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Nonprofiteer
← PARKINSONS FOUNDATION INC

Form 990 for tax year 2023

Filed by PARKINSONS FOUNDATION INC.

Totals

Total revenue
$55,962,188
Total expenses
$51,977,272
Contributions and grants received
$53,846,552
Grants paid
$11,250,290
Program service revenue
$0
Investment income
$2,115,636
Other revenue
$0
Total assets, end of year
$62,045,139
Total liabilities, end of year
$23,990,119
Net assets or fund balances, end of year
$38,055,020
Program services expenses (Part IX)
$43,260,233
Management and general expenses
$2,248,345
Fundraising expenses
$6,468,694
Program service expenses (Part III)
$43,260,233

Program services were 83.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $3,734,632

  • 1f · All other contributions, gifts and grants

    $50,111,920

  • 1g · Noncash contributions included above

    $1,113,522

  • 3 · Investment income

    total $947,644 · excluded $947,644

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0

  • 5 · Royalties

    total $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0

  • 7a · Gross sales of assets other than inventory

    securities $14,607,395

  • 7b · Less cost or other basis and sales expenses

    securities $13,421,979 · other assets $17,424

  • 7c · Gain or loss

    securities $1,185,416 · other assets -$17,424

  • 7d · Net gain or loss

    total $1,167,992 · excluded $1,167,992

  • 8a · Fundraising events: gross income

    $706,812

  • 8a · Fundraising events: contributions included on line 1c

    $3,734,632

  • 8b · Fundraising events: direct expenses

    $706,812

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0

  • 10a · Gross sales of inventory

    $0

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $9,578,217 · program services $9,578,217

  • 2 · Grants to domestic individuals

    total $174,850 · program services $174,850

  • 3 · Grants to foreign organizations and individuals

    total $1,497,223 · program services $1,497,223

  • 4 · Benefits paid to or for members

    total $0

  • 5 · Compensation of officers, directors and key employees

    total $2,546,753 · program services $2,003,276 · management and general $194,063 · fundraising $349,414

  • 6 · Compensation of disqualified persons

    total $0

  • 7 · Other salaries and wages

    total $13,315,091 · program services $10,474,844 · management and general $1,012,158 · fundraising $1,828,089

  • 8 · Pension plan contributions

    total $627,707 · program services $493,027 · management and general $48,621 · fundraising $86,059

  • 9 · Other employee benefits

    total $1,870,236 · program services $1,468,960 · management and general $144,866 · fundraising $256,410

  • 10 · Payroll taxes

    total $1,063,398 · program services $835,236 · management and general $82,370 · fundraising $145,792

  • 11a · Fees: management

    total $0

  • 11b · Fees: legal

    total $190,111 · program services $107,620 · management and general $63,081 · fundraising $19,410

  • 11c · Fees: accounting

    total $105,490 · management and general $105,490

  • 11d · Fees: lobbying

    total $0

  • 11e · Fees: professional fundraising services

    total $0

  • 11f · Fees: investment management

    total $156,608 · management and general $156,608

  • 11g · Fees: other

    total $4,270,440 · program services $2,688,424 · management and general $188,054 · fundraising $1,393,962

  • 12 · Advertising and promotion

    total $1,697,971 · program services $1,617,297 · fundraising $80,674

  • 13 · Office expenses

    total $1,995,471 · program services $1,011,570 · management and general $36,554 · fundraising $947,347

  • 14 · Information technology

    total $993,012 · program services $794,153 · management and general $39,115 · fundraising $159,744

  • 15 · Royalties

    total $0

  • 16 · Occupancy

    total $1,289,853 · program services $1,149,399 · management and general $35,278 · fundraising $105,176

  • 17 · Travel

    total $872,311 · program services $672,113 · management and general $73,767 · fundraising $126,431

  • 18 · Travel or entertainment for public officials

    total $0

  • 19 · Conferences, conventions and meetings

    total $381,763 · program services $368,774 · management and general $4,404 · fundraising $8,585

  • 20 · Interest

    total $0

  • 21 · Payments to affiliates

    total $0

  • 22 · Depreciation, depletion and amortization

    total $573,164 · program services $468,933 · management and general $22,486 · fundraising $81,745

  • 23 · Insurance

    total $206,838 · program services $167,972 · management and general $8,945 · fundraising $29,921

