FOUNDATION FOR SARCOIDOSIS RESEARCH

As filed

Subsection

03

NTEE code

T31

Classification

1000

Street

320 W OHIO ST STE 300

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

• FSR RESEARCH FUNDING - THE FOUNDATION FOR SARCOIDOSIS RESEARCH PROVIDED $875,600 IN SARCOIDOSIS RESEARCH FUNDING IN 2025. FSR PROVIDED THREE FELLOWSHIPS IN THE AMOUNT OF $150,000 EACH, TWO CARDIAC GRANTS IN THE AMOUNT OF $100,000 EACH, TWO PILOT GRANTS IN THE AMOUNTS OF $100,000 AND $99,600, AND ONE FSR/AMERICAN HEART ASSOCIATION PARTNER GRANT IN THE AMOUNT OF $26,000. FSR ALSO HOSTS A PATIENT REGISTRY WITH NEARLY 7,500 PARTICIPANTS FROM 68 COUNTRIES AND PROVIDES ONGOING SUPPORT TO ACADEMIA AND INDUSTRY IN ENSURING ALL CLINICAL TRIALS AND RESEARCH ARE PATIENT CENTERED.

  Expenses $1,553,084 · Grants $844,600 · Revenue $85,903

• FSR GLOBAL SARCOIDOSIS CLINIC ALLIANCE (FSR-GSCA) CLINICAL SUPPORT - COMPRISED OF 46 MEMBER INSTITUTIONS, THE FSR-GSCA IS A POWERFUL NETWORK OF INSTITUTIONS THAT SUPPORT PATIENTS, CAREGIVERS, AND CLINICIANS, THROUGH EDUCATIONAL AND SUPPORT PROGRAMMING. THE FSR-GSCA REACHES OVER 4000 CLINICIANS WITH CLINICAL EDUCATION PROGRAMMING FROM OVER 40 COUNTRIES. THROUGH THIS PROGRAM, FSR COORDINATES CONTINUING EDUCATION EDUCATIONAL PROGRAMS FOR CLINICIANS INCLUDING THE FSR CLINICAL EDUCATION AND ENGAGEMENT SERIES, THE FSR JOURNAL CLUB, AND THE FSR CASE CONFERENCE PROGRAM, WHICH PROVIDE INSIGHTS THAT LEAD TO PRACTICE CHANGING BEHAVIOR BY ATTENDEES AND PARTICIPANTS. FSR IS NOW SUPPORTING REGIONAL CLINICAL EDUCATION MEETINGS THROUGH PROGRAM AND MARKETING SUPPORT TO REACH BEYOND EXPERTS TO THE POOL OF LOCAL PHYSICIANS AND ADVANCED PRACTITIONERS.

  Expenses $1,096,474 · Grants $31,000 · Revenue $11,364

• FSR PATIENT SUPPORT AND EDUCATION - FSR PROVIDES EXTENSIVE SUPPORT TO PATIENT AND CAREGIVERS IMPACTED BY SARCOIDOSIS THROUGH INFORMATION & REFERRAL SERVICES, ASSISTANCE TO FINANCIAL RESOURCES, 1:1 PEER TO PEER PATIENT SUPPORT PROGRAM (PATIENT NAVIGATORS), NATIONAL VIRTUAL SUPPORT GROUP, AND LOCAL SUPPORT GROUPS AFFILIATED WITH THE FSR GLOBAL SARCOIDOSIS CLINIC ALLIANCE. FSR HOSTS WEBINARS, TOWN HALLS, PODCASTS, VIRTUAL SUMMITS, AND IN-PERSON EDUCATIONAL EVENTS TO PROVIDE PATIENTS AND FAMILY MEMBERS WITH EDUCATION FROM WORLD-RENOWNED SARCOIDOSIS EXPERTS. FSR WORKS WITH THE NIH, FDA, AND DOD TO ENSURE THE SARCOIDOSIS IS CONSIDERED IN ALL ASPECTS FOR FEDERAL RESEARCH AND DRUG DEVELOPMENT. FSR IS COMMITTED TO ENSURING CLINICAL TRIALS REPRESENT ALL IN OUR COMMUNITY AND HAS BEEN LEADING EFFORTS TO REDUCE BARRIERS TO CLINICAL TRIAL ACCESS, INCLUDING COVERAGE UNDER FMLA AND PAID TIME OFF.

