Skip to content
Nonprofiteer
← AUTISM SPEAKS INC

Form 990 for tax year 2022

Filed by AUTISM SPEAKS INC.

Totals

Total revenue
$36,262,685
Total expenses
$42,911,083
Contributions and grants received
$35,557,820
Grants paid
$6,594,373
Program service revenue
$0
Investment income
$636,469
Other revenue
$68,396
Total assets, end of year
$41,380,468
Total liabilities, end of year
$3,538,397
Net assets or fund balances, end of year
$37,842,071
Program services expenses (Part IX)
$33,160,689
Management and general expenses
$3,125,094
Fundraising expenses
$6,625,300
Program service expenses (Part III)
$33,160,689

Program services were 77.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $80,957

  • 1c · Fundraising events

    $4,090,779

  • 1f · All other contributions, gifts and grants

    $31,386,084

  • 1g · Noncash contributions included above

    $51,858

  • 3 · Investment income

    total $636,623 · excluded $636,623

  • 5 · Royalties

    total $44,194 · excluded $44,194

  • 7b · Less cost or other basis and sales expenses

    securities $154

  • 7c · Gain or loss

    securities -$154

  • 7d · Net gain or loss

    total -$154 · excluded -$154

  • 8a · Fundraising events: gross income

    $1,333,085

  • 8a · Fundraising events: contributions included on line 1c

    $4,090,779

  • 8b · Fundraising events: direct expenses

    $1,333,085

  • 8c · Net income from fundraising events

    total $0

  • 11a · Other revenue: RECOVERY OF GRANTS

    total $21,202 · excluded $21,202

  • 11b · Other revenue: TRAINING PROGRAM

    total $3,000 · excluded $3,000

  • 11e · Other revenue, total

    $24,202

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $5,051,935 · program services $5,051,935

  • 2 · Grants to domestic individuals

    total $713,423 · program services $713,423

  • 3 · Grants to foreign organizations and individuals

    total $829,015 · program services $829,015

  • 5 · Compensation of officers, directors and key employees

    total $1,608,806 · program services $1,149,526 · management and general $322,972 · fundraising $136,308

  • 7 · Other salaries and wages

    total $14,296,473 · program services $9,935,945 · management and general $1,633,181 · fundraising $2,727,347

  • 8 · Pension plan contributions

    total $519,538 · program services $363,664 · management and general $62,276 · fundraising $93,598

  • 9 · Other employee benefits

    total $1,997,910 · program services $1,440,253 · management and general $214,981 · fundraising $342,676

  • 10 · Payroll taxes

    total $1,161,949 · program services $803,980 · management and general $151,908 · fundraising $206,061

  • 11b · Fees: legal

    total $293,355 · program services $253,371 · management and general $39,984

  • 11c · Fees: accounting

    total $69,845 · program services $48,502 · management and general $21,343

  • 11d · Fees: lobbying

    total $563,540 · program services $563,540

  • 11e · Fees: professional fundraising services

    total $362,213 · fundraising $362,213

  • 11g · Fees: other

    total $1,918,288 · program services $1,507,659 · management and general $38,515 · fundraising $372,114

  • 12 · Advertising and promotion

    total $4,248,154 · program services $4,088,343 · management and general $398 · fundraising $159,413

  • 13 · Office expenses

    total $2,714,922 · program services $1,567,011 · management and general $51,460 · fundraising $1,096,451

  • 14 · Information technology

    total $1,730,404 · program services $1,280,712 · management and general $149,156 · fundraising $300,536

  • 16 · Occupancy

    total $486,210 · program services $355,806 · management and general $39,057 · fundraising $91,347

  • 17 · Travel

    total $693,224 · program services $563,459 · management and general $16,678 · fundraising $113,087

  • 22 · Depreciation, depletion and amortization

    total $279,314 · program services $221,861 · management and general $23,555 · fundraising $33,898

  • 23 · Insurance

    total $135,430 · program services $90,486 · management and general $32,430 · fundraising $12,514

  • 24a · Other expenses: EVENT EXPENSES

    total $1,959,670 · program services $1,567,736 · fundraising $391,934

  • 24b · Other expenses: DONATION PROCESSING

    total $441,783 · program services $104,222 · management and general $310,502 · fundraising $27,059

  • 24c · Other expenses: DIRECT MAIL

    total $277,148 · program services $138,574 · fundraising $138,574

  • 24e · All other expenses

    total $558,534 · program services $521,666 · management and general $16,698 · fundraising $20,170

  • 26 · Joint costs (an allocation of the lines above)

    total $14,060,319 · program services $8,279,282 · management and general $1,145,006 · fundraising $4,636,031

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $10,389,162 · end of year $1,383,227

