Skip to content
Nonprofiteer
← DAYSTAR FOR MEDICALLY FRAGILE CHILDREN INC

Form 990 for tax year 2024

Filed by DAYSTAR FOR MEDICALLY FRAGILE CHILDREN INC.

Totals

Total revenue
$10,436,251
Total expenses
$4,001,537
Contributions and grants received
$7,361,855
Grants paid
$0
Program service revenue
$3,004,424
Investment income
$139,894
Other revenue
-$69,922
Total assets, end of year
$17,434,174
Total liabilities, end of year
$892,756
Net assets or fund balances, end of year
$16,541,418
Program services expenses (Part IX)
$3,060,436
Management and general expenses
$805,849
Fundraising expenses
$135,252
Program service expenses (Part III)
$3,060,436

Program services were 76.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $321,230

  • 1e · Government grants (contributions)

    $89,897

  • 1f · All other contributions, gifts and grants

    $6,950,728

  • 1g · Noncash contributions included above

    $1,035,387

  • 2a · Program service revenue: STATE AND LOCAL FUNDING

    total $3,004,424 · related or exempt $3,004,424

  • 3 · Investment income

    total $139,894 · excluded $139,894

  • 8a · Fundraising events: gross income

    $3,165

  • 8a · Fundraising events: contributions included on line 1c

    $321,230

  • 8b · Fundraising events: direct expenses

    $74,517

  • 8c · Net income from fundraising events

    total -$71,352 · excluded -$71,352

  • 11a · Other revenue: OTHER

    total $1,430 · excluded $1,430

  • 11e · Other revenue, total

    $1,430

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $260,451 · management and general $260,451

  • 7 · Other salaries and wages

    total $2,216,609 · program services $1,993,787 · management and general $167,085 · fundraising $55,737

  • 9 · Other employee benefits

    total $204,100 · program services $198,549 · fundraising $5,551

  • 10 · Payroll taxes

    total $221,489 · program services $182,444 · management and general $33,945 · fundraising $5,100

  • 11b · Fees: legal

    total $39,869 · management and general $39,869

  • 11c · Fees: accounting

    total $22,570 · management and general $22,570

  • 11g · Fees: other

    total $294,957 · program services $142,561 · management and general $118,796 · fundraising $33,600

  • 12 · Advertising and promotion

    total $50,724 · management and general $26,220 · fundraising $24,504

  • 13 · Office expenses

    total $13,367 · program services $1,291 · management and general $11,704 · fundraising $372

  • 14 · Information technology

    total $80,876 · program services $67,903 · management and general $12,636 · fundraising $337

  • 16 · Occupancy

    total $98,067 · program services $46,833 · management and general $50,702 · fundraising $532

  • 20 · Interest

    total $9,192 · program services $8,089 · management and general $1,011 · fundraising $92

  • 22 · Depreciation, depletion and amortization

    total $85,873 · program services $75,568 · management and general $9,446 · fundraising $859

  • 23 · Insurance

    total $49,100 · program services $43,208 · management and general $5,401 · fundraising $491

  • 24a · Other expenses: REPAIRS AND MAINTENANCE

    total $107,426 · program services $94,535 · management and general $11,817 · fundraising $1,074

  • 24b · Other expenses: RECRUITMENT AND TRAININ

    total $100,355 · program services $94,955 · management and general $5,400

  • 24c · Other expenses: PAYROLL SERVICE FEE

    total $43,958 · program services $35,964 · management and general $6,989 · fundraising $1,005

  • 24d · Other expenses: SUPPLIES

    total $37,070 · program services $37,070

  • 24e · All other expenses

    total $65,484 · program services $37,679 · management and general $21,807 · fundraising $5,998

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $377,715 · end of year $65,789

  • 2 · Savings and temporary cash investments

    beginning of year $264,555 · end of year $33,983

  • 3 · Pledges and grants receivable

    end of year $4,493,490

  • 4 · Accounts receivable

    beginning of year $313,454 · end of year $264,811

  • 9 · Prepaid expenses and deferred charges

    beginning of year $21,255 · end of year $17,500

  • 10a · Land, buildings and equipment: cost or other basis

    $6,114,774

  • 10b · Land, buildings and equipment: accumulated depreciation

    $1,045,224

  • 10c · Land, buildings and equipment, net

    beginning of year $5,009,319 · end of year $5,069,550

  • 11 · Investments: publicly traded securities

    beginning of year $4,791,264 · end of year $7,489,051

  • 17 · Accounts payable and accrued expenses

    beginning of year $149,110 · end of year $131,491

  • 19 · Deferred revenue

    beginning of year $555,790 · end of year $500,000

  • 23 · Secured mortgages and notes payable

    beginning of year $336,353 · end of year $261,265

  • 27 · Net assets without donor restrictions

    beginning of year $6,490,726 · end of year $8,243,096

  • 28 · Net assets with donor restrictions

    beginning of year $3,245,583 · end of year $8,298,322

Mission and programs · 2024

Mission

DAYSTAR KIDS PROMOTES THE HEALTH CARE, THERAPEUTIC, EDUCATIONAL, AND SOCIAL GOALS FOR CHILDREN WHOSE DEVELOPMENT IS DISRUPTED BY HOSPITALIZATION AND/OR TREATMENT FOR THEIR COMPLEX HEALTH CARE CONDITIONS.

Activities or mission (Part I)

SEE SCHEDULE O.

