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← FOUNDATION FOR SARCOIDOSIS RESEARCH

Form 990 for tax year 2025

Filed by FOUNDATION FOR SARCOIDOSIS RESEARCH.

Totals

Total revenue
$4,662,058
Total expenses
$3,810,958
Contributions and grants received
$3,985,033
Grants paid
$875,600
Program service revenue
$97,267
Investment income
$717,533
Other revenue
-$137,775
Total assets, end of year
$18,793,381
Total liabilities, end of year
$1,107,498
Net assets or fund balances, end of year
$17,685,883
Program services expenses (Part IX)
$2,865,533
Management and general expenses
$681,883
Fundraising expenses
$263,542
Program service expenses (Part III)
$2,865,533

Program services were 75.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1b · Membership dues

    $172,341

  • 1c · Fundraising events

    $148,000

  • 1f · All other contributions, gifts and grants

    $3,664,692

  • 1g · Noncash contributions included above

    $3,489

  • 2a · Program service revenue: PROGRAM SERVICE FEES

    total $85,903 · related or exempt $85,903

  • 2b · Program service revenue: PATIENT EVENTS

    total $11,364 · related or exempt $11,364

  • 3 · Investment income

    total $518,767 · excluded $518,767

  • 7a · Gross sales of assets other than inventory

    securities $5,046,765

  • 7b · Less cost or other basis and sales expenses

    securities $4,847,999

  • 7c · Gain or loss

    securities $198,766

  • 7d · Net gain or loss

    total $198,766 · excluded $198,766

  • 8a · Fundraising events: gross income

    $5,000

  • 8a · Fundraising events: contributions included on line 1c

    $148,000

  • 8b · Fundraising events: direct expenses

    $154,900

  • 8c · Net income from fundraising events

    total -$149,900 · excluded -$149,900

  • 11a · Other revenue: MISCELLANEOUS INCOME

    total $12,125 · excluded $12,125

  • 11e · Other revenue, total

    $12,125

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $476,000 · program services $476,000

  • 3 · Grants to foreign organizations and individuals

    total $399,600 · program services $399,600

  • 5 · Compensation of officers, directors and key employees

    total $597,807 · program services $425,788 · management and general $103,624 · fundraising $68,395

  • 7 · Other salaries and wages

    total $956,777 · program services $681,464 · management and general $165,848 · fundraising $109,465

  • 8 · Pension plan contributions

    total $25,096 · program services $17,875 · management and general $4,350 · fundraising $2,871

  • 9 · Other employee benefits

    total $74,212 · program services $52,857 · management and general $12,864 · fundraising $8,491

  • 10 · Payroll taxes

    total $118,489 · program services $84,394 · management and general $20,539 · fundraising $13,556

  • 11b · Fees: legal

    total $5,248 · program services $56 · management and general $5,192

  • 11c · Fees: accounting

    total $102,954 · program services $1,097 · management and general $101,857

  • 11f · Fees: investment management

    total $46,942 · management and general $46,942

  • 11g · Fees: other

    total $299,818 · program services $237,454 · management and general $56,953 · fundraising $5,411

  • 12 · Advertising and promotion

    total $16,868 · program services $16,059 · fundraising $809

  • 13 · Office expenses

    total $107,810 · program services $57,631 · management and general $32,562 · fundraising $17,617

  • 14 · Information technology

    total $146,635 · program services $66,656 · management and general $60,170 · fundraising $19,809

  • 16 · Occupancy

    total $30,696 · management and general $30,696

  • 17 · Travel

    total $85,103 · program services $69,083 · management and general $14,316 · fundraising $1,704

  • 19 · Conferences, conventions and meetings

    total $65,715 · program services $63,363 · management and general $1,085 · fundraising $1,267

  • 23 · Insurance

    total $7,128 · program services $1,188 · management and general $5,862 · fundraising $78

