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AUTISM SPEAKS INC

EIN 20-2329938 WASHINGTON, DC

Revenue 2024
$28,799,237
Expenses 2024
$34,172,414

Program services were 68.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G128
Classification
1000
Street
50 F ST NW STE 360

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

SEE SCHEDULE OWE ACHIEVE OUR ORGANIZATIONAL MISSION BY ENSURING ACCESS TO RELIABLE INFORMATION AND SERVICES ACROSS THE LIFESPAN; SUPPORTING RESEARCH AND INNOVATION THAT DRIVES TOWARD IMPROVED QUALITY OF LIFE AND WELL-BEING FOR INDIVIDUALS WITH AUTISM THROUGHOUT THEIR LIVES; THROUGH ADVOCACY, PARTNERSHIPS AND COLLABORATION, LEVERAGING OUR ASSETS TO SUPPORT, EXTEND, AND CONVENE THE WORK OF SERVICE PROVIDERS; ACCELERATING DELIVERY OF SOLUTIONS FOR ADULT QUALITY OF LIFE NEEDS, INCLUDING TRANSITION, EMPLOYMENT, HOUSING, AND HEALTH AND WELLNESS; AND LIVING AND PROMOTING PRINCIPLES OF DIVERSITY, EQUITY, ACCESS AND INCLUSION BOTH IN AND OUTSIDE THE ORGANIZATION.

Activities or mission (Part I)

SEE SCHEDULE O.AUTISM SPEAKS IS DEDICATED TO CREATING AN INCLUSIVE WORLD FOR ALL INDIVIDUALS WITH AUTISM THROUGHOUT THEIR LIFESPAN. WE DO THIS THROUGH ADVOCACY, SERVICES, SUPPORTS, RESEARCH AND INNOVATION, AND ADVANCES IN CARE FOR AUTISTIC INDIVIDUALS AND THEIR FAMILIES.

  • AIDED MORE THAN 1.6 MILLION PEOPLE. AUTISM RESPONSE TEAM AND EDUCATIONAL COMMUNITY OUTREACH TEAM PROVIDED SUPPORT AND GUIDANCE TO OVER 66,431 PEOPLE SEEKING AUTISM INFORMATION AND RESOURCES INCLUDING 9,662 CONTACTS FROM THE SPANISH-SPEAKING COMMUNITY; LAUNCHED A NATIONAL AUTISM INFORMATION AND REFERRAL SERVICE PROVIDER NETWORK WITH 12 ORGANIZATIONS AND LED BIMONTHLY CAPACITY BUILDING TRAININGS TO ADDRESS GAPS IN AUTISM CARE COORDINATION AND SERVICE ACCESS. WE EXPANDED RESOURCES FOR AUTISTIC ADULTS, INCLUDING A TOOLKIT FOR ADULTS SEEKING AN AUTISM DIAGNOSIS - WRITTEN BY AUTISTIC ADULTS - THAT WAS DOWNLOADED OVER 33,800 TIMES. WE LAUNCHED A DRIVING WITH AUTISM DIGITAL TRAINING AND A SUITE OF TRANSITION RESOURCES. CONTINUED ON SCHEDULE O.WE ALSO RELEASED A HEALTHCARE TRANSITION ROADMAP TO SUPPORT THE SHIFT FROM PEDIATRIC TO ADULT CARE, A CHANGE SHOWN TO IMPROVE LONG-TERM HEALTH AND QUALITY OF LIFE OUTCOMES. PROVIDED 26 NEW TRANSLATED RESOURCES, SPANISH RESOURCES ALONE WERE DOWNLOADED AND VIEWED OVER 25,000 TIMES. LED REGULATORY CHARGE FOR ACCESS TO ALL EVIDENCED BASED AUTISM THERAPIES FOR MEDICAID ENROLLED CHILDREN. OVER 6,000 INDIVIDUALS ACROSS 46 BUSINESSES HAVE ACCESSED THE WORKPLACE INCLUSION NOW (WIN) DIGITAL TRAININGS TO DEVELOP INCLUSIVE WORKPLACES. FUNDED $208,846 IN GRANTS TO SUPPORT NEXT GEN AUTISM SCIENCE LEADERS WORKING TO DEVELOP MODELS OF CARE.

