Skip to content
Nonprofiteer
← DAYSTAR FOR MEDICALLY FRAGILE CHILDREN INC

Form 990 for tax year 2022

Filed by DAYSTAR FOR MEDICALLY FRAGILE CHILDREN INC.

Totals

Total revenue
$4,401,041
Total expenses
$3,356,452
Contributions and grants received
$1,693,832
Grants paid
$0
Program service revenue
$2,622,599
Investment income
$118,831
Other revenue
-$34,221
Total assets, end of year
$9,448,171
Total liabilities, end of year
$1,130,307
Net assets or fund balances, end of year
$8,317,864
Program services expenses (Part IX)
$2,834,153
Management and general expenses
$415,143
Fundraising expenses
$107,156
Program service expenses (Part III)
$2,834,153

Program services were 84.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $266,717

  • 1e · Government grants (contributions)

    $334,202

  • 1f · All other contributions, gifts and grants

    $1,092,913

  • 2a · Program service revenue: STATE AND LOCAL FUNDIN

    total $2,616,338 · related or exempt $2,616,338

  • 2b · Program service revenue: FAMILY TUITION

    total $6,261 · related or exempt $6,261

  • 3 · Investment income

    total $118,831 · excluded $118,831

  • 8a · Fundraising events: gross income

    $12,690

  • 8a · Fundraising events: contributions included on line 1c

    $266,717

  • 8b · Fundraising events: direct expenses

    $47,178

  • 8c · Net income from fundraising events

    total -$34,488 · excluded -$34,488

  • 11a · Other revenue: OTHER

    total $267 · excluded $267

  • 11e · Other revenue, total

    $267

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $140,494 · program services $122,707 · management and general $14,738 · fundraising $3,049

  • 7 · Other salaries and wages

    total $2,032,638 · program services $1,775,308 · management and general $213,232 · fundraising $44,098

  • 9 · Other employee benefits

    total $212,363 · program services $185,478 · management and general $22,277 · fundraising $4,608

  • 10 · Payroll taxes

    total $185,835 · program services $162,308 · management and general $19,496 · fundraising $4,031

  • 11b · Fees: legal

    total $13,502 · management and general $13,502

  • 11c · Fees: accounting

    total $22,035 · management and general $22,035

  • 11d · Fees: lobbying

    total $24,000 · management and general $24,000

  • 11g · Fees: other

    total $115,367 · program services $115,367

  • 12 · Advertising and promotion

    total $36,130 · management and general $7,907 · fundraising $28,223

  • 13 · Office expenses

    total $8,667 · program services $3,264 · management and general $4,548 · fundraising $855

  • 14 · Information technology

    total $61,226 · program services $48,783 · management and general $8,257 · fundraising $4,186

  • 16 · Occupancy

    total $19,179 · program services $16,877 · management and general $2,110 · fundraising $192

  • 20 · Interest

    total $14,023 · program services $12,340 · management and general $1,543 · fundraising $140

  • 22 · Depreciation, depletion and amortization

    total $100,744 · program services $88,655 · management and general $11,082 · fundraising $1,007

  • 23 · Insurance

    total $43,968 · program services $38,692 · management and general $4,836 · fundraising $440

  • 24a · Other expenses: REPAIRS AND MAINTENANCE

    total $107,620 · program services $94,706 · management and general $11,838 · fundraising $1,076

  • 24b · Other expenses: RECRUITMENT AND TRAININ

    total $68,582 · program services $51,586 · management and general $16,996

  • 24c · Other expenses: SUPPLIES

    total $54,667 · program services $53,851 · management and general $816

  • 24d · Other expenses: PAYROLL SERVICE FEE

    total $41,004 · program services $35,813 · management and general $4,301 · fundraising $890

  • 24e · All other expenses

    total $54,408 · program services $28,418 · management and general $11,629 · fundraising $14,361

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $194,770 · end of year $223,787

