LYMEDISEASE ORG

As filed

Subsection

03

Classification

1000

Street

PO BOX 16009

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2023

• EDUCATION - WE ARE THE LARGEST AND MOST TRUSTED COMMUNICATIONS NETWORK FOR LYME DISEASE IN THE NATION. THE ORGANIZATION RAISES THE LEVEL OF PUBLIC AWARENESS OF LYME DISEASE THROUGH OUR PUBLISHED BLOGS AND THE DIGITAL LYME TIMES AS WELL AS THE INTERNET, AND SOCIAL MEDIA.

  Expenses $201,343

• RESEARCH - WE CONDUCT AND PUBLISH RESEARCH THROUGH ONE OF THE LARGEST STUDIES OF LYME DISEASE THROUGH OUR PATIENT REGISTRY AND RESEARCH PLATFORM,MYLYMEDATA, WITH OVER 13,000 PATIENTS ENROLLED TO DATE. WE COLOLABORATE WITH RESEARCHERS FROM THE UNIVERSITY OF WASHINGTON AND FROM UCLA, AS WELL AS BAY AREALYME FOUNDATIONBIOBANK ON A TISSUE SPECIMENT BIOREPOSITORY.

  Expenses $190,746

• ADVOCACY - WE STRIVE FOR PATIENT INVOLVEMENT AT ALL LEVELS OF DECISION MAKING. WE REPRESENT HUNDREDS OF THOUSANDS OF PATIENTSAND PROVIDE THEM WITH THE TOOLS ESSENTIAL TO EMPOWERMENT. FOR OVER 10 YEARS, WE HAVE BEEN INVOLVEDIN PATIENT-LED BIG DATA RESEARCH EFFORTS, CONDUCTING LARGE SCALE PATIENT SURVEYS THAT ENGAGE THOUSANDS OF PATIENTS AND ARE PUBLISHED IN PEER REVIEWED JOURNALS.

  Expenses $90,074

• ADMIN SERVICES

  Expenses $47,686

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2023

As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

• 2023

  Revenue

  $501,947

  Expenses

  $653,905

  Contributions

  $432,483

  Grants paid

  $0

• 2022

  Revenue

  $697,297

  Expenses

  $619,251

  Contributions

  $586,115

  Grants paid

  $0

• 2022

  Revenue

  $697,297

  Expenses

  $619,251

  Contributions

  $586,115

  Grants paid

  $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $619,817

  Expenses

  $534,560

  Assets (EOY)

  $1,816,385

• 2020 · 990

  Revenue

  $1,243,802

  Expenses

  $559,039

  Assets (EOY)

  $1,668,448

• 2019 · 990

  Revenue

  $624,011

  Expenses

  $621,178

  Assets (EOY)

  $928,212

• 2018 · 990

  Revenue

  $626,533

  Expenses

  $637,582

  Assets (EOY)

  $886,446

• 2017 · 990

  Revenue

  $699,727

  Expenses

  $539,933

  Assets (EOY)

  $877,410

• 2016 · 990

  Revenue

  $565,079

  Expenses

  $549,585

  Assets (EOY)

  $669,107

• 2015 · 990

  Revenue

  $458,130

  Expenses

  $413,330

  Assets (EOY)

  $638,150

• 2014 · 990

  Revenue

  $461,043

  Expenses

  $372,924

  Assets (EOY)

  $592,626

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

• AMERICAN GIFT FUND

  $50,000

  2024 · OPERATIONS

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $32,700

  2022 · For grant recipient's exempt purposes

• UNIVERSITY IMPACT

  $25,000

  2024 · To support organization

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $19,400

  2024 · For grant recipient's exempt purposes

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $19,050

  2023 · For grant recipient's exempt purposes

• NATIONAL CHRISTIAN CHARITABLE FOUNDATION

  $17,750

  2023 · POVERTY

• MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC

  $15,000

  2022 · UNRESTRICTED GENERAL SUPPORT

• PAYPAL CHARITABLE GIVING FUND

  $12,201

  2023

• NATIONAL PHILANTHROPIC TR

  $11,000

  2024 · INTERNATIONAL

• NATIONAL CHRISTIAN CHARITABLE FOUNDATION

  $10,500

  2022 · POVERTY

The 10 largest by cash amount. The API serves every itemized grant.

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