    Expenses $10,940,480 · Grants $32,037

  • WE INCREASE KNOWLEDGE THROUGH RESEARCH TO DEEPEN OUR UNDERSTANDING OF AUTISM AND LEAD TO ADVANCEMENTS IN AUTISM DIAGNOSIS, EARLY INTERVENTION, AND PERSONALIZED HEALTHCARE. CONNECTED FAMILIES IN 50 STATES AND 37 COUNTRIES WITH RESOURCES AND ACCESS TO AUTISM EXPERTS. WE UNVEILED A NEW RESOURCE FOR THE TREATMENT OF ADHD, ANXIETY AND IRRITABILITY IN AUTISM, PROVIDING CLINICIANS WITH A STRUCTURED, EVIDENCE-INFORMED APPROACH THAT WILL ULTIMATELY IMPROVE CARE FOR PEOPLE ON THE SPECTRUM. WE FUNDED THREE NEW RESEARCH PROJECTS TO REVEAL HOW AUDITORY PROCESSING DIFFERENCES AFFECT AUTISTIC PEOPLE, UNLOCKING INSIGHTS THAT COULD TRANSFORM DIAGNOSIS, COMMUNICATION, AND DAILY SUPPORT. CONTINUED ON SCHEDULE O.WE ALSO SUPPORTED FELLOWSHIPS FOR TWO EARLY CAREER AUTISTIC SCIENTISTS TO ADVANCE OUR UNDERSTANDING OF AUTISM, AMPLIFY AUTISTIC VOICES AND REFLECT THE REAL EXPERIENCES OF AUTISTIC PEOPLE. AS RESULT FROM THE THOUGHT LEADERSHIP SUMMIT OF AUTISM AGING, WE JOINED FORCES WITH THE AMERICAN HEART ASSOCIATION TO FUND PIONEERING RESEARCH TO LEARN MORE ABOUT CARDIOVASCULAR AND CEREBROVASCULAR HEALTH IN AUTISTIC PEOPLE. IN ADDITION, WE CO-ORGANIZED A WORKSHOP WITH ALZHEIMER'S ASSOCIATION TO EXPLORE THE EMERGING RESEARCH ON DEMENTIA AND OLDER AUTISTIC ADULTS. AUTISM SPEAKS' MSSNG PROJECT, THE WORLD'S LARGEST AUTISM GENOME DATABASE, EXPANDED BY ADDING 2,489 FULLY SEQUENCED GENOMES, FUELING GLOBAL DISCOVERIES AND ACCELERATING PROGRESS TOWARD MORE PERSONALIZED CARE FOR AUTISTIC PEOPLE. WE RELEASED ABN 2.0, AN EXPANSION OF THE ORIGINAL ABN 1.0. THE UPDATED REPORT INCLUDES MORE RECENT STATISTICS, AN INCREASED FOCUS ON ISSUES AFFECTING ADULTS, SUCH AS MENTAL HEALTH AND HEART HEALTH, AND NEW DATA ON VARIOUS TOPICS.

    Expenses $6,412,768 · Grants $1,412,204

  • WE ARE STEADFAST IN OUR COMMITMENT TO IMPROVE LIFELONG OUTCOMES AND INCREASE UNDERSTANDING AND ACCEPTANCE OF PEOPLE WITH AUTISM. EXPANDED E-CAREGIVERS SKILLS TRAINING ENABLING UNDERSERVED FAMILIES TO BUILD THEIR AUTISTIC CHILD'S COMMUNICATION AND BEHAVIOR SKILLS. 47 BUSINESSES EARNED THEIR AUTISM FRIENDLY DESIGNATION, OUR PROGRAM CO-DEVELOPED BY PEOPLE WITH AUTISM TO HELP ORGANIZATIONS WELCOME AND BUILD COMMUNITY WITH AUTISTIC PEOPLE. SUCCESSFULLY ADVOCATED FOR STATE LICENCING LAWS TO PROVIDE PEOPLE WITH AUTISM GREATER ACCESS TO MEDICALLY NECESSARY INTERVENTIONS. ENGAGED 3.2 MILLION PEOPLE ON SOCIAL MEDIA PLATFORMS WHERE WE PROVIDED RESOURCES AND A SUPPORTIVE ENVIRONMENT FOR AUTISTIC PEOPLE TO SHARE THEIR STORIES. EDUCATED OVER 2,100 PEOPLE ON FEDERAL AND STATE POLICY CHANGES AND ACCESSING RESOURCES.

