Form 990 for tax year 2024
Filed by SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA.
Totals
- Total revenue
- $3,526,531
- Total expenses
- $3,581,889
- Contributions and grants received
- $105,154
- Grants paid
- $0
- Program service revenue
- $3,396,537
- Investment income
- $1,239
- Other revenue
- $23,601
- Total assets, end of year
- $2,650,157
- Total liabilities, end of year
- $670,050
- Net assets or fund balances, end of year
- $1,980,107
- Program services expenses (Part IX)
- $2,606,789
- Management and general expenses
- $779,604
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $2,606,789
Program services were 72.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1a · Federated campaigns
$0
-
1b · Membership dues
$0
-
1c · Fundraising events
$0
-
1d · Related organizations
$0
-
1e · Government grants (contributions)
$0
-
1f · All other contributions, gifts and grants
$105,154
-
1g · Noncash contributions included above
$0
-
2a · Program service revenue: SC Trait Follow Up Program
total $273,885 · related or exempt $273,885 · unrelated business $0 · excluded $0
-
2b · Program service revenue: SC Counselor Training & Cert
total $116,800 · related or exempt $116,800 · unrelated business $0 · excluded $0
-
2c · Program service revenue: HRSA CA SC Care & Support Network
total $252,066 · related or exempt $252,066 · unrelated business $0 · excluded $0
-
2d · Program service revenue: Pfizer-You Are A Marvel Program
total $601,159 · related or exempt $601,159 · unrelated business $0 · excluded $0
-
2e · Program service revenue: Networking California for SC Care
total $1,790,390 · related or exempt $1,790,390 · unrelated business $0 · excluded $0
-
2f · All other program service revenue
total $362,237 · related or exempt $362,237 · unrelated business $0 · excluded $0
-
3 · Investment income
total $1,239 · related or exempt $1,239 · unrelated business $0 · excluded $0
-
4 · Income from investment of tax-exempt bond proceeds
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
5 · Royalties
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
6a · Gross rents
real property $0 · personal property $0
-
6b · Less rental expenses
real property $0 · personal property $0
-
6c · Rental income or loss
real property $0 · personal property $0
-
6d · Net rental income or loss
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
7a · Gross sales of assets other than inventory
securities $0 · other assets $0
-
7b · Less cost or other basis and sales expenses
securities $0 · other assets $0
-
7c · Gain or loss
securities $0 · other assets $0
-
7d · Net gain or loss
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
8a · Fundraising events: gross income
$0
-
8a · Fundraising events: contributions included on line 1c
$0
-
8b · Fundraising events: direct expenses
$0
-
8c · Net income from fundraising events
total $0 · unrelated business $0 · excluded $0
-
9a · Gaming: gross income
$0
-
9b · Gaming: direct expenses
$0
-
9c · Net income from gaming
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
10a · Gross sales of inventory
$0
-
10b · Cost of goods sold
$0
-
10c · Net income from sales of inventory
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
11a · Other revenue: Miscellaneous Revenue
total $23,601 · related or exempt $23,601 · unrelated business $0 · excluded $0
-
11b · Other revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
11c · Other revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
11d · All other revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
11e · Other revenue, total
$23,601
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $0 · program services $0
-
2 · Grants to domestic individuals
total $0 · program services $0
-
3 · Grants to foreign organizations and individuals
total $0 · program services $0
-
4 · Benefits paid to or for members
total $0 · program services $0
-
5 · Compensation of officers, directors and key employees
total $325,000 · program services $245,000 · management and general $80,000 · fundraising $0
-
6 · Compensation of disqualified persons
total $0 · program services $0 · management and general $0 · fundraising $0
-
7 · Other salaries and wages
total $1,164,326 · program services $954,748 · management and general $209,578 · fundraising $0
-
8 · Pension plan contributions
total $0 · program services $0 · management and general $0 · fundraising $0
-
9 · Other employee benefits
total $354,708 · program services $321,040 · management and general $113,668 · fundraising $0
-
10 · Payroll taxes
total $0 · program services $0 · management and general $0 · fundraising $0
-
11a · Fees: management
total $0 · program services $0 · management and general $0 · fundraising $0
-
11b · Fees: legal
total $0 · program services $0 · management and general $0 · fundraising $0
