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← FOUNDATION FOR SARCOIDOSIS RESEARCH

Form 990 for tax year 2024

Filed by FOUNDATION FOR SARCOIDOSIS RESEARCH.

Totals

Total revenue
$13,585,865
Total expenses
$3,368,016
Contributions and grants received
$13,025,070
Grants paid
$952,335
Program service revenue
$192,325
Investment income
$364,032
Other revenue
$4,438
Total assets, end of year
$17,183,158
Total liabilities, end of year
$1,172,431
Net assets or fund balances, end of year
$16,010,727
Program services expenses (Part IX)
$2,567,054
Management and general expenses
$589,331
Fundraising expenses
$211,631
Program service expenses (Part III)
$2,567,054

Program services were 76.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1b · Membership dues

    $130,000

  • 1f · All other contributions, gifts and grants

    $12,895,070

  • 2a · Program service revenue: PROGRAM SERVICE FEES

    total $129,025 · related or exempt $129,025

  • 2b · Program service revenue: MEMBERSHIP DUES & ASSESSMENTS

    total $63,300 · related or exempt $63,300

  • 3 · Investment income

    total $388,899 · excluded $388,899

  • 7a · Gross sales of assets other than inventory

    securities $870,127

  • 7b · Less cost or other basis and sales expenses

    securities $894,994

  • 7c · Gain or loss

    securities -$24,867

  • 7d · Net gain or loss

    total -$24,867 · excluded -$24,867

  • 10a · Gross sales of inventory

    $370

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $370 · related or exempt $370

  • 11a · Other revenue: MISCELLANEOUS INCOME

    total $4,068 · related or exempt $4,068

  • 11e · Other revenue, total

    $4,068

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $847,694 · program services $847,694

  • 3 · Grants to foreign organizations and individuals

    total $104,641 · program services $104,641

  • 5 · Compensation of officers, directors and key employees

    total $456,600 · program services $309,294 · management and general $97,203 · fundraising $50,103

  • 7 · Other salaries and wages

    total $701,571 · program services $475,233 · management and general $149,353 · fundraising $76,985

  • 8 · Pension plan contributions

    total $600 · program services $406 · management and general $128 · fundraising $66

  • 9 · Other employee benefits

    total $81,078 · program services $54,921 · management and general $17,260 · fundraising $8,897

  • 10 · Payroll taxes

    total $94,370 · program services $63,925 · management and general $20,090 · fundraising $10,355

  • 11c · Fees: accounting

    total $94,788 · program services $161 · management and general $94,626 · fundraising $1

  • 11f · Fees: investment management

    total $26,189 · management and general $26,189

  • 11g · Fees: other

    total $322,570 · program services $304,955 · management and general $16,615 · fundraising $1,000

  • 12 · Advertising and promotion

    total $1,362 · program services $1,362

  • 13 · Office expenses

    total $142,138 · program services $78,470 · management and general $26,897 · fundraising $36,771

  • 14 · Information technology

    total $153,332 · program services $37,546 · management and general $90,487 · fundraising $25,299

  • 16 · Occupancy

    total $33,602 · management and general $33,602

  • 17 · Travel

    total $116,926 · program services $108,787 · management and general $8,092 · fundraising $47

  • 19 · Conferences, conventions and meetings

    total $82,790 · program services $81,880 · management and general $910

  • 22 · Depreciation, depletion and amortization

    total $55 · management and general $55

  • 23 · Insurance

    total $4,501 · management and general $4,501

  • 24a · Other expenses: RESEARCH PROGRAMS

    total $103,209 · program services $97,779 · management and general $3,323 · fundraising $2,107

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $959,707 · end of year $759,559

  • 3 · Pledges and grants receivable

    beginning of year $322,714 · end of year $187,301

  • 4 · Accounts receivable

    beginning of year $7,284 · end of year $98,186

  • 9 · Prepaid expenses and deferred charges

    beginning of year $49,489 · end of year $66,514

  • 10a · Land, buildings and equipment: cost or other basis

    $45,703

  • 10b · Land, buildings and equipment: accumulated depreciation

    $45,703

  • 10c · Land, buildings and equipment, net

    beginning of year $54 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $4,403,647 · end of year $16,071,598

  • 17 · Accounts payable and accrued expenses

    beginning of year $142,399 · end of year $321,294

  • 18 · Grants payable

    beginning of year $313,500 · end of year $845,304

  • 19 · Deferred revenue

    end of year $5,833

  • 27 · Net assets without donor restrictions

    beginning of year $4,205,506 · end of year $14,502,618

  • 28 · Net assets with donor restrictions

    beginning of year $1,081,490 · end of year $1,508,109

Mission and programs · 2024

Mission

THE FOUNDATION FOR SARCOIDOSIS RESEARCH (FSR) IS THE LEADING INTERNATIONAL ORGANIZATION DEDICATED TO FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH RESEARCH, EDUCATION, AND SUPPORT. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $7.5 MILLION IN SARCOIDOSIS SPECIFIC RESEARCH EFFORTS.