  • 24a · Other expenses: CONTRACTED RESEARCH

    total $4,976,887 · program services $4,976,887

  • 24b · Other expenses: CATERING AND MEETINGS

    total $1,565,093 · program services $1,543,560 · management and general $5,708 · fundraising $15,825

  • 24c · Other expenses: PRINTING & PUBLICATIONS

    total $1,291,562 · program services $764,613 · management and general $3,053 · fundraising $523,896

  • 24d · Other expenses: BANK AND CREDIT CARD EXPENSE

    total $490,539 · program services $209,000 · management and general $0 · fundraising $281,539

  • 24e · All other expenses

    total $246,684 · program services $194,285 · management and general $23,724 · fundraising $28,675

  • 26 · Joint costs (an allocation of the lines above)

    total $3,347,473 · program services $1,269,091 · management and general $0 · fundraising $2,078,383

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $390,460 · end of year $70,355

  • 2 · Savings and temporary cash investments

    beginning of year $0 · end of year $0

  • 3 · Pledges and grants receivable

    beginning of year $6,982,514 · end of year $3,244,355

  • 4 · Accounts receivable

    beginning of year $0 · end of year $0

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $190,681 · end of year $697,356

  • 10a · Land, buildings and equipment: cost or other basis

    $3,901,580

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,776,122

  • 10c · Land, buildings and equipment, net

    beginning of year $1,487,872 · end of year $1,125,458

  • 11 · Investments: publicly traded securities

    beginning of year $36,967,766 · end of year $54,969,734

  • 12 · Investments: other securities

    beginning of year $0 · end of year $0

  • 13 · Investments: program-related

    beginning of year $0 · end of year $0

  • 14 · Intangible assets

    beginning of year $0 · end of year $0

  • 15 · Other assets

    beginning of year $1,015,190 · end of year $1,937,881

  • 17 · Accounts payable and accrued expenses

    beginning of year $3,143,213 · end of year $3,706,896

  • 18 · Grants payable

    beginning of year $10,357,143 · end of year $8,964,974

  • 19 · Deferred revenue

    beginning of year $0 · end of year $10,398,601

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $1,525,473 · end of year $919,648

  • 27 · Net assets without donor restrictions

    beginning of year $22,581,042 · end of year $28,027,827

  • 28 · Net assets with donor restrictions

    beginning of year $9,427,612 · end of year $10,027,193

Mission and programs · 2023

Mission

THE FOUNDATION'S MISSION IS TO MAKE LIFE BETTER FOR PEOPLE WITH PARKINSON'S DISEASE BY IMPROVING CARE AND ADVANCING RESEARCH TOWARD A CURE. IN EVERYTHING WE DO, WE BUILD ON THE ENERGY, EXPERIENCE AND PASSION OF OUR GLOBAL PARKINSON'S COMMUNITY.(CONTINUED ON SCHEDULE O)

Activities or mission (Part I)

MAKE LIFE BETTER FOR PEOPLE WITH PARKINSON'S DISEASE BY IMPROVING CARE AND ADVANCING RESEARCH TOWARD A CURE.

  • PILLAR 2 - ADVANCING PARKINSON'S DISEASE (PD) RESEARCH: WE CLOSE FUNDING GAPS THAT WILL LEAD US TO A CURE. WE SUPPORT A RANGE OF INITIATIVES GEARED TOWARD ENDING PARKINSON'S. OUR GRANTS AND FELLOWSHIPS SUPPORT CUTTING-EDGE RESEARCH DONE BY SCIENTISTS WHO ARE DEVOTED TO DECIPHERING PARKINSON'S AND FINDING NEW WAYS TO ATTACK IT AND STOP IT FROM PROGRESSING. WE FUND INNOVATIVE DRUG DISCOVERY THROUGH THE PARKINSON'S VIRTUAL BIOTECH, WHICH IS BUILDING A PIPELINE OF NEW DRUGS EXCLUSIVELY FOR PARKINSON'S DISEASE. THE PARKINSON'S VIRTUAL BIOTECH KEEPS NEW DRUGS FUNDED AND MOVING THROUGH THE DEVELOPMENT PROCESS. OUR GROUNDBREAKING (CONTINUED ON SCHEDULE O)