-
11c · Fees: accounting
total $0 · program services $0 · management and general $0 · fundraising $0
-
11d · Fees: lobbying
total $0 · program services $0 · management and general $0 · fundraising $0
-
11e · Fees: professional fundraising services
total $0 · fundraising $0
-
11f · Fees: investment management
total $0 · program services $0 · management and general $0 · fundraising $0
-
11g · Fees: other
total $0 · program services $0 · management and general $0 · fundraising $0
-
12 · Advertising and promotion
total $0 · program services $0 · management and general $0 · fundraising $0
-
13 · Office expenses
total $72,866 · program services $47,517 · management and general $25,349 · fundraising $0
-
14 · Information technology
total $77,301 · program services $50,409 · management and general $26,892 · fundraising $0
-
15 · Royalties
total $0 · program services $0 · management and general $0 · fundraising $0
-
16 · Occupancy
total $0 · program services $0 · management and general $0 · fundraising $0
-
17 · Travel
total $45,833 · program services $29,889 · management and general $15,944 · fundraising $0
-
18 · Travel or entertainment for public officials
total $0 · program services $0 · management and general $0 · fundraising $0
-
19 · Conferences, conventions and meetings
total $0 · program services $0 · management and general $0 · fundraising $0
-
20 · Interest
total $0 · program services $0 · management and general $0 · fundraising $0
-
21 · Payments to affiliates
total $0 · program services $0 · management and general $0 · fundraising $0
-
22 · Depreciation, depletion and amortization
total $0 · program services $0 · management and general $0 · fundraising $0
-
23 · Insurance
total $0 · program services $0 · management and general $0 · fundraising $0
-
24a · Other expenses: Other Program Services
total $1,310,246 · program services $736,248 · management and general $298,499 · fundraising $0
-
24b · Other expenses
total $0 · program services $0 · management and general $0 · fundraising $0
-
24c · Other expenses
total $0 · program services $0 · management and general $0 · fundraising $0
-
24d · Other expenses
total $0 · program services $0 · management and general $0 · fundraising $0
-
24e · All other expenses
total $231,609 · program services $221,938 · management and general $9,674 · fundraising $0
-
26 · Joint costs (an allocation of the lines above)
total $0 · program services $0 · management and general $0 · fundraising $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $1,866,663 · end of year $2,038,039
-
2 · Savings and temporary cash investments
beginning of year $0 · end of year $0
-
3 · Pledges and grants receivable
beginning of year $0 · end of year $0
-
4 · Accounts receivable
beginning of year $122,602 · end of year $128,534
-
5 · Loans and receivables from officers and key people
beginning of year $0 · end of year $0
-
6 · Loans and receivables from disqualified persons
beginning of year $0 · end of year $0
-
7 · Other notes and loans receivable
beginning of year $0 · end of year $0
-
8 · Inventories for sale or use
beginning of year $0 · end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $0 · end of year $0
-
10a · Land, buildings and equipment: cost or other basis
$178,569
-
10b · Land, buildings and equipment: accumulated depreciation
$117,076
-
10c · Land, buildings and equipment, net
beginning of year $92,995 · end of year $61,493
-
11 · Investments: publicly traded securities
beginning of year $0 · end of year $0
-
12 · Investments: other securities
beginning of year $0 · end of year $0
-
13 · Investments: program-related
beginning of year $0 · end of year $0
-
14 · Intangible assets
beginning of year $575,578 · end of year $422,091
-
15 · Other assets
beginning of year $0 · end of year $0
-
17 · Accounts payable and accrued expenses
beginning of year $23,763 · end of year $211,236
-
18 · Grants payable
beginning of year $0 · end of year $0
-
19 · Deferred revenue
beginning of year $0 · end of year $0
-
20 · Tax-exempt bond liabilities
beginning of year $0 · end of year $0
-
21 · Escrow or custodial account liability
beginning of year $0 · end of year $0
-
22 · Loans and payables to officers and key people
beginning of year $0 · end of year $0
-
23 · Secured mortgages and notes payable
beginning of year $0 · end of year $153,721
-
24 · Unsecured notes and loans payable
beginning of year $0 · end of year $0
-
25 · Other liabilities
beginning of year $598,611 · end of year $305,093
-
27 · Net assets without donor restrictions
beginning of year $1,945,464 · end of year $1,476,198
-
28 · Net assets with donor restrictions
beginning of year $90,000 · end of year $503,909
Mission and programs · 2024
Mission
To build a world where individuals with Sickle Cell Disease get the care and compassion they deserve.
