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← LYMEDISEASE ORG

Form 990 for tax year 2022

Filed by LYMEDISEASE ORG.

What the amendment changed

Compared with the return it replaced , filed 4 September 2023. matched by us Only the return's totals, a 990-PF's accounting method and the names listed in Part VII (Part VIII on a 990-PF) are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Listed only on the earlier return

  • Carolyn Degnan

Totals

Total revenue
$697,297
Total expenses
$619,251
Contributions and grants received
$586,115
Grants paid
$0
Program service revenue
$0
Investment income
$111,182
Other revenue
$0
Total assets, end of year
$1,650,988
Total liabilities, end of year
$13,790
Net assets or fund balances, end of year
$1,637,198
Program services expenses (Part IX)
$512,364
Management and general expenses
$106,887
Fundraising expenses
$0
Program service expenses (Part III)
$512,364

Program services were 82.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1b · Membership dues

    $154,273

  • 1f · All other contributions, gifts and grants

    $431,842

  • 3 · Investment income

    total $50,916 · excluded $50,916

  • 7a · Gross sales of assets other than inventory

    securities $346,263 · other assets $1,783

  • 7b · Less cost or other basis and sales expenses

    securities $287,780

  • 7c · Gain or loss

    securities $58,483 · other assets $1,783

  • 7d · Net gain or loss

    total $60,266 · excluded $60,266

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $205,265 · program services $174,475 · management and general $30,790

  • 7 · Other salaries and wages

    total $128,314 · program services $114,199 · management and general $14,115

  • 10 · Payroll taxes

    total $55,614 · program services $49,496 · management and general $6,118

  • 11c · Fees: accounting

    total $38,425 · program services $30,740 · management and general $7,685

  • 11g · Fees: other

    total $3,954 · program services $1,976 · management and general $1,978

  • 13 · Office expenses

    total $25,114 · program services $24,465 · management and general $649

  • 14 · Information technology

    total $65,059 · program services $65,059

  • 17 · Travel

    total $453 · program services $453

  • 23 · Insurance

    total $3,800 · management and general $3,800

  • 24a · Other expenses: OUTSIDE SERVICES

    total $66,041 · program services $49,531 · management and general $16,510

  • 24b · Other expenses: BANK CHARGES

    total $24,548 · management and general $24,548

  • 24c · Other expenses: LYME TIME

    total $1,534 · program services $1,074 · management and general $460

  • 24d · Other expenses: DUES & SUBSCRIPTIONS

    total $896 · program services $896

  • 24e · All other expenses

    total $234 · management and general $234

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $166,887 · end of year $247,641

  • 2 · Savings and temporary cash investments

    beginning of year $1,649,498 · end of year $13,247

  • 10a · Land, buildings and equipment: cost or other basis

    $99,382

  • 10b · Land, buildings and equipment: accumulated depreciation

    $99,382

  • 11 · Investments: publicly traded securities

    end of year $1,390,100

  • 17 · Accounts payable and accrued expenses

    beginning of year $3,888 · end of year $13,790

  • 31 · Retained earnings, endowment or other funds

    beginning of year $1,812,497 · end of year $1,637,198

Mission and programs · 2022

Mission

LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL.

  • EDUCATION - WE ARE THE LARGEST AND MOST TRUSTED COMMUNICATIONS NETWORK FOR LYME DISEASE IN THE NATION. THE ORGANIZATION RAISES THE LEVEL OF PUBLIC AWARENESS OF LYME DISEASE THROUGH OUR PUBLISHED BLOGS AND THE DIGITAL LYME TIMES AS WELL AS THE INTERNET, AND SOCIAL MEDIA.

    Expenses $189,575

  • RESEARCH - WE CONDUCT AND PUBLISH RESEARCH THROUGH ONE OF THE LARGEST STUDIES OF LYME DISEASE THROUGH OUR PATIENT REGISTRY AND RESEARCH PLATFORM,MYLYMEDATA, WITH OVER 13,000 PATIENTS ENROLLED TO DATE. WE COLOLABORATE WITH RESEARCHERS FROM THE UNIVERSITY OF WASHINGTON AND FROM UCLA, AS WELL AS BAY AREALYME FOUNDATIONBIOBANK ON A TISSUE SPECIMENT BIOREPOSITORY.

    Expenses $240,811

  • ADVOCACY - WE STRIVE FOR PATIENT INVOLVEMENT AT ALL LEVELS OF DECISION MAKING. WE REPRESENT HUNDREDS OF THOUSANDS OF PATIENTSAND PROVIDE THEM WITH THE TOOLS ESSENTIAL TO EMPOWERMENT. FOR OVER 10 YEARS, WE HAVE BEEN INVOLVEDIN PATIENT-LED BIG DATA RESEARCH EFFORTS, CONDUCTING LARGE SCALE PATIENT SURVEYS THAT ENGAGE THOUSANDS OF PATIENTS AND ARE PUBLISHED IN PEER REVIEWED JOURNALS.

    Expenses $81,978

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Lorraine Johnson

    CEO

    Total calculated
    $92,934
    From this org
    $92,934
    From related orgs
    $0
    Other
    $0
    Hours/week
    60

  • Dorothy Kupcha Leland

    PRESIDENT

    Total calculated
    $23,000
    From this org
    $23,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    20

  • Christine Green

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • Mitchell Hoggard

    TREASURER

    Total calculated
    $0
    Hours/week
    3

  • Erica Lehman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • Ron Lindorf

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    3

  • Caleb Manscill

    CTO

    Total calculated
    $0
    Hours/week
    5

  • Raphael Stricker MD

    MEDICAL DIRE

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
10 October 2023
IRS schema version
2022v5.0
Source object
202322849349302317

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