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← TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION

Form 990 for tax year 2023

Filed by TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION.

Totals

Total revenue
$503,647
Total expenses
$497,687
Contributions and grants received
$433,322
Grants paid
$152,845
Program service revenue
$0
Investment income
$0
Other revenue
$70,325
Total assets, end of year
$459,776
Total liabilities, end of year
$11,812
Net assets or fund balances, end of year
$447,964
Program services expenses (Part IX)
$429,060
Management and general expenses
$20,358
Fundraising expenses
$48,269
Program service expenses (Part III)
$429,060

Program services were 86.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $102,853

  • 1f · All other contributions, gifts and grants

    $330,469

  • 8a · Fundraising events: gross income

    $104,895

  • 8a · Fundraising events: contributions included on line 1c

    $102,853

  • 8b · Fundraising events: direct expenses

    $36,209

  • 8c · Net income from fundraising events

    total $68,686 · excluded $68,686

  • 11a · Other revenue: Other Income

    total $1,639 · related or exempt $1,639

  • 11e · Other revenue, total

    $1,639

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $152,845 · program services $152,845

  • 7 · Other salaries and wages

    total $253,102 · program services $208,836 · management and general $3,976 · fundraising $40,290

  • 8 · Pension plan contributions

    total $4,842 · program services $4,842

  • 9 · Other employee benefits

    total $155 · program services $112 · management and general $43

  • 10 · Payroll taxes

    total $19,065 · program services $15,469 · management and general $409 · fundraising $3,187

  • 11c · Fees: accounting

    total $4,992 · management and general $4,992

  • 12 · Advertising and promotion

    total $12,074 · program services $11,324 · fundraising $750

  • 13 · Office expenses

    total $4,859 · program services $3,305 · management and general $1,554

  • 14 · Information technology

    total $9,444 · program services $4,390 · management and general $3,941 · fundraising $1,113

  • 16 · Occupancy

    total $4,312 · management and general $4,312

  • 17 · Travel

    total $20,212 · program services $20,212

  • 19 · Conferences, conventions and meetings

    total $6,715 · program services $6,715

  • 23 · Insurance

    total $761 · management and general $761

  • 24a · Other expenses: Other

    total $4,309 · program services $1,010 · management and general $370 · fundraising $2,929

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $424,997 · end of year $390,098

  • 3 · Pledges and grants receivable

    beginning of year $20,347 · end of year $67,815

  • 15 · Other assets

    beginning of year $1,863 · end of year $1,863

  • 17 · Accounts payable and accrued expenses

    beginning of year $5,203 · end of year $11,812

  • 27 · Net assets without donor restrictions

    beginning of year $442,004 · end of year $447,964

Mission and programs · 2023

Mission

Tess Research Foundations goal is to find better treatment options for SLC13A5 deficiency, (Continued on Sch O)

  • Funding Scientific Research - We continued our in-person, digital and remote natural history studies for SLC13A5 with Ciitizen Corporation, Brown University, UT Southwestern, and Stanford University. These studies are key for our clinical trial readiness. We also funded basic and translational research.

    Expenses $302,455 · Grants $152,331

  • Education, Family Support and Awareness - We are the only organization dedicated to supporting families with SLC13A5 Epilepsy and raising awareness about the disease. Our ongoing program includes sharing updates about the latest research findings and connecting and empowering families so they can share their experiences and support one another. We have an annual awareness day (May 13), host monthly virtual support calls, maintain a website, and send a monthly electronic newsletter.

    Expenses $117,833

  • Conference - We continue to create a patient-centered network of doctors, researchers, clinicians, and families. We attend neurology, epilepsy, and drug development conferences and host research roundtables to build partnerships and share current research.

    Expenses $8,772 · Grants $514

As filed on the 2023 return.

Listed in Part VII

  • Adam Alberti

    Director

    Total calculated
    $0
    Hours/week
    2

  • Lee Scheuer

    Director

    Total calculated
    $0
    Hours/week
    3

  • Robert Wassman

    Director

    Total calculated
    $0
    Hours/week
    3

  • Courtney Alberti

    Director

    Total calculated
    $0
    Hours/week
    2

  • Kimberly Nye

    Chair & Executive Director

    Total calculated
    $0
    Hours/week
    40

  • Michael Black

    Vice Chair as of 51

    Total calculated
    $0
    Hours/week
    5

  • Paula Gani

    Secretary

    Total calculated
    $0
    Hours/week
    5

  • Kevin McDonnell

    Treasurer

    Total calculated
    $0
    Hours/week
    3

  • Amber Black

    Vice Chair until 430

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
19 August 2024
IRS schema version
2023v5.1
Source object
202432339349300443

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