    Expenses $15,468,884 · Grants $5,965,593

  • PILLAR 1 - ENSURING BETTER CARE FOR EVERYONE: WE SET STANDARDS FOR EXPERT PARKINSON'S CARE THROUGH A GLOBAL CARE NETWORK. OUR DESIGNATED CENTERS ARE RENOWNED FOR OUTSTANDING PERFORMANCE IN PARKINSON'S RESEARCH, CARE AND OUTREACH. WE CONTINUE TO GROW THIS NETWORK AND FACILITATE INNOVATIVE SOLUTIONS LIKE TELEMEDICINE CARE TO REACH THE 90% OF PEOPLE WHO ARE NOT RECEIVING CARE FROM TRAINED SPECIALISTS. RESPONDING TO A NATIONWIDE SHORTAGE OF TRAINED SPECIALISTS, WE ARE CLOSING THE GAP IN PD PROFESSIONAL TRAINING BY EDUCATING PHYSICIANS, NURSES, PHYSICAL THERAPISTS, SPEECH LANGUAGE THERAPISTS AND SOCIAL WORKERS. THE NEXT GENERATION OF HEALTHCARE PROFESSIONALS MUST BE EQUIPPED WITH THE (CONTINUED ON SCHEDULE O)

    Expenses $10,273,565 · Grants $3,793,594

  • PILLAR 3 - EDUCATING AND EMPOWERING THE PARKINSON'S COMMUNITY: WE PROVIDE A VARIETY OF IN-PERSON AND VIRTUAL RESOURCES, HELPING EVERYONE LIVE BETTER WITH PARKINSON'S. THE FOUNDATION IS THE FIRST ORGANIZATION TO FORM A PARKINSON'S ADVISORY COUNCIL AND THE FIRST TO TRAIN PEOPLE WITH PD TO PARTNER WITH SCIENTISTS ON RESEARCH. WE HELP PEOPLE LIVE WELL WITH PD BY PROVIDING FREE RESOURCES, INCLUDING AN INTERACTIVE VIRTUAL SERIES, PD HEALTH @ HOME, WHICH FEATURES EVENTS FOCUSED ON WELLNESS, EXERCISE AND MENTAL HEALTH, A NEWLY DIAGNOSED GUIDE DESIGNED TO HELP PEOPLE WITH PARKINSON'S AND THEIR LOVED ONES GET STARTED ON THEIR PD JOURNEY AND A TOLL-FREE HELPLINE STAFFED BY PARKINSON'S (CONTINUED ON SCHEDULE O)

    Expenses $17,517,784 · Grants $1,491,103

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • JOHN L LEHR

    PRESIDENT & CEO

    Total calculated
    $482,743
    From this org
    $455,559
    From related orgs
    $0
    Other
    $27,184
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $397,809
    Bonus
    $57,750
    Other
    $0
    Deferred
    $16,500
    Nontaxable benefits
    $10,684
    Filer's total
    $482,743
  • MERI MARGARET DEOUDES

    SVP CHIEF OPERATING OFFICER

    Total calculated
    $312,858
    From this org
    $268,572
    From related orgs
    $0
    Other
    $44,286
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $245,822
    Bonus
    $22,750
    Other
    $0
    Deferred
    $13,429
    Nontaxable benefits
    $30,857
    Filer's total
    $312,858
  • KAYLN HENKEL

    SVP, CHIEF ADVANCEMENT OFFICER

    Total calculated
    $293,524
    From this org
    $250,159
    From related orgs
    $0
    Other
    $43,365
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $232,311
    Bonus
    $17,848
    Other
    $0
    Deferred
    $12,508
    Nontaxable benefits
    $30,857
    Filer's total
    $293,524
  • JAMES BECK

    SVP, CHIEF SCIENTIFIC OFFICER

    Total calculated
    $271,590
    From this org
    $254,887
    From related orgs
    $0
    Other
    $16,703
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $237,045
    Bonus
    $17,842
    Other
    $0
    Deferred
    $12,744
    Nontaxable benefits
    $3,959
    Filer's total
    $271,590
  • LEILANI PEARL

    SVP CHIEF COMM. OFFICER

    Total calculated
    $257,838
    From this org
    $235,385
    From related orgs
    $0
    Other
    $22,453
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $218,809
    Bonus
    $16,576
    Other
    $0
    Deferred
    $11,769
    Nontaxable benefits
    $10,684
    Filer's total
    $257,838
  • MARK KEAVEY

    SVP, CHIEF FINANCIAL OFFICER

    Total calculated
    $246,989
    From this org
    $230,344
    From related orgs
    $0
    Other
    $16,645
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $220,500
    Bonus
    $9,844
    Other
    $0
    Deferred
    $11,517
    Nontaxable benefits
    $5,128
    Filer's total
    $246,989
  • CHRISTIANA EVERS

    VP, CHIEF COMM. ENG. OFFICER

    Total calculated
    $240,576
    From this org
    $208,694
    From related orgs
    $0
    Other
    $31,882
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $193,630
    Bonus
    $15,064
    Other
    $0
    Deferred
    $10,435
    Nontaxable benefits
    $21,447
    Filer's total
    $240,576
  • ELIZABETH POLLARD

    VP CHIEF TRAINING & EDU. OFC.

