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FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC

EIN 82-3128162 ST AUGUSTINE, FL

Revenue 2025
$482,434
Expenses 2025
$315,390

Program services were 82.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G99
Classification
1280
Street
135 JENKINS ST STE 105B PMB 117

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

Mission

NEUROIMMUNE FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UNPRECEDENTED PACE

Activities or mission (Part I)

EARNED GUIDESTAR'S PLATINUM SEAL OF TRANSPARENCY, AN HONOR HELD BY FEWER THAN 1% OF NONPROFITS, FOR THE PAST SIX YEARS. NEUROIMMUNE FOUNDATION IS ALSO THE ONLY PANS-FOCUSED NONPROFIT TO RECEIVE CHARITY NAVIGATOR'S HIGHEST RATING, 4/4 STARS WITH A 99% RATING.

  • PHYSICIAN EDUCATION - IN JANUARY 2025, LAUNCHED COMPREHENSIVE EDUCATIONAL MODEL IN COLABORATION WITH PROJECT ECHO WITH ACCREDITED CME DISGINED TO EQUIP PHYSICIANS TO EVALUATE AND TREAT CHILDREN, YOUTH, AND ADULTS WITH PSYCHIATRIC SYMPTOMS DUE TO AN UNDERLYING NEUROIMMUNE CONDITION (PANS, PANDAS, ENCEPHALITIS, ETC). THE FREE CME PROGRAM FEATURED ONE-HOUR WEEKLY MEETINGS FEATURING SHORT DIDACTICS BY 8 WORLD-RENOWNED EXPERT PHYSICIANS FROM LEADING UNIVERSITY PROGRAMS FOLLOWED BY CASE PRESENTATIONS. DETAILED TREATMENT AND DIAGNOSIS GUIDES TO SUPPORT PHYSICIANS REACHED OVER 25,000 PHYSICIANS IN THE UNITED STATES AND ABROAD. OVER 200,000 CLINICIANS WORLDWIDE WERE OFFERED FREE CME. CONTINUED SUSTAINED OUTREACH TO 150+ RESIDENCY PROGRAMS IN THE US WITH FREE ACCREDITED CONTINUING MEDICAL EDUCATION. WE HAVE NOW EDUCATED 7000+ CLINICIANS IN 70+ COUNTRIES AROUND THE WORLD WITH ACCREDITED CME - 90% OF THEM COMPLETELY FREE OF CHARGE IN AN EFFORT TO IMPROVE PATIENT OUTCOMES. EDUCATED AT THE NATIONAL AAP MEETING, OFFERING FREE RESOURCES TO CLINICIANS. PUBLISHED OUR SECOND PEER-REVIEWED SPECIAL ISSUE IN DEVELOPMENTAL NEUROSCIENCE FOCUSING ON ADVANCES IN PANS AND RELATED NEUROIMMUE DISORDERS. EXPENSES INCLUDED ACCREDITATION, MARKETING, PLATFORM FEES, HONORARIUM, TRAVEL TO AAP, PRINTING, AND A ROBUST OUTREACH.

    Expenses $204,538 · Revenue $207,579

  • OFFERED FREE SUPPORT AND HIGH QUALITY EDUCATION TO 33K + PATIENTS AND FAMILIES. DEVELOPED THE WORLD'S LARGEST PANS/PANDAS CLINICIAN DIRECTORY FOR FAMILIES. CONNECTED 4000+ PATIENTS/FAMILIES WITH CLINICIANS AND GREW OUR NETWORK OF CLINICIANS WHO CAN SUPPORT PATIENTS/FAMILIES. FAMILY SUPPORT PROGRAMS INCLUDED RUNNING A PRIVATE GROUP FOR 7,500 PATIENTS AND FAMILIES, PROVIDING MODERATION AND SUPPORT IN THAT GROUP, RESPONDING TO EMAILS TO ASSIST WITH FINDING PHYSICIANS, PROVIDING EDUCATIONAL WEBINARS WITH THERAPISTS AND PHYSICIANS. COSTS INCLUDED PLATFORM FEES, HONORARIUM, MATERIALS.

    Expenses $6,954 · Revenue $46,897

  • FUNDED PROFESSOR RUSSELL DALE'S PANS RESEARCH AT UNIV. OF SYDNEY.

    Expenses $49,195 · Grants $49,195

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • JOHANNA CONKEY

    PRESIDENT

    Total calculated
    $145,834
    From this org
    $116,667
    From related orgs
    $0
    Other
    $29,167
    Hours/week
    40

  • DR PIERRE KORY

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • TRAVIS CONKEY

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • JOHNNA WORKMAN

    OFFICER

    Total calculated
    $0
    Hours/week
    1

  • LESLIE PHILLIPS

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $482,434
    Expenses
    $315,390
    Contributions
    $198,766
    Grants paid
    $49,195
  • 2024
    Revenue
    $587,533
    Expenses
    $366,039
    Contributions
    $379,294
    Grants paid
    $10,000
  • 2023
    Revenue
    $849,087
    Expenses
    $794,367
    Contributions
    $677,116
    Grants paid
    $147,423
  • 2022
    Revenue
    $730,417
    Expenses
    $566,880
    Contributions
    $559,919
    Grants paid
    $116,152

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $438,321
    Expenses
    $330,135
    Assets (EOY)
    $398,931

  • 2020 · 990

    Revenue
    $262,710
    Expenses
    $152,919
    Assets (EOY)
    $288,083

  • 2020 · 990

    Revenue
    $262,710
    Expenses
    $152,919
    Assets (EOY)
    $288,083

  • 2019 · 990

    Revenue
    $213,953
    Expenses
    $42,072
    Assets (EOY)
    $180,278

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2018

Tax period
1 January 2018 to 31 December 2018
Principal officer
Anna Conkey
Mailing address
PO Box 25Colgate WI 53017
Website
neuroimmune.org

As filed, from the IRS e-Postcard file of 19 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 23 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.