  • 24a · Other expenses: RESEARCH PROGRAMS

    total $139,691 · program services $127,284 · management and general $6,929 · fundraising $5,478

  • 24b · Other expenses: HONORARIUMS

    total $61,506 · program services $61,506

  • 24c · Other expenses: DUES AND SUBSCRIPTIONS

    total $30,136 · program services $14,451 · management and general $7,094 · fundraising $8,591

  • 24d · Other expenses: CONTRACTS

    total $11,727 · program services $11,727

  • 24e · All other expenses

    total $5,000 · management and general $5,000

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $759,559 · end of year $4,722,970

  • 3 · Pledges and grants receivable

    beginning of year $187,301 · end of year $347,834

  • 4 · Accounts receivable

    beginning of year $98,186 · end of year $24,419

  • 9 · Prepaid expenses and deferred charges

    beginning of year $66,514 · end of year $39,450

  • 10a · Land, buildings and equipment: cost or other basis

    $0

  • 10b · Land, buildings and equipment: accumulated depreciation

    $0

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $16,071,598 · end of year $13,658,708

  • 17 · Accounts payable and accrued expenses

    beginning of year $321,294 · end of year $29,187

  • 18 · Grants payable

    beginning of year $845,304 · end of year $1,077,341

  • 19 · Deferred revenue

    beginning of year $5,833 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $970

  • 27 · Net assets without donor restrictions

    beginning of year $14,502,618 · end of year $16,582,058

  • 28 · Net assets with donor restrictions

    beginning of year $1,508,109 · end of year $1,103,825

Mission and programs · 2025

Mission

THE FOUNDATION FOR SARCOIDOSIS RESEARCH (FSR) IS THE LEADING INTERNATIONAL ORGANIZATION DEDICATED TO FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH RESEARCH, EDUCATION, AND SUPPORT. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $7.5 MILLION IN SARCOIDOSIS SPECIFIC RESEARCH EFFORTS.

  • FSR RESEARCH FUNDING - THE FOUNDATION FOR SARCOIDOSIS RESEARCH PROVIDED $875,600 IN SARCOIDOSIS RESEARCH FUNDING IN 2025. FSR PROVIDED THREE FELLOWSHIPS IN THE AMOUNT OF $150,000 EACH, TWO CARDIAC GRANTS IN THE AMOUNT OF $100,000 EACH, TWO PILOT GRANTS IN THE AMOUNTS OF $100,000 AND $99,600, AND ONE FSR/AMERICAN HEART ASSOCIATION PARTNER GRANT IN THE AMOUNT OF $26,000. FSR ALSO HOSTS A PATIENT REGISTRY WITH NEARLY 7,500 PARTICIPANTS FROM 68 COUNTRIES AND PROVIDES ONGOING SUPPORT TO ACADEMIA AND INDUSTRY IN ENSURING ALL CLINICAL TRIALS AND RESEARCH ARE PATIENT CENTERED.

    Expenses $1,553,084 · Grants $844,600 · Revenue $85,903

  • FSR GLOBAL SARCOIDOSIS CLINIC ALLIANCE (FSR-GSCA) CLINICAL SUPPORT - COMPRISED OF 46 MEMBER INSTITUTIONS, THE FSR-GSCA IS A POWERFUL NETWORK OF INSTITUTIONS THAT SUPPORT PATIENTS, CAREGIVERS, AND CLINICIANS, THROUGH EDUCATIONAL AND SUPPORT PROGRAMMING. THE FSR-GSCA REACHES OVER 4000 CLINICIANS WITH CLINICAL EDUCATION PROGRAMMING FROM OVER 40 COUNTRIES. THROUGH THIS PROGRAM, FSR COORDINATES CONTINUING EDUCATION EDUCATIONAL PROGRAMS FOR CLINICIANS INCLUDING THE FSR CLINICAL EDUCATION AND ENGAGEMENT SERIES, THE FSR JOURNAL CLUB, AND THE FSR CASE CONFERENCE PROGRAM, WHICH PROVIDE INSIGHTS THAT LEAD TO PRACTICE CHANGING BEHAVIOR BY ATTENDEES AND PARTICIPANTS. FSR IS NOW SUPPORTING REGIONAL CLINICAL EDUCATION MEETINGS THROUGH PROGRAM AND MARKETING SUPPORT TO REACH BEYOND EXPERTS TO THE POOL OF LOCAL PHYSICIANS AND ADVANCED PRACTITIONERS.

