Form 990 for tax year 2023
Filed by FOUNDATION FOR SARCOIDOSIS RESEARCH.
Totals
- Total revenue
- $2,574,104
- Total expenses
- $2,402,436
- Contributions and grants received
- $2,411,412
- Grants paid
- $323,706
- Program service revenue
- $252,937
- Investment income
- -$22,783
- Other revenue
- -$67,462
- Total assets, end of year
- $5,742,895
- Total liabilities, end of year
- $455,899
- Net assets or fund balances, end of year
- $5,286,996
- Program services expenses (Part IX)
- $1,767,267
- Management and general expenses
- $448,524
- Fundraising expenses
- $186,645
- Program service expenses (Part III)
- $1,767,267
Program services were 73.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1b · Membership dues
$95,000
-
1c · Fundraising events
$124,100
-
1e · Government grants (contributions)
$196,935
-
1f · All other contributions, gifts and grants
$1,995,377
-
1g · Noncash contributions included above
$63,413
-
2a · Program service revenue: PROGRAM SERVICE FEES
total $217,830 · related or exempt $217,830
-
2b · Program service revenue: MEMBERSHIP DUES & ASSESSMENTS
total $20,070 · related or exempt $20,070
-
2c · Program service revenue: PATIENT EVENTS
total $15,037 · related or exempt $15,037
-
3 · Investment income
total $143,978 · excluded $143,978
-
7a · Gross sales of assets other than inventory
securities $2,061,394
-
7b · Less cost or other basis and sales expenses
securities $2,228,155
-
7c · Gain or loss
securities -$166,761
-
7d · Net gain or loss
total -$166,761 · excluded -$166,761
-
8a · Fundraising events: gross income
$6,300
-
8a · Fundraising events: contributions included on line 1c
$124,100
-
8b · Fundraising events: direct expenses
$84,162
-
8c · Net income from fundraising events
total -$77,862 · excluded -$77,862
-
10a · Gross sales of inventory
$4,168
-
10b · Cost of goods sold
$0
-
10c · Net income from sales of inventory
total $4,168 · related or exempt $4,168
-
11a · Other revenue: MISCELLANEOUS INCOME
total $6,232 · related or exempt $6,232
-
11e · Other revenue, total
$6,232
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $282,500 · program services $282,500
-
2 · Grants to domestic individuals
total $16,206 · program services $16,206
-
3 · Grants to foreign organizations and individuals
total $25,000 · program services $25,000
-
5 · Compensation of officers, directors and key employees
total $416,000 · program services $283,655 · management and general $93,972 · fundraising $38,373
-
7 · Other salaries and wages
total $620,601 · program services $423,164 · management and general $140,190 · fundraising $57,247
-
8 · Pension plan contributions
total $964 · program services $657 · management and general $218 · fundraising $89
-
9 · Other employee benefits
total $98,447 · program services $67,127 · management and general $22,239 · fundraising $9,081
-
10 · Payroll taxes
total $81,219 · program services $55,380 · management and general $18,347 · fundraising $7,492
-
11c · Fees: accounting
total $77,933 · program services $2,969 · management and general $74,562 · fundraising $402
-
11f · Fees: investment management
total $23,533 · management and general $23,533
-
11g · Fees: other
total $148,908 · program services $121,990 · management and general $22,013 · fundraising $4,905
-
12 · Advertising and promotion
total $5,430 · program services $5,430
-
13 · Office expenses
total $118,273 · program services $70,775 · management and general $10,380 · fundraising $37,118
-
14 · Information technology
total $125,884 · program services $91,992 · management and general $13,602 · fundraising $20,290
-
16 · Occupancy
total $34,821 · program services $23,743 · management and general $7,866 · fundraising $3,212
-
17 · Travel
total $85,836 · program services $58,528 · management and general $19,390 · fundraising $7,918
-
19 · Conferences, conventions and meetings
total $188,105 · program services $188,105
-
22 · Depreciation, depletion and amortization
total $947 · management and general $947
-
23 · Insurance
total $5,601 · program services $3,818 · management and general $1,265 · fundraising $518
-
24a · Other expenses: RESEARCH PROGRAMS
total $46,228 · program services $46,228
-
26 · Joint costs (an allocation of the lines above)
total $127,519 · program services $43,357 · management and general $0 · fundraising $84,162
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $618,781 · end of year $959,707
-
3 · Pledges and grants receivable
beginning of year $382,943 · end of year $322,714
-
4 · Accounts receivable
end of year $7,284
-
9 · Prepaid expenses and deferred charges
beginning of year $70,934 · end of year $49,489
-
10a · Land, buildings and equipment: cost or other basis
$45,703
-
10b · Land, buildings and equipment: accumulated depreciation
$45,649
-
10c · Land, buildings and equipment, net
beginning of year $1,001 · end of year $54
-
11 · Investments: publicly traded securities
beginning of year $3,856,195 · end of year $4,403,647
-
17 · Accounts payable and accrued expenses
beginning of year $209,856 · end of year $142,399
-
18 · Grants payable
beginning of year $175,000 · end of year $313,500
-
27 · Net assets without donor restrictions
beginning of year $3,345,460 · end of year $4,205,506
-
28 · Net assets with donor restrictions
beginning of year $1,199,538 · end of year $1,081,490
Mission and programs · 2023
Mission
THE FOUNDATION FOR SARCOIDOSIS RESEARCH (FSR) IS THE LEADING INTERNATIONAL ORGANIZATION DEDICATED TO FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH RESEARCH, EDUCATION, AND SUPPORT. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $6.5 MILLION IN SARCOIDOSIS SPECIFIC RESEARCH EFFORTS.
