenue

-$186,210

Total assets, end of year

$6,772,505

Total liabilities, end of year

$1,968,981

Net assets or fund balances, end of year

$4,803,524

Program services expenses (Part IX)

$1,806,122

Management and general expenses

$549,142

Fundraising expenses

$870,626

Program service expenses (Part III)

$1,806,122

Program services were 56.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2024

• THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S COUNSELING AND CASE MANAGEMENT PROGRAM PROVIDES PEOPLE LIVING WITH EPILEPSY ACCESS TO SUPPORTIVE COUNSELING AND ASSISTANCE THAT WILL ENHANCE THEIR ABILITY TO COPE WITH ISSUES RELATED TO THEIR MEDICAL CONDITION AND IMPROVE THEIR QUALITY OF LIFE. THROUGH SUPPORTIVE COUNSELING, CASE MANAGERS ARE ABLE TO REACH OUT AND ASSURE ANYONE STRUGGLING WITH EPILEPSY IN THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S 44 COUNTY SERVICE AREA THAT THEY ARE NOT ALONE. IN FY25, THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGEMENT TEAM SERVED 601 INDIVIDUAL CLIENTS, PROVIDING ASSISTANCE ON 15,624 OCCASIONS. BY PARTICIPATING IN THIS CASE MANAGEMENT PROGRAM, CLIENTS CAN DEVELOP THE KNOWLEDGE AND SKILLS NECESSARY TO HANDLE COMMON CHALLENGES SUCH AS ISOLATION, MEDICATION COMPLIANCE, NAVIGATING PUBLIC BENEFITS, DIFFICULTIES WITH THE SCHOOL SYSTEM, AND EMPLOYEE DISCRIMINATION. MOST CLIENTS NEEDED ASSISTANCE WITH OBTAINING ACCURATE INFORMATION ON EPILEPSY, EVALUATION AND ASSESSMENT, REFERRAL AND ENTITLEMENT ASSISTANCE, AND EMPLOYMENT ASSISTANCE. THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGERS ALSO ADVOCATED ON BEHALF OF CLIENTS ON HUNDREDS OF OCCASIONS, DEALING WITH EMPLOYMENT, DISCRIMINATION, BENEFITS AND MEDICAL MATTERS. INDIVIDUAL CLINICAL SERVICES OFFERED ARE STRUCTURED TO ADDRESS SPECIFIC ISSUES FACED BY PEOPLE LIVING WITH EPILEPSY AND TO FACILITATE APPROPRIATE LINKAGE TO NECESSARY SERVICES AND BENEFITS. SHORT-TERM, SOLUTION FOCUSED COUNSELING FOR INDIVIDUALS AND FAMILIES, INCLUDING THOSE FACING A NEW DIAGNOSIS OF EPILEPSY, THOSE DECIDING ON SURGICAL INTERVENTIONS AND THOSE SEEKING SUPPORT DURING CHANGES OR ADJUSTMENTS TO MEDICATION AND TREATMENT. EPILEPSY IS INTERMITTENT AND UNPREDICTABLE AND CAN HAVE AN IMPACT ON MOOD AND BEHAVIOR. OUR TRAINED STAFF USES METHODS SUCH AS COGNITIVE BEHAVIOR THERAPY (CBT), PSYCHOEDUCATION AND STRENGTHS-BASED COUNSELING TO PROVIDE RELIEF AND SUPPORT TO THOSE LIVING WITH EPILEPSY. THE EPILEPSY FOUNDATION OF GREATER CHICAGO OFFERS SPECIAL PROGRAMS FOR CHILDREN, TEENS, AND ADULTS LIVING WITH EPILEPSY, AS WELL AS THEIR PARENTS AND CAREGIVERS. THESE SOCIAL, RECREATIONAL AND EDUCATIONAL ACTIVITIES BUILD STRONGER BONDS IN THE EPILEPSY COMMUNITY AND PROVIDE VITAL PEER GROUP INTERACTION AND MEMORABLE, SHARED EXPERIENCES FOR INDIVIDUALS WITH EPILEPSY.