  • PATIENT AND CLINICIAN SUPPORT AND PROGRAMMING:FSR PROVIDES PATIENTS WITH DIRECT SUPPORT THROUGH OUR PEER-LED TRAINED VOLUNTEER COMMUNITY GROUPS, SUPPORT GROUPS, OUR ONE-ONE-ONE PATIENT NAVIGATOR SUPPORT PROGRAM, AND COMMUNITY OUTREACH ACTIVITIES. FSR PROVIDES DIRECT PATIENT EDUCATION THROUGH FSR'S WEBINAR AND TOWN HALL EDUCATIONAL SERIES, FSR SARC FIGHTER PODCAST. FSR HAS ALSO PROVIDED A SPECIFIC EMPHASIS ON IMPROVING REPRESENTATION IN CLINICAL TRIALS THROUGH OUR IGNORE NO MORE EFFORTS.FSR ALSO PROVIDES CLINICIAN EDUCATION AND SUPPORT THROUGH THE CLINICIAN EDUCATION AND ENGAGEMENT SERIES, PEER CASE REVIEWS, AND THE FSR JOURNAL CLUB. THESE PROGRAMS PROVIDE CLINICIANS WITH CONTINUING MEDICAL EDUCATION CREDITS AND FOSTER BEST PRACTICE SHARING AND OUTCOME IMPROVEMENT STRATEGIES.

    Expenses $971,674 · Revenue $63,300

  • FSR PROVIDES RESEARCH FUNDING THROUGH OUR FELLOWSHIP, CARDIAC GRANT, AND PILOT GRANT FUNDING PROGRAM. THROUGH THE FSR CLINICAL STUDIES NETWORK, FSR FUNDS AND FACILITATES A 12 SITE INTERNATIONAL STUDY SEEKING TO UNDERSTAND THE DIAGNOSIS OF CARDIAC SARCOIDOSIS. FSR HAS ALSO SIGNIFICANTLY INCREASED PARTICIPATION IN THE FSR PATIENT REPORTED OUTCOMES REGISTRY IN ORDER TO INCREASE UNDERSTANDING OF PATIENT'S LIVED EXPERIENCE WITH SARCOIDOSIS.

    Expenses $1,376,075 · Grants $952,335 · Revenue $129,025

  • FSR WORKS DIRECTLY WITH INDUSTRY PARTNERS LEVERAGING ITS EXPERTISE, CONTACTS, THE FSR PATIENT REPORTED OUTCOMES REGISTRY, AND ITS DATABASE IN SUPPORT OF ACADEMIC AND INDUSTRY SPONSORED RESEARCH EFFORTS. THROUGH THIS PROGRAM FSR HELPS TO REVIEW PROTOCOLS, CONNECT INDUSTRY WITH POSSIBLE INVESTIGATORS AND RESEARCH SITES, AND SUPPORT THE RECRUITMENT AND ENROLLMENT OF SARCOIDOSIS-RELATED INDUSTRY SPONSORED TRIALS.

    Expenses $219,305

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Mary Cobb

    PRESIDENT

    Total calculated
    $0
    Hours/week
    10

  • Heidi W Junk

    VICE PRESIDENT (THRU DEC-2024)

    Total calculated
    $0
    Hours/week
    5

  • Michael Kaplan

    TREASURER (THRU DEC-2024)

    Total calculated
    $0
    Hours/week
    5

  • Joel Rosen

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

  • Yvette C Cozier

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Emerson Randy Hall Jr

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Calvin Harris

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michael Klingher

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jeffrey Raich

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Louise M Perkins

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Craig Lipset

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Leslie Serchuck

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Rev Michael A Walrond Jr

    DIRECTOR (THRU NOV-24)

    Total calculated
    $0
    Hours/week
    1

  • Mary McGowan

    PRESIDENT & CEO

    Total calculated
    $272,376
    From this org
    $256,000
    From related orgs
    $0
    Other
    $16,376
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $242,000
    Bonus
    $14,000
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $16,376
    Filer's total
    $272,376

  • Tricha Shivas

    CHIEF OF STAFF AND STRATEGY

    Total calculated
    $217,156
    From this org
    $200,600
    From related orgs
    $0
    Other
    $16,556
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $190,600
    Bonus
    $10,000
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $16,556
    Filer's total
    $217,156

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2024
Filed
29 September 2025
IRS schema version
2024v5.2
Source object
202503189349308710

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