  • 2 · Savings and temporary cash investments

    beginning of year $1,048,141 · end of year $212,373

  • 4 · Accounts receivable

    beginning of year $279,469 · end of year $302,864

  • 9 · Prepaid expenses and deferred charges

    beginning of year $1,500 · end of year $1,500

  • 10a · Land, buildings and equipment: cost or other basis

    $2,775,811

  • 10b · Land, buildings and equipment: accumulated depreciation

    $862,082

  • 10c · Land, buildings and equipment, net

    beginning of year $1,996,365 · end of year $1,913,729

  • 11 · Investments: publicly traded securities

    beginning of year $5,982,380 · end of year $6,793,918

  • 17 · Accounts payable and accrued expenses

    beginning of year $96,588 · end of year $121,144

  • 19 · Deferred revenue

    beginning of year $645,000 · end of year $600,000

  • 23 · Secured mortgages and notes payable

    beginning of year $479,702 · end of year $409,163

  • 27 · Net assets without donor restrictions

    beginning of year $5,005,955 · end of year $6,169,156

  • 28 · Net assets with donor restrictions

    beginning of year $3,275,380 · end of year $2,148,708

Mission and programs · 2022

Mission

DAYSTAR KIDS PROMOTES THE HEALTH CARE, THERAPEUTIC, EDUCATIONAL, AND SOCIAL GOALS FOR CHILDREN WHOSE DEVELOPMENT IS DISRUPTED BY HOSPITALIZATION AND/OR TREATMENT FOR THEIR COMPLEX HEALTH CARE CONDITIONS.

Activities or mission (Part I)

PEDIATRIC RESPITE AND DEVELOPMENTAL SERVICES FOR CHILDREN WITH COMPLEX HEALTH CARE CONDITIONS. SERVICES INCLUDE STEP-DOWN NURSING SERVICES; EARLY CHILDHOOD EDUCATIONAL ENRICHMENT GROUPS; INDIVIDUALIZED SPECIAL EDUCATION SERVICES; PRESCHOOL AND/OR EARLY INTERVENTION THERAPIES; AND FAMILY SUPPORT SERVICES FOR CHILDREN AGES 4 MONTHS TO 5 YEARS OF AGE. DAYSTAR SUPPORTS UP TO 56 ENROLLEES DAILY, AND IS THE ONLY FULL-DAY PROGRAM AVAILABLE TO CHILDREN WHO HAVE COMPLEX MEDICAL CONDITIONS; REQUIRE ONGOING NURSING SUPERVISION AND CARE, AND/OR RELY ON MEDICAL DEVICES TO COMPENSATE FOR LIFE-SUSTAINING ACTIVITIES. DAYSTAR'S INNOVATIVE PROGRAM HAS BEEN RECOGNIZED BY NYS OFFICE OF CHILDREN AND FAMILY SERVICES AS A "BEST PRACTICES MODEL AND IS LAUDED AS A COST-EFFECTIVE ALTERNATIVE TO HOME-BASED HEALTH CARE SERVICES; RECOGNIZED AS A PROVEN PREVENTION STRATEGY TO MINIMIZE HOSPITALIZATION, AND AN ECONOMIC CATALYST, HELPING FAMILIES PRESERVE THEIR ECONOMIC INDEPENDENCE AND RETURN TO THE WORKFORCE.

  • DAYSTAR KIDS PROVIDES YEAR-ROUND, FULL-DAY SPECIALIZED PEDIATRIC RESPITE SERVICES TO CHILDREN WITH COMPLEX HEALTH CARE CONDITIONS RANGING IN AGE FROM 4 MONTHS TO 5 YEARS OLD AND EMPOWERS CHILDREN WITH THE SKILLS THEY NEED TO SUCCESSFULLY ENTER KINDERGARTEN WITH THEIR PEERS. IN 2022, DAYSTAR KIDS PROVIDED SKILLED PEDIATRIC NURSING SERVICES, EARLY CHILDHOOD AND SPECIAL EDUCATION PROGRAMS, HEALTH CARE COORDINATION, AND RELATED THERAPIES ONSITE TO 60 ENROLLEES FROM 13 DIFFERENT SCHOOL DISTRICTS IN THE GREATER ROCHESTER AREA. DAYSTAR KIDS' MULTIDISCIPLINARY PROGRAMS DAYSTAR KIDS HAVE AN AVERAGE OF 7 PRIMARY DIAGNOSES AND REQUIRE ONGOING NURSING SUPERVISION AND SUPPORT TO MAINTAIN THEIR HEALTH STATUS AND AVOID HOSPITALIZATION.

