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ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC

EIN 38-3225425 SOUTHFIELD, MI

Largest nonprofits in Michigan

Revenue 2024
$283,334
Expenses 2024
$200,994

Program services were 60.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H80
Classification
1000
Street
2000 TOWN CTR STE 1900

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

4 other organizations in the IRS Business Master File list the same street address. matched by us

This address is a suite or unit (STE 1900). Organizations that share one are often clients of the same office-services firm, accountant or registered agent rather than related to each other.

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

Mission and programs · 2024

Mission

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.

Activities or mission (Part I)

Our mission is to find the cause(s) of Alternating AHC), develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $35,000 · Grants $35,000

  • The AHCF contributed to research at Brown University lead by Ann Hart to finish preliminary characterization C. elegans CRISPR knock-in models and identify robust phenotype-based assays that will facilitate using these C. elegans models to undertake efficient screening for conserved modifier genes and/or compounds that might ameliorate defects and increase our understanding of molecular pathways leading to AHC.

    Expenses $22,411 · Grants $22,411

  • The AHCF contributed to research at iXCells Biotechnologies on Antisense Oligonucleotide Treatments (ASO Therapy). iXcells pilot study Stage 1: including small scale mouse cortical neuron isolation and assay optimization Stage 2 : custom mouse cortical neuron isolation for ASO Screen Stage 2 part 2: ASO screening using mouse cortical neurons

    Expenses $16,830 · Grants $16,830

  • See Schedule O, Statement 1 The AHCF contributed to two other research projects (Jax Labs ASO Proof of Concept and SomaLogic ASO mouse models). We also sponsored the international ATP1A3 Symposium, hosted the Family Meeting, paid for a CNS sponsorship, and sent out family welcome packets.

    Expenses $46,328 · Grants $46,328

As filed on the 2024 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Lynn Egan

    Director

    Total calculated
    $0
    Hours/week
    1

  • Kathy Sharo

    Director

    Total calculated
    $0
    Hours/week
    1

  • Mollie Erpenbeck

    Director

    Total calculated
    $0
    Hours/week
    1

  • Sharon Ciccodicola

    Director

    Total calculated
    $0
    Hours/week
    1

  • Bill Gerber

    Director

    Total calculated
    $0
    Hours/week
    1

  • Adalberto Duarte

    Director

    Total calculated
    $0
    Hours/week
    1

  • Vicky Platt

    President

    Total calculated
    $0
    Hours/week
    4

  • Gene Andrasco

    Treasurer

    Total calculated
    $0
    Hours/week
    4

  • Heather Gates

    Vice-President of Education & Family Support

    Total calculated
    $0
    Hours/week
    4

  • Cate Cohen

    Secretary

    Total calculated
    $0
    Hours/week
    4

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $283,334
    Expenses
    $200,994
    Contributions
    $195,616
    Grants paid
    $96,975
  • 2023
    Revenue
    $323,263
    Expenses
    $220,502
    Contributions
    $197,687
    Grants paid
    $127,478
  • 2022
    Revenue
    $349,997
    Expenses
    $198,796
    Contributions
    $115,270
    Grants paid
    $31,488

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $797,734
    Expenses
    $141,168
    Assets (EOY)
    $1,183,214

  • 2020 · 990

    Revenue
    $514,076
    Expenses
    $404,013
    Assets (EOY)
    $709,389

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.