-
PATIENT AND CLINICIAN SUPPORT AND PROGRAMMING:FSR PROVIDES PATIENTS WITH DIRECT SUPPORT THROUGH OUR PEER-LED TRAINED VOLUNTEER COMMUNITY GROUPS, SUPPORT GROUPS, OUR ONE-ONE-ONE PATIENT NAVIGATOR SUPPORT PROGRAM, AND COMMUNITY OUTREACH ACTIVITIES. FSR PROVIDES DIRECT PATIENT EDUCATION THROUGH FSR'S WEBINAR AND TOWN HALL EDUCATIONAL SERIES, FSR SARC FIGHTER PODCAST, AND MULTI-DAY VIRTUAL EDUCATIONAL SUMMIT CONSISTING OF 23 EDUCATIONAL SESSIONS FOR OVER 300 PATIENTS WORLD-WIDE. FSR HAS ALSO PROVIDED A SPECIFIC EMPHASIS ON IMPROVING DIVERSITY EQUITY AND INCLUSION IN SARCOIDOSIS DIAGNOSIS, CARE, AND INCREASING DIVERSITY IN CLINICAL TRIALS THROUGH OUR IGNORE NO MORE EFFORTS. FSR ALSO PROVIDES CLINICIAN EDUCATION AND SUPPORT THROUGH THE CLINICIAN EDUCATION AND ENGAGEMENT SERIES, PEER CASE REVIEWS, AND THE FSR JOURNAL CLUB. THESE PROGRAMS PROVIDE CLINICIANS WITH CONTINUING MEDICAL EDUCATION CREDITS AND FOSTER BEST PRACTICE SHARING AND OUTCOME IMPROVEMENT STRATEGIES.
Expenses $1,256,486 · Grants $16,206
-
FSR PROVIDES RESEARCH FUNDING THROUGH OUR FELLOWSHIP, CARDIAC GRANT, AND PILOT GRANT FUNDING PROGRAM. THROUGH THE FSR CLINICAL STUDIES NETWORK, FSR FUNDS AND FACILITATES A 12 SITE INTERNATIONAL STUDY SEEKING TO UNDERSTAND THE DIAGNOSIS OF CARDIAC SARCOIDOSIS. FSR HAS ALSO SIGNIFICANTLY INCREASED PARTICIPATION IN THE FSR PATIENT REPORTED OUTCOMES REGISTRY IN ORDER TO INCREASE UNDERSTANDING OF PATIENT'S LIVED EXPERIENCE WITH SARCOIDOSIS.
Expenses $409,890 · Grants $307,500
-
FSR WORKS DIRECTLY WITH INDUSTRY PARTNERS LEVERAGING THEIR EXPERTISE, CONTACTS, THE FSR PATIENT REPORTED OUTCOMES REGISTRY, AND ITS DATABASE IN SUPPORT OF ACADEMIC AND INDUSTRY SPONSORED RESEARCH EFFORTS. THROUGH THIS PROGRAM FSR HELPS TO REVIEW PROTOCOLS, CONNECT INDUSTRY WITH POSSIBLE INVESTIGATORS AND RESEARCH SITES, AND SUPPORT THE RECRUITMENT AND ENROLLMENT OF SARCOIDOSIS-RELATED INDUSTRY SPONSORED TRIALS.
Expenses $100,891 · Revenue $263,337
As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Louise M PerkinsLOUISE M PERKINS
PRESIDENT
- Total calculated
- $0
- Hours/week
- 10
-
Craig LipsetCRAIG LIPSET
VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 5
-
Mary CobbMARY COBB
SECRETARY
- Total calculated
- $0
- Hours/week
- 5
-
Michael KaplanMICHAEL KAPLAN
TREASURER
- Total calculated
- $0
- Hours/week
- 5
-
Yvette C CozierYVETTE C COZIER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Emerson Randy Hall JrEMERSON RANDY HALL JR
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Calvin HarrisCALVIN HARRIS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Heidi W JunkHEIDI W JUNK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Michael KlingherMICHAEL KLINGHER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Jeffrey RaichJEFFREY RAICH
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Joel RosenJOEL ROSEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Leslie SerchuckLESLIE SERCHUCK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Rev Michael A Walrond JrREV MICHAEL A WALROND JR
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Mary McGowanMARY MCGOWAN
CEO
- Total calculated
- $269,652
- From this org
- $255,000
- From related orgs
- $0
- Other
- $14,652
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $234,000
- Bonus
- $21,000
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $14,652
- Filer's total
- $269,652
-
Tricha ShivasTRICHA SHIVAS
CHIEF STRATEGY OFFICER
- Total calculated
- $173,444
- From this org
- $161,000
- From related orgs
- $0
- Other
- $12,444
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $156,000
- Bonus
- $5,000
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $12,444
- Filer's total
- $173,444
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Compensation committee
- 3 · Form 990 of other organizations
- 3 · Written employment contract
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
UNIVERSITY OF ILLINOIS CHICAGO
$150,000
RESEARCH
-
$50,000
RESEARCH
-
$50,000
RESEARCH
-
AMERICAN THORACIC SOCIETY (ATS)
$32,500
RESEARCH
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 31 October 2024
- IRS schema version
- 2023v5.1
- Source object
- 202403109349302150
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