    Expenses $2,341,471 · Revenue $2,129,917

  • DAYSTAR'S FAMILY SUPPORT SERVICES PROGRAM IS SUPPORTED BY NEW YORK STATE OFFICE FOR PEOPLE WITH WITH DEVELOPMENTAL DISABILITIES AND PROVIDES ESSENTIAL CARE COORDINATION SERVICES, TRANSITIONAL SUPPORT SERVICES, PREVENTIVE HEALTHCARE SERVICES, HEALTHCARE NAVIGATION ASSISTANCE, FAMILY ADVOCACY, AND ESSENTIAL EDUCATION AND TRAINING SERVICES TO UP TO 86 FAMILIES ANNUALLY WHO CARE FOR AN INFANT OR CHILD WITH COMPLEX HEALTHCARE CONDITIONS AND DEVELOPMENTAL DISABILITIES. DURING 2022, DAYSTAR SERVED 56 FAMILIES WHO WERE APPROVED FOR THIS SERVICE, EMPOWERING THEM TO EFFECTIVELY ADVOCATE AND MANAGE THEIR CHILD'S COMPLEX HEALTH CARE, SOCIAL-EMOTIONAL, AND EDUCATIONAL GOALS, WHILE SUPPORTING THEIR FAMILY'S NEED FOR ADDITIONAL CARE COORDINATION SUPPORTS.

    Expenses $185,206 · Revenue $185,206

  • DAYSTAR'S EARLY INTERVENTION AND PRESCHOOL SPECIAL SERVICES PROGRAM CONSISTS OF A DEDICATED TEAM OF RELATED PROVIDERS EXPERT IN WORKING WITH CHILDREN WITH MEDICAL COMPLEXITY TO PROVIDE ASSESSMENTS, EVALUATION SERVICES, AND THERAPY SERVICES. THIS PROGRAM IMPROVES SERVICE INTEGRATION, LINKING DAYSTAR'S CURRICULUM, THERAPEUTIC GOALS, AND HEALTH CARE DIRECTIVES TO SUPPORT THE INDIVIDUALIZED NEEDS OF EACH PATIENT, AND CREATES UNPARALLELED CONTINUITY OF CARE BY MINIMIZING PATIENT TRANSITIONS AND DISRUPTION OF SERVICES.

    Expenses $307,476 · Revenue $307,476

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Mike Buckley

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Michael Schwabl

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Katy Dimarco Ms Ed

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Steve McCluski

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Andrew Pluta

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Sr Beth Sutter

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Mike Hess

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Kathy Rideout EdD Pnp-Bc Fnap

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Adam Smith

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Gabriel Chodak

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Lindsay Prichard Fox

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Phil Castleberry

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Darcy Mucci

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Mason Grower IV

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Amber Foster

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Kim Condon

    EXECUTIVE DIRECTOR

    Total calculated
    $159,384
    From this org
    $140,493
    From related orgs
    $0
    Other
    $18,891
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $140,493
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $18,891
    Filer's total
    $159,384

  • Diane Tucker

    DIRECTOR OF FINANCE

    Total calculated
    $109,019
    From this org
    $90,128
    From related orgs
    $0
    Other
    $18,891
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

None.

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
22 February 2023
IRS schema version
2022v4.1
Source object
202300559349300020

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.