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TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION

EIN 47-3108868 MENLO PARK, CA

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Revenue 2024
$541,973
Expenses 2024
$584,239

Program services were 88.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H12
Classification
1000
Street
430 CLAREMONT WAY

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

Tess Research Foundations goal is to find better treatment options for SLC13A5 deficiency, (Continued on Sch O)

  • Funding Scientific Research - We continued our in-person, digital and remote natural history studies for SLC13A5 with Brown University, UT Southwestern, and Stanford University. These studies are key for our clinical trial readiness. We also funded basic and translational research.

    Expenses $281,706

  • Education, Family Support and Awareness - We are the only organization dedicated to supporting families with SLC13A5 Epilepsy and raising awareness about the disease. Our ongoing program includes sharing updates about the latest research findings and connecting and empowering families so they can share their experiences and support one another. We have an annual awareness day (May 13), host monthly virtual support calls, maintain a website, and send a monthly electronic newsletter.

    Expenses $132,924

  • Conference - We continue to create a patient-centered network of doctors, researchers, clinicians, and families. TESS hosted the largest-ever SLC13A5 family and professional conference in Providence, Rhode Island. We attend neurology, epilepsy, and drug development conferences.

    Expenses $100,828

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Amber Black

    Secretary

    Total calculated
    $67,838
    From this org
    $67,838
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Paula Gani

    Director

    Total calculated
    $0
    Hours/week
    3

  • Courtney Alberti

    Director

    Total calculated
    $0
    Hours/week
    2

  • Adam Alberti

    Director

    Total calculated
    $0
    Hours/week
    2

  • Lee Scheuer

    Director

    Total calculated
    $0
    Hours/week
    3

  • Robert Wassman

    Director

    Total calculated
    $0
    Hours/week
    3

  • Don Neault

    Director

    Total calculated
    $0
    Hours/week
    3

  • Janet Wojcicki

    Director

    Total calculated
    $0
    Hours/week
    3

  • Megan Gilbert

    Director

    Total calculated
    $0
    Hours/week
    3

  • Rich Windisch

    Director

    Total calculated
    $0
    Hours/week
    3

  • Kimberly Nye

    Chair & Executive Director

    Total calculated
    $0
    Hours/week
    40

  • Kevin McDonnell

    Treasurer

    Total calculated
    $0
    Hours/week
    3

  • Michael Black

    Vice Chair

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $541,973
    Expenses
    $584,239
    Contributions
    $581,056
    Grants paid
    $174,093
  • 2023
    Revenue
    $503,647
    Expenses
    $497,687
    Contributions
    $433,322
    Grants paid
    $152,845
  • 2022
    Revenue
    $610,734
    Expenses
    $868,351
    Contributions
    $610,734
    Grants paid
    $527,168

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $381,268
    Expenses
    $466,822
    Assets (EOY)
    $717,894

  • 2020 · 990

    Revenue
    $675,901
    Expenses
    $113,779
    Assets (EOY)
    $798,282

  • 2019 · 990

    Revenue
    $392,669
    Expenses
    $368,510
    Assets (EOY)
    $223,542

  • 2018 · 990

    Revenue
    $286,889
    Expenses
    $172,923
    Assets (EOY)
    $198,894

  • 2017 · 990

    Revenue
    $185,768
    Expenses
    $248,656
    Assets (EOY)
    $84,928

  • 2016 · 990

    Revenue
    $211,284
    Expenses
    $84,989
    Assets (EOY)
    $147,816

  • 2015 · 990-EZ

    Revenue
    $41,725
    Expenses
    $20,204
    Assets (EOY)
    $21,521

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 11 November 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.