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← FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC

Form 990 for tax year 2024

Filed by FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC.

Totals

Total revenue
$587,533
Total expenses
$366,039
Contributions and grants received
$379,294
Grants paid
$10,000
Program service revenue
$173,659
Investment income
$34,580
Other revenue
$0
Total assets, end of year
$845,339
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$845,339
Program services expenses (Part IX)
$307,528
Management and general expenses
$58,511
Fundraising expenses
$0
Program service expenses (Part III)
$307,528

Program services were 84.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1e · Government grants (contributions)

    $79,296

  • 1f · All other contributions, gifts and grants

    $299,998

  • 2a · Program service revenue: CONTINUING EDUCATION

    total $100,000 · related or exempt $100,000

  • 2b · Program service revenue: MEMBERSHIP FEES

    total $73,659 · related or exempt $73,659

  • 3 · Investment income

    total $34,580 · excluded $34,580

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $10,000 · program services $10,000

  • 5 · Compensation of officers, directors and key employees

    total $145,834 · program services $134,167 · management and general $11,667

  • 7 · Other salaries and wages

    total $16,560 · program services $15,235 · management and general $1,325

  • 8 · Pension plan contributions

    total $4,140 · program services $4,140

  • 10 · Payroll taxes

    total $10,192 · program services $9,377 · management and general $815

  • 11b · Fees: legal

    total $2,600 · management and general $2,600

  • 11c · Fees: accounting

    total $9,090 · management and general $9,090

  • 11g · Fees: other

    total $1,191 · management and general $1,191

  • 12 · Advertising and promotion

    total $566 · management and general $566

  • 13 · Office expenses

    total $5,719 · management and general $5,719

  • 16 · Occupancy

    total $19,200 · management and general $19,200

  • 23 · Insurance

    total $1,432 · management and general $1,432

  • 24a · Other expenses: PHYSICAN EDUCATION

    total $127,076 · program services $127,076

  • 24b · Other expenses: FAMILY SUPPORT

    total $7,533 · program services $7,533

  • 24c · Other expenses: STRIPE AND PAYPAL FEES

    total $4,906 · management and general $4,906

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $79,293 · end of year $63,098

  • 2 · Savings and temporary cash investments

    beginning of year $40,794

  • 9 · Prepaid expenses and deferred charges

    beginning of year $38,500

  • 11 · Investments: publicly traded securities

    beginning of year $545,948 · end of year $782,241

  • 17 · Accounts payable and accrued expenses

    beginning of year $115 · end of year $0

  • 19 · Deferred revenue

    beginning of year $79,294 · end of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $625,126 · end of year $845,339

Mission and programs · 2024

Mission

NEUROIMMUNE FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UNPRECEDENTED PACE

Activities or mission (Part I)

EARNED GUIDESTAR'S PLATINUM SEAL OF TRANSPARENCY, AN HONOR HELD BY FEWER THAN 1% OF NONPROFITS, FOR THE PAST SIX YEARS. NEUROIMMUNE FOUNDATION IS ALSO THE ONLY PANS-FOCUSED NONPROFIT TO RECEIVE CHARITY NAVIGATOR'S HIGHEST RATING, 4/4 STARS WITH A 99% RATING.

  • PHYSICIAN EDUCATION PUT INTO PLACE A BRAND NEW, COMPREHENSIVE EDUCATIONAL MODEL IN COLLABORATION WITH PROJECT ECHO WITH ACCREDITED CME DESIGNED TO EQUIP PHYSICIANS TO EVALUATE AND TREAT CHILDREN, YOUTH, AND ADULTS WITH PSYCHIATRIC SYMPTOMS DUE TO AN UNDERLYING NEUROIMMUNE CONDITION (PANS, PANDAS, ENCEPHALITIS, ETC). THE CME PROGRAM FEATURES ONE-HOUR WEEKLY MEETINGS FEATURING SHORT DIDACTICS BY 8 WORLD-RENOWNED EXPERT PHYSICIANS FROM LEADING UNIVERSITY PROGRAMS FOLLOWED BY CASE PRESENTATIONS. DETAILED TREATMENT AND DIAGNOSIS GUIDES TO SUPPORT PHYSICIANS AS WELL AS FREE CONTINUING MEDICAL EDUCATION, AND FREE ACCESS TO EXPERT CONSULTATION PANEL REACHED OVER 10,000 PHYSICIANS IN THE UNITED STATES AND ABROAD. CONTINUED SUSTAINED OUTREACH TO 150+ RESIDENCY PROGRAMS IN THE US WITH FREE ACCREDITED CONTINUING MEDICAL EDUCATION. WE HAVE NOW EDUCATED 6500+ CLINICIANS IN 70+ COUNTRIES AROUND THE WORLD WITH ACCREDITED CME - 90% OF THEM COMPLETELY FREE OF CHARGE IN AN EFFORT TO IMPROVE PATIENT OUTCOMES. EXPENSES INCLUDED ACCREDITATION, MARKETING, PLATFORM FEES, HONORARIUM, PRINTING, AND A ROBUST OUTREACH.

    Expenses $281,526 · Revenue $109,745

  • OFFERED FREE SUPPORT AND HIGH QUALITY EDUCATION TO 30K + PATIENTS AND FAMILIES. CONNECTED 2000+ PATIENTS/FAMILIES WITH CLINICIANS AND GREW OUR NETWORK OF CLINICIANS WHO CAN SUPPORT PATIENTS/FAMILIES. FAMILY SUPPORT PROGRAMS INCLUDED RUNNING A PRIVATE GROUP FOR 6500 PATIENTS AND FAMILIES, PROVIDING MODERATION AND SUPPORT IN THAT GROUP, RESPONDING TO EMAILS TO ASSIST WITH FINDING PHYSICIANS, PROVIDING EDUCATIONAL WEBINARS WITH THERAPISTS AND PHYSICIANS. COSTS INCLUDED PLATFORM FEES, HONORARIUM, MATERIALS.

    Expenses $16,002 · Revenue $63,914

  • FUNDED A BIOSTATISTICIAN AT HARVARD TO COMPLETE WORK ON ARFID RELATED TO PANS.

    Expenses $10,000 · Grants $10,000

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Johanna Conkey

    PRESIDENT

    Total calculated
    $145,834
    From this org
    $116,667
    From related orgs
    $0
    Other
    $29,167
    Hours/week
    40

  • Dr Pierre Kory

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Travis Conkey

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Johnna Workman

    OFFICER

    Total calculated
    $0
    Hours/week
    1

  • Leslie Phillips

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

  • ALEX MANFULL FUND

    $10,000

    TO FUND A BIOSTATISTICIAN AT HARVARD UNIVERSITY TO COMPLETE WORK ON ARFID RELATED TO PANS.

Provenance

Return type
form_990
Tax year
2024
Filed
14 February 2025
IRS schema version
2024v5.0
Source object
202520499349301032

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