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Nonprofiteer
← CITIZENS UNITED FOR RESEARCH IN EPILEPSY

Form 990 for tax year 2025

Filed by CITIZENS UNITED FOR RESEARCH IN EPILEPSY.

Totals

Total revenue
$4,989,172
Total expenses
$5,529,185
Contributions and grants received
$4,941,461
Grants paid
$2,274,098
Program service revenue
$0
Investment income
$567,508
Other revenue
-$519,797
Total assets, end of year
$10,409,120
Total liabilities, end of year
$3,714,249
Net assets or fund balances, end of year
$6,694,871
Program services expenses (Part IX)
$4,496,228
Management and general expenses
$325,242
Fundraising expenses
$707,715
Program service expenses (Part III)
$4,496,228

Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $2,372,560

  • 1e · Government grants (contributions)

    $245,669

  • 1f · All other contributions, gifts and grants

    $2,323,232

  • 3 · Investment income

    total $239,084 · excluded $239,084

  • 7a · Gross sales of assets other than inventory

    securities $1,466,520

  • 7b · Less cost or other basis and sales expenses

    securities $1,138,096

  • 7c · Gain or loss

    securities $328,424

  • 7d · Net gain or loss

    total $328,424 · excluded $328,424

  • 8a · Fundraising events: gross income

    $72,450

  • 8a · Fundraising events: contributions included on line 1c

    $2,372,560

  • 8b · Fundraising events: direct expenses

    $592,247

  • 8c · Net income from fundraising events

    total -$519,797

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,403,086 · program services $1,403,086

  • 2 · Grants to domestic individuals

    total $0

  • 3 · Grants to foreign organizations and individuals

    total $871,012 · program services $871,012

  • 4 · Benefits paid to or for members

    total $0

  • 5 · Compensation of officers, directors and key employees

    total $379,849 · program services $235,506 · management and general $41,783 · fundraising $102,560

  • 6 · Compensation of disqualified persons

    total $0

  • 7 · Other salaries and wages

    total $1,541,279 · program services $1,054,982 · management and general $177,699 · fundraising $308,598

  • 8 · Pension plan contributions

    total $0

  • 9 · Other employee benefits

    total $274,814 · program services $167,487 · management and general $33,351 · fundraising $73,976

  • 10 · Payroll taxes

    total $136,309 · program services $83,834 · management and general $14,304 · fundraising $38,171

  • 11a · Fees: management

    total $0

  • 11b · Fees: legal

    total $0

  • 11c · Fees: accounting

    total $17,200 · program services $11,173 · management and general $1,654 · fundraising $4,373

  • 11d · Fees: lobbying

    total $0

  • 11f · Fees: investment management

    total $23,059 · management and general $23,059

  • 11g · Fees: other

    total $9,546 · program services $6,201 · management and general $918 · fundraising $2,427

  • 12 · Advertising and promotion

    total $0

  • 13 · Office expenses

    total $26,954 · program services $12,390 · management and general $1,834 · fundraising $12,730

  • 14 · Information technology

    total $170,814 · program services $142,678 · management and general $8,950 · fundraising $19,186

  • 15 · Royalties

    total $0

  • 16 · Occupancy

    total $113,737 · program services $73,882 · management and general $10,939 · fundraising $28,916

  • 17 · Travel

    total $50,898 · program services $14,740 · management and general $1,553 · fundraising $34,605

  • 18 · Travel or entertainment for public officials

    total $0

  • 19 · Conferences, conventions and meetings

    total $79,242 · program services $74,239 · fundraising $5,003

  • 20 · Interest

    total $0

  • 21 · Payments to affiliates

    total $0

  • 22 · Depreciation, depletion and amortization

    total $19,843 · program services $12,890 · management and general $1,908 · fundraising $5,045

  • 23 · Insurance

    total $14,250 · program services $9,256 · management and general $1,371 · fundraising $3,623

  • 24a · Other expenses: Advocacy and Awareness

    total $123,016 · program services $123,016

  • 24b · Other expenses: Subcontractors

    total $205,169 · program services $159,924 · management and general $302 · fundraising $44,943

  • 24c · Other expenses: Dues and Subscriptions

    total $10,119 · program services $4,313 · management and general $35 · fundraising $5,771

  • 24d · Other expenses: Bank, Merchant, Investment Fees

    total $38,056 · program services $24,721 · management and general $3,660 · fundraising $9,675

  • 24e · All other expenses

    total $20,933 · program services $10,898 · management and general $1,922 · fundraising $8,113

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $677,181 · end of year $382,980