  • 2 · Savings and temporary cash investments

    beginning of year $5,927,480 · end of year $5,410,238

  • 3 · Pledges and grants receivable

    beginning of year $3,550,666 · end of year $7,108,288

  • 4 · Accounts receivable

    beginning of year $4,323,693 · end of year $3,192,661

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $470,710 · end of year $947,296

  • 10a · Land, buildings and equipment: cost or other basis

    $3,706,893

  • 10b · Land, buildings and equipment: accumulated depreciation

    $3,252,824

  • 10c · Land, buildings and equipment, net

    beginning of year $726,684 · end of year $454,069

  • 11 · Investments: publicly traded securities

    beginning of year $21,952,383 · end of year $22,419,775

  • 12 · Investments: other securities

    beginning of year $0 · end of year $0

  • 13 · Investments: program-related

    beginning of year $0 · end of year $0

  • 15 · Other assets

    beginning of year $493,630 · end of year $464,914

  • 17 · Accounts payable and accrued expenses

    beginning of year $2,882,095 · end of year $3,211,178

  • 18 · Grants payable

    beginning of year $286,669 · end of year $168,243

  • 19 · Deferred revenue

    beginning of year $103,576 · end of year $158,976

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $208,090 · end of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $29,257,024 · end of year $21,408,452

  • 28 · Net assets with donor restrictions

    beginning of year $15,096,954 · end of year $16,433,619

Mission and programs · 2022

Mission

SEE SCHEDULE OWE ACHIEVE OUR ORGANIZATIONAL MISSION BY ENSURING ACCESS TO RELIABLE INFORMATION AND SERVICES ACROSS THE LIFESPAN; SUPPORTING RESEARCH AND INNOVATION THAT DRIVES TOWARD IMPROVED QUALITY OF LIFE AND WELL-BEING FOR INDIVIDUALS WITH AUTISM THROUGHOUT THEIR LIVES; THROUGH ADVOCACY, PARTNERSHIPS AND COLLABORATION, LEVERAGING OUR ASSETS TO SUPPORT, EXTEND, AND CONVENE THE WORK OF SERVICE PROVIDERS; ACCELERATING DELIVERY OF SOLUTIONS FOR ADULT QUALITY OF LIFE NEEDS, INCLUDING TRANSITION, EMPLOYMENT, HOUSING, AND HEALTH AND WELLNESS; AND LIVING AND PROMOTING PRINCIPLES OF DIVERSITY, EQUITY, ACCESS AND INCLUSION BOTH IN AND OUTSIDE THE ORGANIZATION.

Activities or mission (Part I)

SEE SCHEDULE O.AUTISM SPEAKS IS DEDICATED TO CREATING AN INCLUSIVE WORLD FOR ALL INDIVIDUALS WITH AUTISM THROUGHOUT THEIR LIFESPAN. WE DO THIS THROUGH ADVOCACY, SERVICES, SUPPORTS, RESEARCH AND INNOVATION, AND ADVANCES IN CARE FOR AUTISTIC INDIVIDUALS AND THEIR FAMILIES.

  • WE INCREASE KNOWLEDGE THROUGH RESEARCH TO DEEPEN OUR UNDERSTANDING OF AUTISM AND LEAD TO ADVANCEMENTS IN AUTISM DIAGNOSIS, EARLY INTERVETNION, AND PERSONALIZED HEALTHCARE. CONNECTED FAMILIES IN 50 STATES AND 37 COUNTRIES WITH RESOURCES AND ACCESS TO AUTISM EXPERTS. LAUNCHED TWO RESEARCH STUDIES TO IMPROVE PRECISION AUTISM CARE AND EARLY IDENTIFICATION. HOSTED A THOUGHT LEADERSHIP SUMMIT ON AUTISM AND AGING TO DEVELOP PROGRAMS AND POLICIES FOR BETTER SYSTEMS OF CARE FOR OLDER AUTISTIC PEOPLE AND THEIR CAREGIVERS. RELEASED THE VERY FIRST AUTISM BY THE NUMBERS REPORT TO SUPPORT INDIVIDUAL, FAMILY AND COMMUNITY DECISION-MAKING.

