Totals
- Total revenue
- $5,648,263
- Total expenses
- $5,631,699
- Contributions and grants received
- $3,956,537
- Grants paid
- $3,192,211
- Program service revenue
- $0
- Investment income
- $394,915
- Other revenue
- $1,296,811
- Total assets, end of year
- $8,443,085
- Total liabilities, end of year
- $383,179
- Net assets or fund balances, end of year
- $8,059,906
- Program services expenses (Part IX)
- $4,373,463
- Management and general expenses
- $563,110
- Fundraising expenses
- $695,126
- Program service expenses (Part III)
- $4,373,463
Program services were 77.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1e · Government grants (contributions)
$504,968
-
1f · All other contributions, gifts and grants
$3,451,569
-
3 · Investment income
total $220,582 · excluded $220,582
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7a · Gross sales of assets other than inventory
securities $2,859,617
-
7b · Less cost or other basis and sales expenses
securities $2,685,284
-
7c · Gain or loss
securities $174,333
-
7d · Net gain or loss
total $174,333 · related or exempt $174,333
-
8a · Fundraising events: gross income
$1,492,665
-
8b · Fundraising events: direct expenses
$196,510
-
8c · Net income from fundraising events
total $1,296,155 · excluded $1,296,155
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11a · Other revenue: MISCELLANEOUS
total $656 · related or exempt $656
-
11e · Other revenue, total
$656
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $7,197 · program services $7,197
-
2 · Grants to domestic individuals
total $3,185,014 · program services $3,185,014
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $354,738 · program services $123,103 · management and general $59,853 · fundraising $171,782
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $921,567 · program services $649,615 · management and general $91,831 · fundraising $180,121
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $223,819 · program services $134,093 · management and general $26,355 · fundraising $63,371
-
10 · Payroll taxes
total $99,076 · program services $59,799 · management and general $11,926 · fundraising $27,351
-
11a · Fees: management
total $206,980 · program services $69,230 · management and general $56,833 · fundraising $80,917
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $19,738 · management and general $19,738
-
11d · Fees: lobbying
total $168,000 · management and general $168,000
-
11e · Fees: professional fundraising services
total $113,858 · fundraising $113,858
-
11f · Fees: investment management
total $47,095 · management and general $47,095
-
11g · Fees: other
total $0
-
12 · Advertising and promotion
total $12,399 · program services $12 · management and general $300 · fundraising $12,087
-
13 · Office expenses
total $56,824 · program services $9,676 · management and general $33,628 · fundraising $13,520
-
14 · Information technology
total $27,309 · program services $20,066 · management and general $7,243
-
15 · Royalties
total $0
-
16 · Occupancy
total $91,083 · program services $79,946 · management and general -$12,579 · fundraising $23,716
-
17 · Travel
total $14,396 · program services $10,608 · management and general $2,053 · fundraising $1,735
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $2,133 · program services $1,413 · fundraising $720
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $35,335 · management and general $35,335
-
23 · Insurance
total $30,701 · program services $22,028 · management and general $2,763 · fundraising $5,910
-
24a · Other expenses: 50128,9 BANK CHARGES
total $8,074 · management and general $8,074
-
24b · Other expenses: 43155 FTWH
total $2,485 · management and general $2,485
-
24c · Other expenses: 50131 PAYROLL PROCESSING
total $2,121 · management and general $2,121
-
24d · Other expenses: 50091 GIFTS TO VOLUNTEERS
total $1,518 · program services $1,468 · management and general $50
-
24e · All other expenses
total $239 · program services $195 · management and general $6 · fundraising $38
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $1,120,849 · end of year $226,447
-
2 · Savings and temporary cash investments
beginning of year $885,423 · end of year $165,977
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $376,241
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $408,251
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $1,977
-
10a · Land, buildings and equipment: cost or other basis
$157,981
-
10b · Land, buildings and equipment: accumulated depreciation
$85,573
-
10c · Land, buildings and equipment, net
beginning of year $104,005 · end of year $72,408
-
11 · Investments: publicly traded securities
beginning of year $6,006,434 · end of year $7,124,591
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
beginning of year $139,839 · end of year $57,451
-
15 · Other assets
beginning of year $9,742 · end of year $9,742
-
17 · Accounts payable and accrued expenses
beginning of year $230,200 · end of year $117,826
-
18 · Grants payable
beginning of year $295,631 · end of year $150,000
-
22 · Loans and payables to officers and key people
beginning of year $102 · end of year $102
-
23 · Secured mortgages and notes payable
beginning of year $188,184 · end of year $76,780
-
25 · Other liabilities
beginning of year $27,070 · end of year $38,471
-
27 · Net assets without donor restrictions
beginning of year $2,800,240 · end of year $7,959,906
-
28 · Net assets with donor restrictions
beginning of year $4,724,865 · end of year $100,000
Mission and programs · 2023
Mission
(1)Help to provide individuals with neuro-muscular diseases or injuries with leading edge technology, equipment and services (2) Raise public awareness toward amyotrophic lateral sclerosis by providing & documenting life adventures for individuals with muscular diseases or injuries.