    Expenses $1,096,474 · Grants $31,000 · Revenue $11,364

  • FSR PATIENT SUPPORT AND EDUCATION - FSR PROVIDES EXTENSIVE SUPPORT TO PATIENT AND CAREGIVERS IMPACTED BY SARCOIDOSIS THROUGH INFORMATION & REFERRAL SERVICES, ASSISTANCE TO FINANCIAL RESOURCES, 1:1 PEER TO PEER PATIENT SUPPORT PROGRAM (PATIENT NAVIGATORS), NATIONAL VIRTUAL SUPPORT GROUP, AND LOCAL SUPPORT GROUPS AFFILIATED WITH THE FSR GLOBAL SARCOIDOSIS CLINIC ALLIANCE. FSR HOSTS WEBINARS, TOWN HALLS, PODCASTS, VIRTUAL SUMMITS, AND IN-PERSON EDUCATIONAL EVENTS TO PROVIDE PATIENTS AND FAMILY MEMBERS WITH EDUCATION FROM WORLD-RENOWNED SARCOIDOSIS EXPERTS. FSR WORKS WITH THE NIH, FDA, AND DOD TO ENSURE THE SARCOIDOSIS IS CONSIDERED IN ALL ASPECTS FOR FEDERAL RESEARCH AND DRUG DEVELOPMENT. FSR IS COMMITTED TO ENSURING CLINICAL TRIALS REPRESENT ALL IN OUR COMMUNITY AND HAS BEEN LEADING EFFORTS TO REDUCE BARRIERS TO CLINICAL TRIAL ACCESS, INCLUDING COVERAGE UNDER FMLA AND PAID TIME OFF.

    Expenses $215,975

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Mary Cobb

    PRESIDENT

    Total calculated
    $0
    Hours/week
    10

  • Calvin Harris

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Joel Rosen

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

  • John Carlin

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Yvette C Cozier

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Molly Flick

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Emerson Randy Hall Jr

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michael Klingher

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Joan Levy

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Craig Lipset

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • John Mockovciak

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Louise M Perkins

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jeffrey Raich

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Leslie Serchuck

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Mary McGowan

    PRESIDENT & CEO

    Total calculated
    $325,094
    From this org
    $297,500
    From related orgs
    $0
    Other
    $27,594
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $282,500
    Bonus
    $15,000
    Other
    $0
    Deferred
    $13,125
    Nontaxable benefits
    $14,469
    Filer's total
    $325,094

  • Tricha Shivas

    CHIEF OF STAFF AND STRATEGY

    Total calculated
    $272,713
    From this org
    $248,750
    From related orgs
    $0
    Other
    $23,963
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $218,750
    Bonus
    $30,000
    Other
    $0
    Deferred
    $10,350
    Nontaxable benefits
    $13,613
    Filer's total
    $272,713

  • David Fischer

    DIRECTOR OF OPERATIONS

    Total calculated
    $107,801
    From this org
    $103,220
    From related orgs
    $0
    Other
    $4,581
    Hours/week
    40

  • Elise Hoover

    VP OF RESEARCH

    Total calculated
    $162,698
    From this org
    $150,067
    From related orgs
    $0
    Other
    $12,631
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $147,067
    Bonus
    $3,000
    Other
    $0
    Deferred
    $6,430
    Nontaxable benefits
    $6,201
    Filer's total
    $162,698

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
31 August 2026
IRS schema version
2025v4.2
Source object
202642479349300444

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