    Expenses $12,296,145 · Grants $6,133,843

  • AIDED MORE THAN 1.6 MILLION PEOPLE. AUTISM RESPONSE TEAM PROVIDED INDIVIDUALIZED SUPPORT TO OVER 87,000 PEOPLE. PROVIDED 17 NEW TRANSLATED RESOURCES, DOWNLOADED 25,000 TIMES BY SPANISH-SPEAKING COMMUNITY. LED REGULATORY CHARGE FOR ACCESS TO ALL EVIDENCED BASED AUTISM THERAPIES FOR MEDICAID ENROLLED CHILDREN. OUR WORKPLACE INCLUSION NOW (WIN) INITIATIVE ENGAGED OVER 5000 AUTISTIC JOB SEEKERS AND EMPLOYERS AT EVENTS. OVER 6000 JOBSEEKERS ACCESSED THE NEW NAVIGATING DIFFERENCES IN THE WORKPLACE COURSE. FUNDED $1.6 MILLION IN GRANTS TO SUPPORT NEXT GEN AUTISM SCIENCE LEADERS WORKING TO DEVELOP MODELS OF CARE.

    Expenses $13,326,977 · Grants $332,440

  • WE ARE STEADFAST IN OUR COMMITMENT TO IMPROVE LIFELONG OUTCOMES AND INCREASE UNDERSTANDING AND ACCEPTANCE OF PEOPLE WITH AUTISM. LAUNCHED E-CAREGIVERS SKILLS TRAINING ENABLING UNDERSERVED FAMILIES TO BUILD THEIR AUTISTIC CHILD'S COMMUNICATION AND BEHAVIOR SKILLS. SUCCESSFULLY ADVOCATED FOR STATE LICENCING LAWS TO PROVIDE PEOPLE WITH AUTISM GREATER ACCESS TO MEDICALLY NECESSARY INTERVENTIONS. ENGAGED 2.8 MILLION PEOPLE ON SOCIAL MEDIA PLATFORMS WHERE WE PROVIDED RESOURCES AND A SUPPORTIVE ENVIRONMENT FOR AUTISTIC PEOPLE TO SHARE THEIR STORIES. EDUCATED OVER 2100 PEOPLE ON FEDERAL AND STATE POLICY CHANGES AND ACCESSING RESOURCES.

    Expenses $7,537,567 · Grants $128,089

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Brian L Harper

    CHAIR

    Total calculated
    $0
    Hours/week
    1
  • Adrian M Jones

    VICE CHAIRMAN

    Total calculated
    $0
    Hours/week
    1
  • Jamie T Richardson

    VICE CHAIRMAN

    Total calculated
    $0
    Hours/week
    1
  • Curtis Arledge

    SECRETARY/TREASURER

    Total calculated
    $0
    Hours/week
    1
  • Tom Bernard

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Scott R Carpenter

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Jennifer Caserta

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Barry R Feirstein

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Matthew Higgins

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Tim Jones

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Aidan Kehoe

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Kevin J Murray

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Jacquelyn Nance

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Herbert Pardes MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Stuart Savitz

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Stephen Shore EdD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Steven P Stanbrook

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Cheryl Vitali

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Adam Frazier

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Darren Goode

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • William O'Connor

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Subriana Pierce

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Jennifer Seidel

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Bob Schwenkel

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Tom Frazier

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Keith Wargo

    PRESIDENT/CEO

    Total calculated
    $627,494
    From this org
    $571,476
    From related orgs
    $0
    Other
    $56,018
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $440,786
    Bonus
    $130,000
    Other
    $690
    Deferred
    $12,200
    Nontaxable benefits
    $43,818
    Filer's total
    $627,494
  • Joseph Vanyo

    CHIEF OPERATING OFFICER

    Total calculated
    $347,623
    From this org
    $321,932
    From related orgs
    $0
    Other
    $25,691
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $320,642
    Bonus
    $0
    Other
    $1,290
    Deferred
    $11,358
    Nontaxable benefits
    $14,333
    Filer's total
    $347,623
  • Kelli Seely

    CHIEF MARKETING OFFICER (BEG. 05/2022)

    Total calculated
    $228,243
    From this org
    $207,766
    From related orgs
    $0
    Other
    $20,477
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $207,014
    Bonus
    $0
    Other
    $752
    Deferred
    $5,500
    Nontaxable benefits
    $14,977
    Filer's total
    $228,243
  • Andy Shih

    CHIEF SCIENCE OFFICER

    Total calculated
    $364,798
    From this org
    $309,270
    From related orgs
    $0
    Other
    $55,528
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $293,290
    Bonus
    $14,000
    Other
    $1,980
    Deferred
    $11,710
    Nontaxable benefits
    $43,818
    Filer's total
    $364,798
  • Jennifer Podoll

    SVP, CONSTITUENT ENGAGEMENT

    Total calculated
    $274,725
    From this org
    $228,467
    From related orgs
    $0
    Other
    $46,258
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $228,017
    Bonus
    $0
    Other
    $450
    Deferred
    $2,440
    Nontaxable benefits
    $43,818
    Filer's total
    $274,725
  • Donna S Murray