  • DAYSTAR KIDS PROVIDES YEAR-ROUND, FULL-DAY SPECIALIZED PEDIATRIC AND DEVELOPMENTAL SERVICES TO CHILDREN WITH COMPLEX HEALTH CARE CONDITIONS RANGING IN AGE FROM 4 MONTHS TO 5 YEARS OLD AND EMPOWERS CHILDREN WITH THE SKILLS THEY NEED TO SUCCESSFULLY ENTER KINDERGARTEN WITH THEIR PEERS. IN 2024, DAYSTAR KIDS PROVIDED SKILLED PEDIATRIC NURSING SERVICES, EARLY CHILDHOOD AND SPECIAL EDUCATION PROGRAMS, HEALTH CARE COORDINATION, FAMILY SUPPORT SERVICES, AND RELATED THERAPIES ONSITE TO 60 ENROLLEES FROM 15 SCHOOL DISTRICTS WITHIN 5 COUNTIES IN THE GREATER ROCHESTER AREA.

    Expenses $2,458,481 · Revenue $2,402,469

  • DAYSTAR KIDS' FAMILY SUPPORT SERVICES PROGRAM IS SUPPORTED BY NEW YORK STATE OFFICE FOR PEOPLE WITH WITH DEVELOPMENTAL DISABILITIES AND PROVIDES ESSENTIAL CARE COORDINATION SERVICES, TRANSITIONAL SUPPORT SERVICES, PREVENTIVE HEALTHCARE SERVICES, HEALTHCARE NAVIGATION ASSISTANCE, FAMILY ADVOCACY, AND ESSENTIAL EDUCATION AND TRAINING SERVICES TO UP TO 50 FAMILIES ANNUALLY WITH AN INFANT OR CHILD WITH COMPLEX HEALTHCARE CONDITIONS AND DEVELOPMENTAL DISABILITIES. DURING 2024, DAYSTAR SERVED 57 FAMILIES WHO WERE APPROVED FOR THIS SERVICE, EMPOWERING THEM TO EFFECTIVELY ADVOCATE AND MANAGE THEIR CHILD'S COMPLEX HEALTH CARE, SOCIAL-EMOTIONAL, AND EDUCATIONAL GOALS, WHILE SUPPORTING THEIR FAMILY'S NEED FOR ADDITIONAL CARE COORDINATION SUPPORTS.

    Expenses $205,812 · Revenue $205,812

  • DAYSTAR KIDS' EARLY INTERVENTION AND PRESCHOOL SPECIAL SERVICES PROGRAM CONSISTS OF A DEDICATED TEAM OF RELATED PROVIDERS EXPERT IN WORKING WITH CHILDREN WITH MEDICAL COMPLEXITY TO PROVIDE ASSESSMENTS, EVALUATION SERVICES, AND THERAPY SERVICES. THIS PROGRAM IMPROVES SERVICE INTEGRATION, LINKING THE AGENCY'S CURRICULUM, THERAPEUTIC GOALS, AND HEALTH CARE DIRECTIVES TO SUPPORT THE INDIVIDUALIZED NEEDS OF EACH ENROLLEE, AND CREATES UNPARALLELED CONTINUITY OF CARE BY MINIMIZING PATIENT TRANSITIONS AND DISRUPTION OF SERVICES. DURING 2024, DAYSTAR PROVIDED THESE SERVICES TO 62 ENROLLEES.

    Expenses $396,143 · Revenue $396,143

As filed on the 2024 return.

Listed in Part VII

  • Kim Condon

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $183,803
    From this org
    $151,848
    From related orgs
    $0
    Other
    $31,955
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $151,848
    Bonus
    $0
    Other
    $0
    Deferred
    $7,907
    Nontaxable benefits
    $24,048
    Filer's total
    $183,803
  • Lisa Didomenico

    CHIEF PROGRAM OFFICER

    Total calculated
    $165,281
    From this org
    $148,250
    From related orgs
    $0
    Other
    $17,031
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $148,250
    Bonus
    $0
    Other
    $0
    Deferred
    $7,460
    Nontaxable benefits
    $9,571
    Filer's total
    $165,281
  • Nicole Viggiano

    CHIEF HUMAN RESOURCES OFFICER

    Total calculated
    $125,831
    From this org
    $124,462
    From related orgs
    $0
    Other
    $1,369
    Hours/week
    40
  • Fredrick Moore

    CHIEF FINANCIAL OFFICER

    Total calculated
    $53,481
    From this org
    $50,384
    From related orgs
    $0
    Other
    $3,097
    Hours/week
    40
  • Diane Tucker

    CHIEF FINANCIAL OFFICER

    Total calculated
    $23,168
    From this org
    $18,127
    From related orgs
    $0
    Other
    $5,041
    Hours/week
    40
  • Mike Buckley

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1
  • Michael Schwabl

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1
  • Steve McCluski

    TREASURER

    Total calculated
    $0
    Hours/week
    1
  • Phil Castleberry

    SECRETARY

    Total calculated
    $0
    Hours/week
    1
  • Andrew Pluta

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Sr Beth Sutter

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Mike Hess

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Kathy Rideout EdD Pnp-Bc Fnap

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Adam Smith

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Gabriel Chodak

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Lindsay Prichard Fox

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Mason Grower IV

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Amber Foster

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Jesse Hamlin

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 3
THE EXECUTIVE COMMITTEE OF THE BOARD CONDUCTS A COMPENSATION STUDY EVERY FEW YEARS AS PART OF THE DETERMINATION OF THE CEO'S COMPENSATION, WITH ANNUAL "COST OF LIVING" ADJUSTMENTS IN THE YEARS WHEN A STUDY IS NOT CONDUCTED.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
7 November 2025
IRS schema version
2024v5.2
Source object
202543119349302044

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.