-
Helping deliver leading edge equipment, services and technology, the Team Gleason Foundation provides ALS patients with the tools to allow people living with ALS to communicate, interact, and live with purpose. Technology and equipment have advanced over the past decade but these services can be taken even further. The Foundation works with creative companies to develop voice creation and hands-free software and technology.The Foundation maintains contact with ALS families receiving specialized equipment and recycles the equipment to new patients when the equipment is no longer needed. In 2023, the approximate value of such equipment repurposed was $2,100,000. In addition, Voice Banking technology was provided to 1,571 patients valued at $2,200,000.For the second year in a row, Team Gleason was voted "Best Non-profit" in Gambit's best of new orleans issue.Team Gleason partnered with Tobii Dynavox, the world leader in assistive communication and the leading provider of technology for the ALS community, to increase access to assistive communications technology for people living with ALS to live purposeful lives. This partnership is focused on engaging the ALS community and clinicians to provide a higher level of service, product, and support to enhance care and help more people living with ALS. Team Gleason participated in the Bureau of Industry and Security (BIS) 2023 Brain-Computer Interface Technology Conference. BIS consists of industry experts to further BIS and the public's understanding of the status and future developments in Brain-Computer Interface (BCI) technology and anticipated future developments in research and applications. Team Gleason was honored to have been a part of the Inaugural American Possibilities: White House Demo Day. This event showcased the innovative work of 40 different groups. Team Gleason had the opportunity to spotlight available technologies for individuals with ALS and other disabilities, while also discussing the teams role in propelling innovation and advancing ALS research at an accelerated pace. Ochsner Health and Team Gleason announced a partnership to enhance healthcare, clinical research and care, technology and equipment solutions and other resources for those living with amyotrophic lateral sclerosis (ALS) and other neurological disorders. With this partnership, Ochsner and Team Gleason combine their expertise to bring patients a continuum of care experience that delivers evaluations, treatments, teaching and training, and innovative equipment and technology, supporting the shared mission of increasing independence and quality of life to those living from ALS and other neurological diseases.
Expenses $4,373,463
As filed on the 2023 return.
Listed in Part VII
-
David DarraghDAVID DARRAGH
MANAGING DIRECTOR
- Total calculated
- $167,956
- From this org
- $127,343
- From related orgs
- $0
- Other
- $40,613
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $127,343
- Bonus
- not reported
- Other
- not reported
- Deferred
- $30,000
- Nontaxable benefits
- $10,613
- Filer's total
- $167,956
-
Blair CaseyBLAIR CASEY
EXECUTIVE DIRECTOR
- Total calculated
- $133,709
- From this org
- $117,735
- From related orgs
- $0
- Other
- $15,974
- Hours/week
- 40
-
Vinnie VariscoVINNIE VARISCO
Director
- Total calculated
- $0
- Hours/week
- 2
-
Kyle BrechtelKYLE BRECHTEL
Director
- Total calculated
- $0
- Hours/week
- 1
-
Kimi CulpKIMI CULP
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
Stephan RehageSTEPHAN REHAGE
Director
- Total calculated
- $0
- Hours/week
- 1
-
Paul Varisco JrPAUL VARISCO JR
Director
- Total calculated
- $0
- Hours/week
- 2
-
Kyle M GleasonKYLE M GLEASON
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
Suzanne AlfordSUZANNE ALFORD
Director
- Total calculated
- $0
- Hours/week
- 20
-
Michelle FarrMICHELLE FARR
Director
- Total calculated
- $0
- Hours/week
- 2
-
Thomas McEachinTHOMAS MCEACHIN
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
Philip GreenPHILIP GREEN
Director
- Total calculated
- $0
- Hours/week
- 2
-
Michel Varisco GleasonMICHEL VARISCO GLEASON
Director
- Total calculated
- $0
- Hours/week
- 5 + 8 related
-
Stephen GleasonSTEPHEN GLEASON
Director
- Total calculated
- $0
- Hours/week
- 10 + 2 related
-
Danielle KavanaghDANIELLE KAVANAGH
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
Jim MarggraffJIM MARGGRAFF
Director
- Total calculated
- $0
- Hours/week
- 1
-
Ashley McCreadyASHLEY MCCREADY
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
Mike McCreadyMIKE MCCREADY
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
Cleland PowellCLELAND POWELL
Director
- Total calculated
- $0
- Hours/week
- 1
-
Kathleen HoltKATHLEEN HOLT
Director
- Total calculated
- $0
- Hours/week
- 1
-
Bryan FitzpatrickBRYAN FITZPATRICK
Director
- Total calculated
- $0
- Hours/week
- 2
-
Rick DicksonRICK DICKSON
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
Daniel GarskeDANIEL GARSKE
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
Dave MartinDAVE MARTIN
Director
- Total calculated
- $0
- Hours/week
- 1
-
Judge Tony HazelJUDGE TONY HAZEL
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
Jenny Lay-FlurrieJENNY LAY-FLURRIE
Director
- Total calculated
- $0
- Hours/week
- 2
-
Paul Varisco SrPAUL VARISCO SR
CHAIRMAN
- Total calculated
- $0
- Hours/week
- 20 + 10 related
-
Thomas CapellaTHOMAS CAPELLA
officer
- Total calculated
- $0
- Hours/week
- 5
-
James SaltersJAMES SALTERS
Officer
- Total calculated
- $0
- Hours/week
- 1
-
Scott A FujitaSCOTT A FUJITA
Officer
- Total calculated
- $0
- Hours/week
- 0.5
-
David ShermanDAVID SHERMAN
Officer
- Total calculated
- $0
- Hours/week
- 2.5
-
Chris Casey CPACHRIS CASEY CPA
officer
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
None.
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Taxable family on this return
Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.
Related corporations and trusts
Part IV: related organizations taxable as a corporation or trust.
-
GLEASON FAMILY TRUST
TRUST · MERCH SALES · LA
-
c-corp · ALS MEDICAL RESEARCH · LA
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 20 November 2024
- IRS schema version
- 2023v5.1
- Source object
- 202413259349301706
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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