Totals
- Total revenue
- $501,947
- Total expenses
- $653,905
- Contributions and grants received
- $432,483
- Grants paid
- $0
- Program service revenue
- $0
- Investment income
- $69,464
- Other revenue
- $0
- Total assets, end of year
- $1,637,678
- Total liabilities, end of year
- $6,805
- Net assets or fund balances, end of year
- $1,630,873
- Program services expenses (Part IX)
- $529,849
- Management and general expenses
- $105,669
- Fundraising expenses
- $18,387
- Program service expenses (Part III)
- $529,849
Program services were 81.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1b · Membership dues
$148,999
-
1f · All other contributions, gifts and grants
$283,484
-
3 · Investment income
total $50,447 · excluded $50,447
-
7a · Gross sales of assets other than inventory
securities $253,994 · other assets $865
-
7b · Less cost or other basis and sales expenses
securities $235,842
-
7c · Gain or loss
securities $18,152 · other assets $865
-
7d · Net gain or loss
total $19,017 · excluded $19,017
Functional expenses
Part IX, the statement of functional expenses.
-
5 · Compensation of officers, directors and key employees
total $107,588 · program services $95,753 · management and general $11,835
-
7 · Other salaries and wages
total $307,678 · program services $273,833 · management and general $33,845
-
10 · Payroll taxes
total $18,274 · program services $16,264 · management and general $2,010
-
11c · Fees: accounting
total $33,611 · program services $26,889 · management and general $6,722
-
11f · Fees: investment management
total $26,273 · management and general $26,273
-
11g · Fees: other
total $3,416 · program services $3,040 · management and general $376
-
12 · Advertising and promotion
total $8,338 · program services $7,421 · management and general $917
-
13 · Office expenses
total $22,657 · program services $3,202 · management and general $1,068 · fundraising $18,387
-
14 · Information technology
total $67,811 · program services $67,811
-
17 · Travel
total $1,027 · program services $1,027
-
23 · Insurance
total $4,277 · program services $1,576 · management and general $2,701
-
24a · Other expenses: LYME TIME
total $45,454 · program services $31,818 · management and general $13,636
-
24b · Other expenses: BANK CHARGES
total $6,086 · management and general $6,086
-
24c · Other expenses: DUES & SUBSCRIPTIONS
total $1,215 · program services $1,215
-
24d · Other expenses: LICENSES
total $200 · management and general $200
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $247,641 · end of year $172,507
-
2 · Savings and temporary cash investments
beginning of year $13,247 · end of year $11,249
-
10a · Land, buildings and equipment: cost or other basis
$99,382
-
10b · Land, buildings and equipment: accumulated depreciation
$99,382
-
11 · Investments: publicly traded securities
beginning of year $1,390,100 · end of year $1,453,922
-
17 · Accounts payable and accrued expenses
beginning of year $13,790 · end of year $6,805
-
31 · Retained earnings, endowment or other funds
beginning of year $1,637,198 · end of year $1,630,873
Mission and programs · 2023
Mission
LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL.
-
EDUCATION - WE ARE THE LARGEST AND MOST TRUSTED COMMUNICATIONS NETWORK FOR LYME DISEASE IN THE NATION. THE ORGANIZATION RAISES THE LEVEL OF PUBLIC AWARENESS OF LYME DISEASE THROUGH OUR PUBLISHED BLOGS AND THE DIGITAL LYME TIMES AS WELL AS THE INTERNET, AND SOCIAL MEDIA.
Expenses $201,343
-
RESEARCH - WE CONDUCT AND PUBLISH RESEARCH THROUGH ONE OF THE LARGEST STUDIES OF LYME DISEASE THROUGH OUR PATIENT REGISTRY AND RESEARCH PLATFORM,MYLYMEDATA, WITH OVER 13,000 PATIENTS ENROLLED TO DATE. WE COLOLABORATE WITH RESEARCHERS FROM THE UNIVERSITY OF WASHINGTON AND FROM UCLA, AS WELL AS BAY AREALYME FOUNDATIONBIOBANK ON A TISSUE SPECIMENT BIOREPOSITORY.
Expenses $190,746
-
ADVOCACY - WE STRIVE FOR PATIENT INVOLVEMENT AT ALL LEVELS OF DECISION MAKING. WE REPRESENT HUNDREDS OF THOUSANDS OF PATIENTSAND PROVIDE THEM WITH THE TOOLS ESSENTIAL TO EMPOWERMENT. FOR OVER 10 YEARS, WE HAVE BEEN INVOLVEDIN PATIENT-LED BIG DATA RESEARCH EFFORTS, CONDUCTING LARGE SCALE PATIENT SURVEYS THAT ENGAGE THOUSANDS OF PATIENTS AND ARE PUBLISHED IN PEER REVIEWED JOURNALS.
Expenses $90,074
-
ADMIN SERVICES
Expenses $47,686
As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Lorraine JohnsonLORRAINE JOHNSON
CEO
- Total calculated
- $107,588
- From this org
- $107,588
- From related orgs
- $0
- Other
- $0
- Hours/week
- 60
-
Barbara BarsocchiniBARBARA BARSOCCHINI
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 18
-
Carolyn DegnanCAROLYN DEGNAN
SECRETARY, C
- Total calculated
- $0
- Hours/week
- 50
-
Christine GreenCHRISTINE GREEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
Mitchell HoggardMITCHELL HOGGARD
TREASURER
- Total calculated
- $0
- Hours/week
- 3
-
Erica LehmanERICA LEHMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
Dorothy Kupcha LelandDOROTHY KUPCHA LELAND
PRESIDENT
- Total calculated
- $0
- Hours/week
- 20
-
Ron LindorfRON LINDORF
CHAIRMAN
- Total calculated
- $0
- Hours/week
- 1
-
Caleb ManscillCALEB MANSCILL
CTO
- Total calculated
- $0
- Hours/week
- 3
-
Raphael Stricker MDRAPHAEL STRICKER MD
MEDICAL DIRE
- Total calculated
- $0
- Hours/week
- 5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 30 October 2024
- IRS schema version
- 2023v5.0
- Source object
- 202443049349301984
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