- Revenue 2025
- $4,989,172
- Expenses 2025
- $5,529,185
Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H125
- Classification
- 1000
- Street
- 420 N WABASH AVE STE 650
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Beth Dean
CEO
- Total calculated
- $344,007
- From this org
- $344,007
- From related orgs
- $0
- Other
- $0
- Hours/week
- 37.5
Schedule J breakdown matched by us
- Base
- $312,977
- Bonus
- $31,030
- Other
- not reported
- Deferred
- $10,519
- Nontaxable benefits
- $25,323
- Filer's total
- $379,849
-
Laura Lubbers
CSO
- Total calculated
- $343,883
- From this org
- $343,883
- From related orgs
- $0
- Other
- $0
- Hours/week
- 37.5
Schedule J breakdown matched by us
- Base
- $313,267
- Bonus
- $30,616
- Other
- not reported
- Deferred
- $10,379
- Nontaxable benefits
- $8,721
- Filer's total
- $362,983
-
Alysha Biehl
Director of Development
- Total calculated
- $170,346
- From this org
- $170,346
- From related orgs
- $0
- Other
- $0
- Hours/week
- 37.5
Schedule J breakdown matched by us
- Base
- $170,346
- Bonus
- not reported
- Other
- not reported
- Deferred
- $5,184
- Nontaxable benefits
- $8,755
- Filer's total
- $184,285
-
Dana Vielmetti
Director of Marketing and Communications
- Total calculated
- $164,251
- From this org
- $164,251
- From related orgs
- $0
- Other
- $0
- Hours/week
- 37.5
Schedule J breakdown matched by us
- Base
- $164,251
- Bonus
- not reported
- Other
- not reported
- Deferred
- $5,145
- Nontaxable benefits
- $25,394
- Filer's total
- $194,790
-
Priya Balasurbramanian
Director of Research
- Total calculated
- $138,007
- From this org
- $138,007
- From related orgs
- $0
- Other
- $0
- Hours/week
- 37.5
-
Elaine O'Loughlin
Associate Director of Research Initiatives
- Total calculated
- $134,338
- From this org
- $134,338
- From related orgs
- $0
- Other
- $0
- Hours/week
- 37.5
-
John Anderluh
CFO
- Total calculated
- $106,400
- From this org
- $106,400
- From related orgs
- $0
- Other
- $0
- Hours/week
- 30
-
Angela Mota
Director of Major Gifts
- Total calculated
- $100,904
- From this org
- $100,904
- From related orgs
- $0
- Other
- $0
- Hours/week
- 37.5
-
Lisa Cotton
Immediate Past Chair
- Total calculated
- $0
- Hours/week
- 4
-
Shalee Cunneen
Secretary
- Total calculated
- $0
- Hours/week
- 4
-
Steve Austin
Director
- Total calculated
- $0
- Hours/week
- 2
-
Irina Colon
Director
- Total calculated
- $0
- Hours/week
- 1
-
Kim Borden
Director
- Total calculated
- $0
- Hours/week
- 2
-
Roger Heldman
Treasurer
- Total calculated
- $0
- Hours/week
- 4
-
Carrie Garman
Director
- Total calculated
- $0
- Hours/week
- 1
-
Maureen Flood Rabus
Director
- Total calculated
- $0
- Hours/week
- 1
-
David Reifman
Director
- Total calculated
- $0
- Hours/week
- 1
-
Walter Kelly
Director
- Total calculated
- $0
- Hours/week
- 1
-
Matt Schneider
Director
- Total calculated
- $0
- Hours/week
- 4
-
Kelly Cervantes
Director
- Total calculated
- $0
- Hours/week
- 4
-
Michael Alexrod
Director
- Total calculated
- $0
- Hours/week
- 1
-
Greg Mayes
Director
- Total calculated
- $0
- Hours/week
- 1
-
Jonathan Tuteur
Director
- Total calculated
- $0
- Hours/week
- 4
-
Justin Gover
Chair
- Total calculated
- $0
- Hours/week
- 6
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $4,989,172
- Expenses
- $5,529,185
- Contributions
- $4,941,461
- Grants paid
- $2,274,098
-
2024
- Revenue
- $6,050,647
- Expenses
- $6,196,609
- Contributions
- $6,067,462
- Grants paid
- $2,900,590
-
2023
- Revenue
- $6,183,163
- Expenses
- $5,993,350
- Contributions
- $6,403,752
- Grants paid
- $2,759,409
-
2022
- Revenue
- $6,231,376
- Expenses
- $5,793,113
- Contributions
- $5,937,146
- Grants paid
- $2,804,485
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
$258,324
2025 Research Grant
-
$250,000
2023 Research Grant
-
$250,000
2022 Catalyst
-
University of Wisconsin Madison
$250,000
2024 Research Grant
-
$250,000
2024 Research Grant
-
2025 Research Grant
-
$250,000
2024 Research Grant
-
$250,000
2024 Research Grant
-
$250,000
2022 CURE Epilepsy
-
$250,000
2023 Research Grant
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
$533,600
2022 HEALTH
-
$290,000
2023 HEALTH
-
2023 For grant recipient's exempt purposes
-
$228,250
2024 HUMAN SERVICES
-
2022 FOR RECIPIENT'S EXEMPT PURPOSE
-
DONOR ADVISED CHARITABLE GIVING
$194,150
2023 HEALTH
-
2022 For grant recipient's exempt purposes
-
2024 For grant recipient's exempt purposes
-
$160,000
2024 RESEARCH & PROGRAM SERVICES
-
DONOR ADVISED CHARITABLE GIVING
$121,385
2024 HEALTH
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.