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Nonprofiteer
← ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC

Form 990 for tax year 2022

Filed by ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC.

Totals

Total revenue
$349,997
Total expenses
$198,796
Contributions and grants received
$115,270
Grants paid
$31,488
Program service revenue
$0
Investment income
$41,428
Other revenue
$193,299
Total assets, end of year
$1,359,089
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$1,359,089
Program services expenses (Part IX)
$95,735
Management and general expenses
$103,061
Fundraising expenses
$0
Program service expenses (Part III)
$95,735

Program services were 48.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $0

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $115,270

  • 1g · Noncash contributions included above

    $0

  • 3 · Investment income

    total $41,428 · related or exempt $0 · unrelated business $41,428 · excluded $0

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 8a · Fundraising events: gross income

    $188,046

  • 8a · Fundraising events: contributions included on line 1c

    $0

  • 8b · Fundraising events: direct expenses

    $2,767

  • 8c · Net income from fundraising events

    total $185,279 · unrelated business $185,279 · excluded $0

  • 11d · All other revenue

    total $8,020 · related or exempt $0 · unrelated business $8,020 · excluded $0

  • 11e · Other revenue, total

    $8,020

Functional expenses

Part IX, the statement of functional expenses.

  • 3 · Grants to foreign organizations and individuals

    total $31,488 · program services $31,488

  • 11a · Fees: management

    total $35,750 · management and general $35,750

  • 11f · Fees: investment management

    total $11,160 · management and general $11,160

  • 13 · Office expenses

    total $2,243 · management and general $2,243

  • 16 · Occupancy

    total $1,365 · management and general $1,365

  • 19 · Conferences, conventions and meetings

    total $61,747 · program services $61,747

  • 23 · Insurance

    total $3,510 · management and general $3,510

  • 24a · Other expenses: Other - Family Support

    total $2,500 · program services $2,500 · management and general $0 · fundraising $0

  • 24b · Other expenses: Other - License / Taxes & Fees

    total $980 · program services $0 · management and general $980 · fundraising $0

  • 24c · Other expenses: Other - Marketing

    total $48,053 · program services $0 · management and general $48,053 · fundraising $0

Balance sheet

Part X, book values.

  • 2 · Savings and temporary cash investments

    beginning of year $183,306 · end of year $137,440

  • 11 · Investments: publicly traded securities

    beginning of year $999,908 · end of year $1,221,649

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $1,183,214 · end of year $1,359,089

Mission and programs · 2022

Mission

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.

Activities or mission (Part I)

Our mission is to find the cause(s) of Alternating AHC), develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $31,488 · Grants $31,488

  • Grant to Alternating Hemiplegia of Childhood UK in support of the ATP1A3 Medical Symposium. In addition to the grant to the UK foundation we also sponsored a couple board members to attend the meeting to continue the collaboration of the global Alternating Hemiplegia organizations to End AHC.

    Expenses $18,880 · Grants $18,880

  • The Alternating Hemiplegia of Childhood Foundation hosted a family meeting in June, 2023 in Glendale California. The conference allowed families to meet face-to-face, hear presentations on quality-of-life topics, get research updates from the leading projects in Alternating Hemiplegia, plus make connections that will last a lifetime. The meeting also included clinics where families met with researchers who are studying Alternating Hemiplegia.

    Expenses $42,867 · Grants $42,867

  • See Schedule O, Statement 1

    Expenses $2,500 · Grants $2,500

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Katelyn Wilson

    Director

    Total calculated
    $0
    Hours/week
    2

  • Kate Byrne

    Director

    Total calculated
    $0
    Hours/week
    2

  • Sharon Ciccodicola

    Director

    Total calculated
    $0
    Hours/week
    5

  • Heather Gates

    Director

    Total calculated
    $0
    Hours/week
    2

  • Bill Gerber

    Director

    Total calculated
    $0
    Hours/week
    1

  • Cate Cohen

    Director

    Total calculated
    $0
    Hours/week
    1

  • Joshua Marszalek

    President

    Total calculated
    $0
    Hours/week
    7

  • April Hawk

    Vice-President of Education & Family Support

    Total calculated
    $0
    Hours/week
    5

  • Vicky Platt

    Vice President of Research

    Total calculated
    $0
    Hours/week
    5

  • Gene Andrasco

    Treasurer

    Total calculated
    $0
    Hours/week
    4

  • Stephen Henderson

    Secretary

    Total calculated
    $0
    Hours/week
    4

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
13 November 2023
IRS schema version
2022v5.0
Source object
202313179349305766

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