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← FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC

Form 990 for tax year 2022

Filed by FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC.

Totals

Total revenue
$730,417
Total expenses
$566,880
Contributions and grants received
$559,919
Grants paid
$116,152
Program service revenue
$170,345
Investment income
$153
Other revenue
$0
Total assets, end of year
$1,132,170
Total liabilities, end of year
$584,213
Net assets or fund balances, end of year
$547,957
Program services expenses (Part IX)
$512,892
Management and general expenses
$53,988
Fundraising expenses
$0
Program service expenses (Part III)
$512,892

Program services were 90.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1e · Government grants (contributions)

    $413,682

  • 1f · All other contributions, gifts and grants

    $146,237

  • 2a · Program service revenue: CONTINUING EDUCATION

    total $121,530 · related or exempt $121,530

  • 2b · Program service revenue: MEMBERSHIP FEES

    total $48,815 · related or exempt $48,815

  • 3 · Investment income

    total $153 · related or exempt $153

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $116,152 · program services $116,152

  • 5 · Compensation of officers, directors and key employees

    total $143,127 · program services $141,786 · management and general $1,341

  • 7 · Other salaries and wages

    total $19,389 · program services $19,206 · management and general $183

  • 8 · Pension plan contributions

    total $5,057 · program services $5,057

  • 10 · Payroll taxes

    total $10,591 · program services $10,591

  • 11b · Fees: legal

    total $12,131 · management and general $12,131

  • 11c · Fees: accounting

    total $3,776 · management and general $3,776

  • 13 · Office expenses

    total $9,306 · program services $307 · management and general $8,999

  • 16 · Occupancy

    total $19,200 · management and general $19,200

  • 19 · Conferences, conventions and meetings

    total $100 · management and general $100

  • 23 · Insurance

    total $1,307 · management and general $1,307

  • 24a · Other expenses: PHYSICAN EDUCATION

    total $212,261 · program services $212,261

  • 24b · Other expenses: FAMILY SUPPORT

    total $7,532 · program services $7,532

  • 24c · Other expenses: STRIPE AND PAYPAL FEES

    total $6,951 · management and general $6,951

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $398,931 · end of year $520,633

  • 2 · Savings and temporary cash investments

    end of year $611,537

  • 17 · Accounts payable and accrued expenses

    end of year $46,368

  • 19 · Deferred revenue

    end of year $537,845

  • 27 · Net assets without donor restrictions

    beginning of year $398,931 · end of year $547,957

  • 28 · Net assets with donor restrictions

    beginning of year $0 · end of year $0

Mission and programs · 2022

Mission

NEUROIMMUNE FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UNPRECEDENTED PACE

Activities or mission (Part I)

ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UPRECEDENTED PACE

  • CONTINUING MEDICAL EDUCATION SERIES REACHED ROUGHLY 2,000 PHYSICIANS IN THE UNITED STATES AND ABROAD, EDUCATING THEM ON NEUROIMMUNE DISORDERS INCLUDING PANS AND PANDAS. EXPENSES INCLUDE ACCREDITATION, MARKETING, PLATFORM FEES, PROGRAM SALARIES, HONORARIUM, GRAPHIC DESIGN, ETC.

    Expenses $385,679 · Revenue $121,530

  • FAMILY SUPPORT PROGRAMS INCLUDED THE LAUNCHING OF NEARLY 40 DIFFERENT CHAPTERS FOR PEER SUPPORT VARIOUS WEBINARS HOSTED BY FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS FEATURING THERAPISTS AND TOP EXPERT PHYSICIANS IN THE FIELD OF NEUROIMMUNE DISORDERS. COSTS ASSOCIATED INCLUDED SPEAKER HONORARIUM, PLATFORM FEES, MATERIALS. REVENUE INCLUDED MEMBERSHIP FEES.

    Expenses $11,061 · Revenue $48,968

  • $100,000 RESEARCH GIFT TO STANFORD UNIVERSITY FOR STUDYING A PLAQUE MICROBIOME FOR USE IN PANS.

    Expenses $116,152 · Grants $116,152

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Johanna Conkey

    PRESIDENT

    Total calculated
    $143,127
    From this org
    $114,500
    From related orgs
    $0
    Other
    $28,627
    Hours/week
    40

  • Dr Amy Malik

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Dr Pierre Kory

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Travis Conkey

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Dr Anju Singh

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Leslie Phillips

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
13 November 2023
IRS schema version
2022v5.0
Source object
202333179349306803

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