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← FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC

Form 990 for tax year 2025

Filed by FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC.

Totals

Total revenue
$482,434
Total expenses
$315,390
Contributions and grants received
$198,766
Grants paid
$49,195
Program service revenue
$254,476
Investment income
$29,192
Other revenue
$0
Total assets, end of year
$1,028,283
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$1,028,283
Program services expenses (Part IX)
$260,687
Management and general expenses
$54,703
Fundraising expenses
$0
Program service expenses (Part III)
$260,687

Program services were 82.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $198,766

  • 2a · Program service revenue: CONTINUING EDUCATION

    total $200,000 · related or exempt $200,000

  • 2b · Program service revenue: MEMBERSHIP FEES

    total $54,476 · related or exempt $54,476

  • 3 · Investment income

    total $29,192 · excluded $29,192

Functional expenses

Part IX, the statement of functional expenses.

  • 3 · Grants to foreign organizations and individuals

    total $49,195 · program services $49,195

  • 5 · Compensation of officers, directors and key employees

    total $145,834 · program services $134,167 · management and general $11,667

  • 7 · Other salaries and wages

    total $8,065 · program services $7,420 · management and general $645

  • 8 · Pension plan contributions

    total $2,020 · program services $1,858 · management and general $162

  • 10 · Payroll taxes

    total $9,542 · program services $8,779 · management and general $763

  • 11b · Fees: legal

    total $1,176 · management and general $1,176

  • 11c · Fees: accounting

    total $4,867 · management and general $4,867

  • 13 · Office expenses

    total $9,795 · management and general $9,795

  • 16 · Occupancy

    total $19,200 · management and general $19,200

  • 19 · Conferences, conventions and meetings

    total $1,329 · management and general $1,329

  • 23 · Insurance

    total $1,183 · management and general $1,183

  • 24a · Other expenses: PHYSICAN EDUCATION

    total $50,467 · program services $50,467

  • 24b · Other expenses: AAP

    total $6,811 · program services $6,811

  • 24c · Other expenses: STRIPE AND PAYPAL FEES

    total $3,916 · management and general $3,916

  • 24d · Other expenses: FAMILY SUPPORT

    total $1,990 · program services $1,990

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $63,098 · end of year $67,079

  • 11 · Investments: publicly traded securities

    beginning of year $782,241 · end of year $961,204

  • 27 · Net assets without donor restrictions

    beginning of year $845,339 · end of year $1,028,283

Mission and programs · 2025

Mission

NEUROIMMUNE FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UNPRECEDENTED PACE

Activities or mission (Part I)

EARNED GUIDESTAR'S PLATINUM SEAL OF TRANSPARENCY, AN HONOR HELD BY FEWER THAN 1% OF NONPROFITS, FOR THE PAST SIX YEARS. NEUROIMMUNE FOUNDATION IS ALSO THE ONLY PANS-FOCUSED NONPROFIT TO RECEIVE CHARITY NAVIGATOR'S HIGHEST RATING, 4/4 STARS WITH A 99% RATING.

  • PHYSICIAN EDUCATION - IN JANUARY 2025, LAUNCHED COMPREHENSIVE EDUCATIONAL MODEL IN COLABORATION WITH PROJECT ECHO WITH ACCREDITED CME DISGINED TO EQUIP PHYSICIANS TO EVALUATE AND TREAT CHILDREN, YOUTH, AND ADULTS WITH PSYCHIATRIC SYMPTOMS DUE TO AN UNDERLYING NEUROIMMUNE CONDITION (PANS, PANDAS, ENCEPHALITIS, ETC). THE FREE CME PROGRAM FEATURED ONE-HOUR WEEKLY MEETINGS FEATURING SHORT DIDACTICS BY 8 WORLD-RENOWNED EXPERT PHYSICIANS FROM LEADING UNIVERSITY PROGRAMS FOLLOWED BY CASE PRESENTATIONS. DETAILED TREATMENT AND DIAGNOSIS GUIDES TO SUPPORT PHYSICIANS REACHED OVER 25,000 PHYSICIANS IN THE UNITED STATES AND ABROAD. OVER 200,000 CLINICIANS WORLDWIDE WERE OFFERED FREE CME. CONTINUED SUSTAINED OUTREACH TO 150+ RESIDENCY PROGRAMS IN THE US WITH FREE ACCREDITED CONTINUING MEDICAL EDUCATION. WE HAVE NOW EDUCATED 7000+ CLINICIANS IN 70+ COUNTRIES AROUND THE WORLD WITH ACCREDITED CME - 90% OF THEM COMPLETELY FREE OF CHARGE IN AN EFFORT TO IMPROVE PATIENT OUTCOMES. EDUCATED AT THE NATIONAL AAP MEETING, OFFERING FREE RESOURCES TO CLINICIANS. PUBLISHED OUR SECOND PEER-REVIEWED SPECIAL ISSUE IN DEVELOPMENTAL NEUROSCIENCE FOCUSING ON ADVANCES IN PANS AND RELATED NEUROIMMUE DISORDERS. EXPENSES INCLUDED ACCREDITATION, MARKETING, PLATFORM FEES, HONORARIUM, TRAVEL TO AAP, PRINTING, AND A ROBUST OUTREACH.

    Expenses $204,538 · Revenue $207,579

  • OFFERED FREE SUPPORT AND HIGH QUALITY EDUCATION TO 33K + PATIENTS AND FAMILIES. DEVELOPED THE WORLD'S LARGEST PANS/PANDAS CLINICIAN DIRECTORY FOR FAMILIES. CONNECTED 4000+ PATIENTS/FAMILIES WITH CLINICIANS AND GREW OUR NETWORK OF CLINICIANS WHO CAN SUPPORT PATIENTS/FAMILIES. FAMILY SUPPORT PROGRAMS INCLUDED RUNNING A PRIVATE GROUP FOR 7,500 PATIENTS AND FAMILIES, PROVIDING MODERATION AND SUPPORT IN THAT GROUP, RESPONDING TO EMAILS TO ASSIST WITH FINDING PHYSICIANS, PROVIDING EDUCATIONAL WEBINARS WITH THERAPISTS AND PHYSICIANS. COSTS INCLUDED PLATFORM FEES, HONORARIUM, MATERIALS.

    Expenses $6,954 · Revenue $46,897

  • FUNDED PROFESSOR RUSSELL DALE'S PANS RESEARCH AT UNIV. OF SYDNEY.

    Expenses $49,195 · Grants $49,195

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Johanna Conkey

    PRESIDENT

    Total calculated
    $145,834
    From this org
    $116,667
    From related orgs
    $0
    Other
    $29,167
    Hours/week
    40
  • Dr Pierre Kory

    TREASURER

    Total calculated
    $0
    Hours/week
    1
  • Travis Conkey

    SECRETARY

    Total calculated
    $0
    Hours/week
    1
  • Johnna Workman

    OFFICER

    Total calculated
    $0
    Hours/week
    1
  • Leslie Phillips

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2025
Filed
11 February 2026
IRS schema version
2025v4.0
Source object
202611059349300241

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