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DAYSTAR FOR MEDICALLY FRAGILE CHILDREN INC

EIN 26-3275794 ROCHESTER, NY

Browse the largest nonprofits in New York

Revenue 2024
$10,436,251
Expenses 2024
$4,001,537

Program services were 76.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
P40
Classification
1000
Street
700 LAC DE VILLE BLVD

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

DAYSTAR KIDS PROMOTES THE HEALTH CARE, THERAPEUTIC, EDUCATIONAL, AND SOCIAL GOALS FOR CHILDREN WHOSE DEVELOPMENT IS DISRUPTED BY HOSPITALIZATION AND/OR TREATMENT FOR THEIR COMPLEX HEALTH CARE CONDITIONS.

Activities or mission (Part I)

SEE SCHEDULE O.

  • DAYSTAR KIDS PROVIDES YEAR-ROUND, FULL-DAY SPECIALIZED PEDIATRIC AND DEVELOPMENTAL SERVICES TO CHILDREN WITH COMPLEX HEALTH CARE CONDITIONS RANGING IN AGE FROM 4 MONTHS TO 5 YEARS OLD AND EMPOWERS CHILDREN WITH THE SKILLS THEY NEED TO SUCCESSFULLY ENTER KINDERGARTEN WITH THEIR PEERS. IN 2024, DAYSTAR KIDS PROVIDED SKILLED PEDIATRIC NURSING SERVICES, EARLY CHILDHOOD AND SPECIAL EDUCATION PROGRAMS, HEALTH CARE COORDINATION, FAMILY SUPPORT SERVICES, AND RELATED THERAPIES ONSITE TO 60 ENROLLEES FROM 15 SCHOOL DISTRICTS WITHIN 5 COUNTIES IN THE GREATER ROCHESTER AREA.

    Expenses $2,458,481 · Revenue $2,402,469

  • DAYSTAR KIDS' FAMILY SUPPORT SERVICES PROGRAM IS SUPPORTED BY NEW YORK STATE OFFICE FOR PEOPLE WITH WITH DEVELOPMENTAL DISABILITIES AND PROVIDES ESSENTIAL CARE COORDINATION SERVICES, TRANSITIONAL SUPPORT SERVICES, PREVENTIVE HEALTHCARE SERVICES, HEALTHCARE NAVIGATION ASSISTANCE, FAMILY ADVOCACY, AND ESSENTIAL EDUCATION AND TRAINING SERVICES TO UP TO 50 FAMILIES ANNUALLY WITH AN INFANT OR CHILD WITH COMPLEX HEALTHCARE CONDITIONS AND DEVELOPMENTAL DISABILITIES. DURING 2024, DAYSTAR SERVED 57 FAMILIES WHO WERE APPROVED FOR THIS SERVICE, EMPOWERING THEM TO EFFECTIVELY ADVOCATE AND MANAGE THEIR CHILD'S COMPLEX HEALTH CARE, SOCIAL-EMOTIONAL, AND EDUCATIONAL GOALS, WHILE SUPPORTING THEIR FAMILY'S NEED FOR ADDITIONAL CARE COORDINATION SUPPORTS.

    Expenses $205,812 · Revenue $205,812

  • DAYSTAR KIDS' EARLY INTERVENTION AND PRESCHOOL SPECIAL SERVICES PROGRAM CONSISTS OF A DEDICATED TEAM OF RELATED PROVIDERS EXPERT IN WORKING WITH CHILDREN WITH MEDICAL COMPLEXITY TO PROVIDE ASSESSMENTS, EVALUATION SERVICES, AND THERAPY SERVICES. THIS PROGRAM IMPROVES SERVICE INTEGRATION, LINKING THE AGENCY'S CURRICULUM, THERAPEUTIC GOALS, AND HEALTH CARE DIRECTIVES TO SUPPORT THE INDIVIDUALIZED NEEDS OF EACH ENROLLEE, AND CREATES UNPARALLELED CONTINUITY OF CARE BY MINIMIZING PATIENT TRANSITIONS AND DISRUPTION OF SERVICES. DURING 2024, DAYSTAR PROVIDED THESE SERVICES TO 62 ENROLLEES.

    Expenses $396,143 · Revenue $396,143

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Kim Condon

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $183,803
    From this org
    $151,848
    From related orgs
    $0
    Other
    $31,955
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $151,848
    Bonus
    $0
    Other
    $0
    Deferred
    $7,907
    Nontaxable benefits
    $24,048
    Filer's total
    $183,803
  • Lisa Didomenico

    CHIEF PROGRAM OFFICER

    Total calculated
    $165,281
    From this org
    $148,250
    From related orgs
    $0
    Other
    $17,031
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $148,250
    Bonus
    $0
    Other
    $0
    Deferred
    $7,460
    Nontaxable benefits
    $9,571
    Filer's total
    $165,281
  • Nicole Viggiano

    CHIEF HUMAN RESOURCES OFFICER

    Total calculated
    $125,831
    From this org
    $124,462
    From related orgs
    $0
    Other
    $1,369
    Hours/week
    40
  • Fredrick Moore

    CHIEF FINANCIAL OFFICER

    Total calculated
    $53,481
    From this org
    $50,384
    From related orgs
    $0
    Other
    $3,097
    Hours/week
    40
  • Diane Tucker

    CHIEF FINANCIAL OFFICER

    Total calculated
    $23,168
    From this org
    $18,127
    From related orgs
    $0
    Other
    $5,041
    Hours/week
    40
  • Mike Buckley

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1
  • Michael Schwabl

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1
  • Steve McCluski

    TREASURER

    Total calculated
    $0
    Hours/week
    1
  • Phil Castleberry

    SECRETARY

    Total calculated
    $0
    Hours/week
    1
  • Andrew Pluta

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Sr Beth Sutter

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Mike Hess

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Kathy Rideout EdD Pnp-Bc Fnap

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Adam Smith

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Gabriel Chodak

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Lindsay Prichard Fox

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Mason Grower IV

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Amber Foster

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Jesse Hamlin

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $10,436,251
    Expenses
    $4,001,537
    Contributions
    $7,361,855
    Grants paid
    $0
  • 2023
    Revenue
    $4,780,110
    Expenses
    $4,082,589
    Contributions
    $1,629,781
    Grants paid
    $0
  • 2022
    Revenue
    $4,401,041
    Expenses
    $3,356,452
    Contributions
    $1,693,832
    Grants paid
    $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $8,458,982
    Expenses
    $2,587,120
    Assets (EOY)
    $9,502,625
  • 2020 · 990

    Revenue
    $2,096,639
    Expenses
    $1,918,288
    Assets (EOY)
    $2,873,248
  • 2019 · 990

    Revenue
    $2,417,214
    Expenses
    $2,274,323
    Assets (EOY)
    $2,820,662
  • 2018 · 990

    Revenue
    $2,179,002
    Expenses
    $1,957,103
    Assets (EOY)
    $2,684,414
  • 2017 · 990

    Revenue
    $1,539,926
    Expenses
    $1,593,689
    Assets (EOY)
    $2,623,570

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.