  • 2 · Savings and temporary cash investments

    end of year $667,938

  • 3 · Pledges and grants receivable

    beginning of year $1,226,240 · end of year $712,303

  • 9 · Prepaid expenses and deferred charges

    beginning of year $33,080 · end of year $47,724

  • 10a · Land, buildings and equipment: cost or other basis

    $443,908

  • 10b · Land, buildings and equipment: accumulated depreciation

    $317,095

  • 10c · Land, buildings and equipment, net

    beginning of year $160,840 · end of year $126,813

  • 11 · Investments: publicly traded securities

    beginning of year $8,281,560 · end of year $8,185,042

  • 15 · Other assets

    beginning of year $311,063 · end of year $286,320

  • 17 · Accounts payable and accrued expenses

    beginning of year $176,048 · end of year $177,800

  • 18 · Grants payable

    beginning of year $3,166,290 · end of year $3,215,330

  • 25 · Other liabilities

    beginning of year $351,518 · end of year $321,119

  • 27 · Net assets without donor restrictions

    beginning of year $4,865,184 · end of year $5,235,674

  • 28 · Net assets with donor restrictions

    beginning of year $2,130,924 · end of year $1,459,197

Mission and programs · 2025

Mission

To find a cure for epilepsy by promoting and funding patient focused research.

  • Since its inception in 1998, CURE Epilepsy has raised more than 100 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy, post-traumatic epilepsy, treatment resistant epilepsies, sudden unexplained death in epilepsy SUDEP, and sleep and epilepsy advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures, CURE Epilepsy funds grants for young and established investigators and to date has awarded more than 300 grants in 19 countries around the world.

    Expenses $3,497,893

  • CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness.

    Expenses $998,335

As filed on the 2025 return.

Listed in Part VII

  • Beth Dean

    CEO

    Total calculated
    $344,007
    From this org
    $344,007
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $312,977
    Bonus
    $31,030
    Other
    not reported
    Deferred
    $10,519
    Nontaxable benefits
    $25,323
    Filer's total
    $379,849

  • Laura Lubbers

    CSO

    Total calculated
    $343,883
    From this org
    $343,883
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $313,267
    Bonus
    $30,616
    Other
    not reported
    Deferred
    $10,379
    Nontaxable benefits
    $8,721
    Filer's total
    $362,983

  • Alysha Biehl

    Director of Development

    Total calculated
    $170,346
    From this org
    $170,346
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $170,346
    Bonus
    not reported
    Other
    not reported
    Deferred
    $5,184
    Nontaxable benefits
    $8,755
    Filer's total
    $184,285

  • Dana Vielmetti

    Director of Marketing and Communications

    Total calculated
    $164,251
    From this org
    $164,251
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $164,251
    Bonus
    not reported
    Other
    not reported
    Deferred
    $5,145
    Nontaxable benefits
    $25,394
    Filer's total
    $194,790

  • Priya Balasurbramanian

    Director of Research

    Total calculated
    $138,007
    From this org
    $138,007
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

  • Elaine O'Loughlin

    Associate Director of Research Initiatives

    Total calculated
    $134,338
    From this org
    $134,338
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

  • John Anderluh

    CFO

    Total calculated
    $106,400
    From this org
    $106,400
    From related orgs
    $0
    Other
    $0
    Hours/week
    30

  • Angela Mota

    Director of Major Gifts

    Total calculated
    $100,904
    From this org
    $100,904
    From related orgs
    $0
    Other
    $0
    Hours/week
    37.5

  • Lisa Cotton

    Immediate Past Chair

    Total calculated
    $0
    Hours/week
    4

  • Shalee Cunneen

    Secretary

    Total calculated
    $0
    Hours/week
    4

  • Steve Austin

    Director

    Total calculated
    $0
    Hours/week
    2

  • Irina Colon

    Director

    Total calculated
    $0
    Hours/week
    1

  • Kim Borden

    Director

    Total calculated
    $0
    Hours/week
    2

  • Roger Heldman

    Treasurer

    Total calculated
    $0
    Hours/week
    4

  • Carrie Garman

    Director

    Total calculated
    $0
    Hours/week
    1

  • Maureen Flood Rabus

    Director

    Total calculated
    $0
    Hours/week
    1

  • David Reifman

    Director

    Total calculated
    $0
    Hours/week
    1

  • Walter Kelly

    Director

    Total calculated
    $0
    Hours/week
    1

  • Matt Schneider

    Director

    Total calculated
    $0
    Hours/week
    4

  • Kelly Cervantes

    Director

    Total calculated
    $0
    Hours/week
    4

  • Michael Alexrod

    Director

    Total calculated
    $0
    Hours/week
    1

  • Greg Mayes

    Director

    Total calculated
    $0
    Hours/week
    1

  • Jonathan Tuteur

    Director

    Total calculated
    $0
    Hours/week
    4

  • Justin Gover

    Chair

    Total calculated
    $0
    Hours/week
    6

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2025
Filed
8 April 2026
IRS schema version
2025v4.1
Source object
202630989349301528

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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