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Nonprofiteer
← ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC

Form 990 for tax year 2024

Filed by ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC.

Totals

Total revenue
$283,334
Total expenses
$200,994
Contributions and grants received
$195,616
Grants paid
$96,975
Program service revenue
$0
Investment income
$83,143
Other revenue
$4,575
Total assets, end of year
$1,698,825
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$1,698,825
Program services expenses (Part IX)
$120,569
Management and general expenses
$80,425
Fundraising expenses
$0
Program service expenses (Part III)
$120,569

Program services were 60.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $112,143

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $83,473

  • 1g · Noncash contributions included above

    $0

  • 3 · Investment income

    total $83,143 · related or exempt $0 · unrelated business $83,143 · excluded $0

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $112,143

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $0 · unrelated business $0 · excluded $0

  • 11d · All other revenue

    total $4,575 · related or exempt $4,575 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $4,575

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $96,975 · program services $96,975

  • 11a · Fees: management

    total $39,721 · management and general $39,721

  • 11f · Fees: investment management

    total $15,466 · management and general $15,466

  • 13 · Office expenses

    total $3,731 · management and general $3,731

  • 16 · Occupancy

    total $1,512 · management and general $1,512

  • 19 · Conferences, conventions and meetings

    total $21,339 · program services $21,339

  • 23 · Insurance

    total $2,290 · management and general $2,290

  • 24a · Other expenses: Family Support Grants & New Family Packets

    total $1,255 · program services $1,255 · management and general $0 · fundraising $0

  • 24b · Other expenses: Child Neurology Society Sponsorship

    total $1,000 · program services $1,000 · management and general $0 · fundraising $0

  • 24c · Other expenses: Non-Profit Registration Fees

    total $320 · program services $0 · management and general $320 · fundraising $0

  • 24d · Other expenses: Marketing / Fundraising

    total $17,385 · program services $0 · management and general $17,385 · fundraising $0

Balance sheet

Part X, book values.

  • 2 · Savings and temporary cash investments

    beginning of year $301,909 · end of year $294,396

  • 11 · Investments: publicly traded securities

    beginning of year $1,235,763 · end of year $1,404,429

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $1,537,672 · end of year $1,698,825

Mission and programs · 2024

Mission

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.

Activities or mission (Part I)

Our mission is to find the cause(s) of Alternating AHC), develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $35,000 · Grants $35,000

  • The AHCF contributed to research at Brown University lead by Ann Hart to finish preliminary characterization C. elegans CRISPR knock-in models and identify robust phenotype-based assays that will facilitate using these C. elegans models to undertake efficient screening for conserved modifier genes and/or compounds that might ameliorate defects and increase our understanding of molecular pathways leading to AHC.

    Expenses $22,411 · Grants $22,411

  • The AHCF contributed to research at iXCells Biotechnologies on Antisense Oligonucleotide Treatments (ASO Therapy). iXcells pilot study Stage 1: including small scale mouse cortical neuron isolation and assay optimization Stage 2 : custom mouse cortical neuron isolation for ASO Screen Stage 2 part 2: ASO screening using mouse cortical neurons

    Expenses $16,830 · Grants $16,830

  • See Schedule O, Statement 1 The AHCF contributed to two other research projects (Jax Labs ASO Proof of Concept and SomaLogic ASO mouse models). We also sponsored the international ATP1A3 Symposium, hosted the Family Meeting, paid for a CNS sponsorship, and sent out family welcome packets.

    Expenses $46,328 · Grants $46,328

As filed on the 2024 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Lynn Egan

    Director

    Total calculated
    $0
    Hours/week
    1

  • Kathy Sharo

    Director

    Total calculated
    $0
    Hours/week
    1

  • Mollie Erpenbeck

    Director

    Total calculated
    $0
    Hours/week
    1

  • Sharon Ciccodicola

    Director

    Total calculated
    $0
    Hours/week
    1

  • Bill Gerber

    Director

    Total calculated
    $0
    Hours/week
    1

  • Adalberto Duarte

    Director

    Total calculated
    $0
    Hours/week
    1

  • Vicky Platt

    President

    Total calculated
    $0
    Hours/week
    4

  • Gene Andrasco

    Treasurer

    Total calculated
    $0
    Hours/week
    4

  • Heather Gates

    Vice-President of Education & Family Support

    Total calculated
    $0
    Hours/week
    4

  • Cate Cohen

    Secretary

    Total calculated
    $0
    Hours/week
    4

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
30 October 2025
IRS schema version
2024v5.0
Source object
202523049349300702

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