    Total calculated
    $222,875
    From this org
    $182,902
    From related orgs
    $0
    Other
    $39,973
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $169,402
    Bonus
    $13,500
    Other
    $0
    Deferred
    $9,145
    Nontaxable benefits
    $30,828
    Filer's total
    $222,875
  • SHEERA ROSENFELD

    VP, STRATEGIC INITIATIVES

    Total calculated
    $219,869
    From this org
    $181,881
    From related orgs
    $0
    Other
    $37,988
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $181,881
    Bonus
    $0
    Other
    $0
    Deferred
    $9,094
    Nontaxable benefits
    $28,894
    Filer's total
    $219,869
  • YASNAHIA CORTORREAL

    VP, CHIEF HR & ADMIN. OFFICER

    Total calculated
    $217,760
    From this org
    $197,232
    From related orgs
    $0
    Other
    $20,528
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $183,172
    Bonus
    $14,060
    Other
    $0
    Deferred
    $9,862
    Nontaxable benefits
    $10,666
    Filer's total
    $217,760
  • NICOLE YARAB

    VP CLINICAL AFFRS/ INFO RSRCS

    Total calculated
    $203,485
    From this org
    $173,214
    From related orgs
    $0
    Other
    $30,271
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $173,214
    Bonus
    $0
    Other
    $0
    Deferred
    $8,661
    Nontaxable benefits
    $21,610
    Filer's total
    $203,485
  • ALEJANDRO BLANCO

    AVP FINANCE

    Total calculated
    $187,989
    From this org
    $169,509
    From related orgs
    $0
    Other
    $18,480
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $169,509
    Bonus
    $0
    Other
    $0
    Deferred
    $8,475
    Nontaxable benefits
    $10,005
    Filer's total
    $187,989
  • AJAY SHARMA

    COMPTROLLER

    Total calculated
    $175,789
    From this org
    $163,700
    From related orgs
    $0
    Other
    $12,089
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $163,700
    Bonus
    $0
    Other
    $0
    Deferred
    $8,185
    Nontaxable benefits
    $3,904
    Filer's total
    $175,789
  • ADOLFO DIAZ

    AVP INFORMATION & RESOURCES

    Total calculated
    $165,022
    From this org
    $127,926
    From related orgs
    $0
    Other
    $37,096
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $127,926
    Bonus
    $0
    Other
    $0
    Deferred
    $6,396
    Nontaxable benefits
    $30,700
    Filer's total
    $165,022
  • J GORDON BECKHAM

    CHAIR

    Total calculated
    $0
    Hours/week
    5
  • ANDREW B ALBERT

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5
  • CONSTANCE W ATWELL PHD

    SECRETARY

    Total calculated
    $0
    Hours/week
    5
  • PAUL H NATHAN

    TREASURER

    Total calculated
    $0
    Hours/week
    5
  • HOWARD D MORGAN

    IMMEDIATE PAST CHAIR

    Total calculated
    $0
    Hours/week
    5
  • SARAH BROWN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • MARSHALL BURACK

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • ALESSANDRO DI ROCCO MD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • G PENNINGTON EGBERT

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • PAOLO FRESCO

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • MARY ELLEN GARRETT

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • PETER GOLDMAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • STEPHANIE GOLDMAN ROSEN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • PONDER HARRISON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • ALISON HERMAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • TRAVIS HOWE

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • MINDY MCILROY

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • JANIS MIYASAKI MD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • WILLIAM R MOLER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • MARCIA MONDAVI BORGER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • JAMES MORGAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • JOSHUA RASKIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • JOHN THOMOPOULOS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • CHRISTINA WEAVER JACKSON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • ADAM WOLFBERG

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • STEVE NEWTON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • VEERA RASTOGI

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2023
Filed
25 October 2024
IRS schema version
2023v5.1
Source object
202403039349302505

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