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CITIZENS UNITED FOR RESEARCH IN EPILEPSY

EIN 36-4253176 CHICAGO, IL

Revenue 2025
$4,989,172
Expenses 2025
$5,529,185

Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H125
Classification
1000
Street
420 N WABASH AVE STE 650

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Beth Dean

    CEO

    Total calculated
    $344,007
    From this org
    $344,007
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $312,977
    Bonus
    $31,030
    Other
    not reported
    Deferred
    $10,519
    Nontaxable benefits
    $25,323
    Filer's total
    $379,849
  • Laura Lubbers

    CSO

    Total calculated
    $343,883
    From this org
    $343,883
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $313,267
    Bonus
    $30,616
    Other
    not reported
    Deferred
    $10,379
    Nontaxable benefits
    $8,721
    Filer's total
    $362,983
  • Alysha Biehl

    Director of Development

    Total calculated
    $170,346
    From this org
    $170,346
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $170,346
    Bonus
    not reported
    Other
    not reported
    Deferred
    $5,184
    Nontaxable benefits
    $8,755
    Filer's total
    $184,285
  • Dana Vielmetti

    Director of Marketing and Communications

    Total calculated
    $164,251
    From this org
    $164,251
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $164,251
    Bonus
    not reported
    Other
    not reported
    Deferred
    $5,145
    Nontaxable benefits
    $25,394
    Filer's total
    $194,790
  • Priya Balasurbramanian

    Director of Research

    Total calculated
    $138,007
    From this org
    $138,007
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5
  • Elaine O'Loughlin

    Associate Director of Research Initiatives

    Total calculated
    $134,338
    From this org
    $134,338
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5
  • John Anderluh

    CFO

    Total calculated
    $106,400
    From this org
    $106,400
    From related orgs
    $0
    Other
    $0
    Hours/week
    30
  • Angela Mota

    Director of Major Gifts

    Total calculated
    $100,904
    From this org
    $100,904
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5
  • Lisa Cotton

    Immediate Past Chair

    Total calculated
    $0
    Hours/week
    4
  • Shalee Cunneen

    Secretary

    Total calculated
    $0
    Hours/week
    4
  • Steve Austin

    Director

    Total calculated
    $0
    Hours/week
    2
  • Irina Colon

    Director

    Total calculated
    $0
    Hours/week
    1
  • Kim Borden

    Director

    Total calculated
    $0
    Hours/week
    2
  • Roger Heldman

    Treasurer

    Total calculated
    $0
    Hours/week
    4
  • Carrie Garman

    Director

    Total calculated
    $0
    Hours/week
    1
  • Maureen Flood Rabus

    Director

    Total calculated
    $0
    Hours/week
    1
  • David Reifman

    Director

    Total calculated
    $0
    Hours/week
    1
  • Walter Kelly

    Director

    Total calculated
    $0
    Hours/week
    1
  • Matt Schneider

    Director

    Total calculated
    $0
    Hours/week
    4
  • Kelly Cervantes

    Director

    Total calculated
    $0
    Hours/week
    4
  • Michael Alexrod

    Director

    Total calculated
    $0
    Hours/week
    1
  • Greg Mayes

    Director

    Total calculated
    $0
    Hours/week
    1
  • Jonathan Tuteur

    Director

    Total calculated
    $0
    Hours/week
    4
  • Justin Gover

    Chair

    Total calculated
    $0
    Hours/week
    6

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $4,989,172
    Expenses
    $5,529,185
    Contributions
    $4,941,461
    Grants paid
    $2,274,098
  • 2024
    Revenue
    $6,050,647
    Expenses
    $6,196,609
    Contributions
    $6,067,462
    Grants paid
    $2,900,590
  • 2023
    Revenue
    $6,183,163
    Expenses
    $5,993,350
    Contributions
    $6,403,752
    Grants paid
    $2,759,409
  • 2022
    Revenue
    $6,231,376
    Expenses
    $5,793,113
    Contributions
    $5,937,146
    Grants paid
    $2,804,485

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.