  Expenses $215,975

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

• 2025

  Revenue

  $4,662,058

  Expenses

  $3,810,958

  Contributions

  $3,985,033

  Grants paid

  $875,600

• 2024

  Revenue

  $13,585,865

  Expenses

  $3,368,016

  Contributions

  $13,025,070

  Grants paid

  $952,335

• 2023

  Revenue

  $2,574,104

  Expenses

  $2,402,436

  Contributions

  $2,411,412

  Grants paid

  $323,706

• 2022

  Revenue

  $1,673,599

  Expenses

  $2,027,945

  Contributions

  $1,291,209

  Grants paid

  $354,750

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $2,385,283

  Expenses

  $1,728,967

  Assets (EOY)

  $6,004,041

• 2020 · 990

  Revenue

  $1,785,472

  Expenses

  $1,389,197

  Assets (EOY)

  $5,212,814

• 2019 · 990

  Revenue

  $2,172,152

  Expenses

  $2,666,891

  Assets (EOY)

  $4,488,567

• 2018 · 990

  Revenue

  $4,058,860

  Expenses

  $2,454,428

  Assets (EOY)

  $4,456,932

• 2017 · 990

  Revenue

  $2,119,501

  Expenses

  $1,381,138

  Assets (EOY)

  $3,091,102

• 2016 · 990

  Revenue

  $1,442,108

  Expenses

  $723,252

  Assets (EOY)

  $2,281,769

• 2015 · 990

  Revenue

  $910,825

  Expenses

  $1,051,766

  Assets (EOY)

  $1,737,866

• 2011 · 990

  Revenue

  — not reported

  Expenses

  $415,894

  Assets (EOY)

  $773,064

• 2010 · 990-PF

  Revenue

  — not reported

  Expenses

  $424,051

  Assets (EOY)

  $896,758

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

• UNIVERSITY OF PENNSYLVANIA

  $200,000

  2024 · RESEARCH

• UNIVERSITY OF IOWA

  $163,400

  2024 · RESEARCH

• UNIVERSITY OF CALIFORNIA SAN FRANCISCO

  $150,000

  2024 · RESEARCH

• UNIVERSITY OF COLORADO DENVER

  $150,000

  2025 · RESEARCH FELLOWSHIP

• NATIONAL JEWISH HOSPITAL

  $150,000

  2022 · FELLOWSHIP

• UNIVERSITY OF ILLINOIS CHICAGO

  $150,000

  2023 · RESEARCH

• DUKE UNIVERSITY

  $100,000

  2024 · RESEARCH

• UNIVERSITY OF COLORADO

  $100,000

  2024 · PILOT GRANT

• JOHNS HOPKINS UNIVERSITY

  $100,000

  2025 · CARDIAC RESEARCH GRANT

• UNIVERSITY OF ILLINOIS

  $100,000

  2025 · RESEARCH GRANT

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

• SILICON VALLEY COMMUNITY FOUNDATION

  $424,000

  2024 · Health

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $96,600

  2024 · For grant recipient's exempt purposes

• MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC

  $85,000

  2023 · UNRESTRICTED GENERAL SUPPORT

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $80,300

  2023 · For grant recipient's exempt purposes

• DONOR ADVISED CHARITABLE GIVING

  $65,550

  2023 · PUBLIC, SOCIETAL BENEFIT

• DONOR ADVISED CHARITABLE GIVING

  $57,000

  2024 · PUBLIC, SOCIETAL BENEFIT

• MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC

  $50,000

  2024 · UNRESTRICTED GENERAL SUPPORT

• DONOR ADVISED CHARITABLE GIVING

  $44,500

  2022 · PUBLIC, SOCIETAL BENEFIT

• FORGOOD INC

  $43,827

  2022 · UNRESTRICTED

• PAYPAL CHARITABLE GIVING FUND

  $33,840

  2024 · GENERAL SUPPORT

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files