    VP, HEAD CL. PRGM (THRU 11/2022)

    Total calculated
    $269,802
    From this org
    $248,228
    From related orgs
    $0
    Other
    $21,574
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $192,320
    Bonus
    $0
    Other
    $55,908
    Deferred
    $7,839
    Nontaxable benefits
    $13,735
    Filer's total
    $269,802
  • Stuart Spielman

    SVP, ADVOCACY

    Total calculated
    $251,301
    From this org
    $240,153
    From related orgs
    $0
    Other
    $11,148
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $237,681
    Bonus
    $0
    Other
    $2,472
    Deferred
    $9,635
    Nontaxable benefits
    $1,513
    Filer's total
    $251,301
  • Lynn Happel

    SVP, IT & DATA SUPPORT

    Total calculated
    $267,610
    From this org
    $226,857
    From related orgs
    $0
    Other
    $40,753
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $226,167
    Bonus
    $0
    Other
    $690
    Deferred
    $9,287
    Nontaxable benefits
    $31,466
    Filer's total
    $267,610
  • Melanie Akins

    VP, CORP. INITIATIVES (THRU 01/2023)

    Total calculated
    $261,030
    From this org
    $210,598
    From related orgs
    $0
    Other
    $50,432
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $210,148
    Bonus
    $0
    Other
    $450
    Deferred
    $8,694
    Nontaxable benefits
    $41,738
    Filer's total
    $261,030
  • Claudine Larocque

    VP, INDIVIDUAL/FOUNDATION RELATIONS

    Total calculated
    $222,636
    From this org
    $200,113
    From related orgs
    $0
    Other
    $22,523
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $198,823
    Bonus
    $0
    Other
    $1,290
    Deferred
    $8,190
    Nontaxable benefits
    $14,333
    Filer's total
    $222,636
  • Angela Geiger

    FORMER CEO & PRESIDENT

    Total calculated
    $237,353
    From this org
    $226,012
    From related orgs
    $0
    Other
    $11,341
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $160,811
    Bonus
    $65,000
    Other
    $201
    Deferred
    $1,733
    Nontaxable benefits
    $9,608
    Filer's total
    $237,353

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 1a · Travel for companions
  • 1b · Written policy on the line-1a expenses
  • 2 · Substantiation required before reimbursing expenses
  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 4a · Severance or change-of-control payment
  • 7 · Other non-fixed payments

Answered no

  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 1A
SCHEDULE J, PART I, LINE 1A: TRAVEL FOR COMPANIONS: ANNE WARGO, SPOUSE OF KEITH WARGO, CEO, ACTIVELY SERVES AS AN ADVOCATE AND FEATURED SPEAKER, ADDRESSING THE CRUCIAL TOPIC OF SUPPORT AND UNDERSTANDING FOR AUTISM AND ITS IMPACT ON FAMILIES. IN HER CAPACITY AS A SPOKESPERSON, ANNE PARTICIPATES IN ORGANIZATION EVENTS TO REPRESENT AND PROMOTE THE MISSION OF AUTISM SPEAKS. THIS ENGAGEMENT IS CONDUCTED WITH THE EXPLICIT APPROVAL OF THE BOARD OF DIRECTORS. ANY PERSONAL EXPENSES INCURRED IN CONNECTION WITH THESE EVENTS WILL NOT BE REIMBURSED BY THE ORGANIZATION. THIS PROACTIVE INVOLVEMENT IN ADVOCACY AND COMMUNITY ENGAGEMENT ALIGNS WITH OUR COMMITMENT TO RAISING AWARENESS AND FOSTERING UNDERSTANDING OF AUTISM, REINFORCING THE ORGANIZATION'S DEDICATION TO ITS MISSION.
PART I, LINE 4A
THE ORGANIZATION PROVIDED A SEVERANCE PAYMENT REPORTED IN SCHEDULE J, PART II, COLUMN B(III) TO THE FOLLOWING INDIVIDUALS DURING 2022: - DONNA S. MURRAY: $54,176
PART I, LINE 7
AUTISM SPEAKS AWARDED NON-FIXED PAYMENTS SUCH AS BONUSES BASED ON THE SUCCESSFUL ACHIEVEMENT OF PERFORMANCE GOALS AS REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS. THE NAMES OF EMPLOYEES AND THE AMOUNTS PAID ARE FOUND ON SCHEDULE J, PAGE 2, PART II, COL. (B)(II).

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

  • AUTISM SPEAKS CANADA

    SEE PART VII · CA · controlled entity

    Directly controlled by AUTISM SPEAKS

Provenance

Return type
form_990
Tax year
2022
Filed
24 January 2024
IRS schema version
2022v5.0
Source object
202420249349300527

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.