  Expenses $1,345,008

• THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S HEALTH EDUCATION AND ADVOCACY (HEA) DEPARTMENT (PREVIOUSLY NAMED THE EDUCATION DEPARTMENT) PROVIDES NO-COST EDUCATIONAL PROGRAMS AND TRAININGS THAT CREATE AND PROMOTE PUBLIC AWARENESS SURROUNDING EPILEPSY TO SCHOOLS, WORKPLACES, LAW ENFORCEMENT, COMMUNITY MEMBERS, AND OTHER COMMUNITY ORGANIZATIONS. THESE TRAININGS EDUCATE PEOPLE ABOUT EPILEPSY AND TEACH THEM HOW TO KEEP OTHERS SAFE DURING A SEIZURE. THERE ARE TWO MAIN TRAININGS PROVIDED TO THE PUBLIC: "SEIZURE TRAINING FOR SCHOOL PERSONNEL, AND "SEIZURE RECOGNITION & FIRST AID". WITH LOCAL PARTNERSHIPS OF THIRD-PARTY EDUCATIONAL PLATFORMS, AND A NATIONAL PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA, EFGC STAFF PROVIDED EDUCATION TO OVER 9,000 PEOPLE THROUGH VIRTUAL AND IN-PERSON PROGRAMMING. ANNUALLY, EFGC HOSTS A FREE, DAY-LONG EDUCATION CONFERENCE WITH SPEAKERS AND EXHIBITORS TO PROVIDE A BROAD PLATFORM GIVING THOSE AFFECTED BY EPILEPSY AND THEIR FAMILIES EASY ACCESS TO A RANGE OF INFORMATION INCLUDING THE LATEST MEDICAL TREATMENT OPTIONS. ON NOVEMBER 16, 2024, EFGC HOSTED THE 14TH ANNUAL EPILEPSY EDUCATION CONFERENCE IN OAK BROOK, ILLINOIS. THE FREE DAY-LONG CONFERENCE WAS GEARED TOWARD PROVIDING INDIVIDUALS WITH EPILEPSY, THEIR FAMILIES, AND THE GENERAL COMMUNITY WITH THE LATEST INFORMATION ABOUT EPILEPSY. MORE THAN 175 INDIVIDUALS ATTENDED THE 2024 EDUCATION CONFERENCE. ON MARCH 29, 2025, EFGC HOSTED THE 8TH ANNUAL SPANISH EDUCATION CONFERENCE IN THE PILSEN NEIGHBORHOOD OF CHICAGO. MORE THAN 120 INDIVIDUALS ATTENDED.

  Expenses $230,557 · Grants $5,000

• THE EPILEPSY FOUNDATION OF GREATER CHICAGO EDUCATES THE GENERAL COMMUNITY THROUGH VARIOUS PUBLICITY OUTLETS, SUCH AS, ONLINE, TELEVISION, RADIO, AND SOCIAL MEDIA. "ECONNECTIONS," A QUARTERLY E-NEWSLETTER, IS SENT OUT FOUR TIMES TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ENTIRE EMAIL DATABASE. ON AVERAGE, EACH E-BLAST IS SENT TO MORE THAN 13,500 SUBSCRIBERS. "ECONNECTIONS" COVERS A VARIETY OF TOPICS RELATING TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO AND THE EPILEPSY COMMUNITY. DOZENS OF E-BLASTS PROMOTING A SPECIFIC ISSUE, PROGRAM, OR EVENT ARE ADDITIONALLY SENT TO THE TARGETED AUDIENCES. IN FY25, THE EPILEPSY FOUNDATION OF GREATER CHICAGO SENT MORE THAN 130,000 EMAILS TO PEOPLE INTERESTED IN EPILEPSY AND GENERATED MORE THAN 10 MILLION MEDIA IMPRESSIONS THROUGH MARKETING CAMPAIGNS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO UTILIZES POPULAR SOCIAL MEDIA OUTLETS TO INCREASE ITS ONLINE PRESENCE. FACEBOOK, X, INSTAGRAM, YOUTUBE, AND LINKEDIN COLLECTIVELY BOAST MORE THAN 22,300 FOLLOWERS. POSTS REGARDING THE LATEST INFORMATION ABOUT EPILEPSY, HOW IT IMPACTS THE PUBLIC, AS WELL AS THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ACTIVITIES, ARE UPDATED ON A DAILY BASIS.

  Expenses $230,557 · Grants $5,000

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990

Tax year

2024

Filed

26 January 2026

IRS schema version

2024v5.5

Source object

202620279349301827

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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