    Expenses $6,193,190 · Grants $18,842

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • BRIAN L HARPER

    CHAIR

    Total calculated
    $0
    Hours/week
    1

  • ADRIAN M JONES

    VICE CHAIRMAN

    Total calculated
    $0
    Hours/week
    1

  • JAMIE T RICHARDSON

    VICE CHAIRMAN

    Total calculated
    $0
    Hours/week
    1

  • CURTIS ARLEDGE

    SECRETARY/TREASURER

    Total calculated
    $0
    Hours/week
    1

  • JACQUELYN NANCE

    VICE CHAIRMAN

    Total calculated
    $0
    Hours/week
    1

  • JUDY BENARDETE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TOM BERNARD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • SCOTT R CARPENTER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • JENNIFER CASERTA

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • LAURIE CHERN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • BARRY R FEIRSTEIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • ADAM FRAZIER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TOM FRAZIER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • WILLIAM GILES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DARREN GOODE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • MATTHEW HIGGINS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TIM JONES

    DIRECTOR (THRU 12/2025)

    Total calculated
    $0
    Hours/week
    1

  • AIDAN KEHOE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • KEVIN J MURRAY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • WILLIAM O'CONNOR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DR HERBERT PARDES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • SUBRIANA PIERCE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • STUART SAVITZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • ROBERT SCHWENKEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • JENNIFER SEIDEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $28,799,237
    Expenses
    $34,172,414
    Contributions
    $27,828,948
    Grants paid
    $1,463,084
  • 2023
    Revenue
    $34,985,535
    Expenses
    $40,745,638
    Contributions
    $33,561,004
    Grants paid
    $4,690,931
  • 2022
    Revenue
    $36,262,685
    Expenses
    $42,911,083
    Contributions
    $35,557,820
    Grants paid
    $6,594,373

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2022 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2021 · 990

    Revenue
    $46,771,653
    Expenses
    $44,122,642
    Assets (EOY)
    $47,834,408

  • 2021 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2020 · 990

    Revenue
    $42,083,296
    Expenses
    $41,166,504
    Assets (EOY)
    $48,207,079

  • 2020 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2019 · 990

    Revenue
    $53,701,450
    Expenses
    $48,144,682
    Assets (EOY)
    $46,226,879

  • 2019 · 990

    Revenue
    $53,701,450
    Expenses
    $48,144,682
    Assets (EOY)
    $46,226,879

  • 2017 · 990

    Revenue
    $50,437,078
    Expenses
    $42,861,302
    Assets (EOY)
    $20,577,061

  • 2016 · 990

    Revenue
    $47,556,499
    Expenses
    $46,739,673
    Assets (EOY)
    $15,392,508

  • 2015 · 990

    Revenue
    $58,138,267
    Expenses
    $60,617,406
    Assets (EOY)
    $18,248,413

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2024 return

California fundraising campaigns

Campaigns run by paid fundraisers, commercial coventurers and thrift stores naming this organization, as California published them. Both figures are as filed, and what the first one counts depends on the campaign type — a coventurer or a thrift store files its own sales rather than money collected for the charity. The 990 reports this only as a yearly total, never per campaign.

  • VERA BRADLEY SALES LLC

    $14,245 in sales

    2020 Commercial Coventurer

    $25,000 to charity

Amounts are as filed and do not add up: a commercial coventurer reports one promotion's whole gross once for each charity that shared in it. A campaign may also name more than one registered charity, in which case it appears on each.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility GROUP.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.