-
Sickle Cell Trait Follow-Up Program SCTFP In partnership with the California Department of Public Health CDPH Newborn Screening Program and in accordance with Health and Safety Code Section 125001 the Sickle Cell Disease Foundation SCDF provides specialized genetic counseling services for individuals and families affected by heritable hemoglobin conditions including Sickle Cell Trait SCT and Sickle Cell Disease SCD. The Foundation delivers bilingual English and Spanish counseling by phone and in person to families of newborns identified through the Newborn Screening Program with specific hemoglobin patterns. SCDF also provides referrals and follow-up support helping families connect with medical and community-based resources statewide.
Expenses $201,346 · Grants $273,885
-
Sickle Cell Counselor Training and Certification Program SCCTCP The SCCTCP advances workforce development under the California Genetic Disease Screening Program by training and certifying health professionals in hemoglobinopathy counseling. Using CDPH-approved curriculum materials and standardized assessments SCDF delivers training through Modules I IIA IIB and III twice annually and evaluates participant outcomes. This program ensures that counselors and community health professionals are equipped to provide accurate culturally competent education and support to families across California.
Expenses $312,073 · Grants $116,800
-
HRSA California Sickle Cell Care and Support Network CCSCN Under the HRSA CCSCN initiative SCDFC advanced system-level improvements in access to care for individuals with SCD by coordinating a multidisciplinary network of hospitals clinics and community partners. The Foundation led efforts to expand CHW services improve data reporting through the SC CARES platform and promote statewide education outreach and advocacy. Program outcomes included increased linkage to primary and specialty care enhanced family engagement and broader awareness of sickle cell disease throughout Californias healthcare system.
Expenses $252,066 · Grants $252,066
-
HRSA Pacific Sickle Cell Regional Collaborative PSCRC Through the PSCRC grant funded by the Health Resources and Services Administration HRSA SCDFC strengthened care coordination and transition services for adolescents and young adults with Sickle Cell Disease SCD across California. The Foundation expanded the statewide network of clinical and community-based sites known as Networking California for Sickle Cell Care NCSCCto enhance access to comprehensive SCD care. Achievements included developing care transition protocols integrating community health workers CHWs into clinical teams and implementing patient-centered data collection tools to improve quality of care and health outcomes.
Expenses $189,574 · Grants $189,574
-
State-Funded Networking California for Sickle Cell Care Through state funding administered by the California Department of Public Health SCDFC partnered with the Center for Inherited Blood Disorders CIBD and The Hills Tandem LLC THT led the expansion of the Networking California for Sickle Cell Care program creating a coordinated network of hospitals community health centers and community-based organizations that provide comprehensive SCD care. Accomplishments include establishing twelve 12 adult specialty clinics throughout California embedding CHWs in clinical settings to support patient navigation developing standardized care coordination protocols and conducting statewide CHW training and leadership development. These efforts significantly increased access to care reduced emergency department utilization and strengthened long-term sustainability through partnerships with Medi-Cal managed care plans. Workforce Development Through a Comprehensive Sickle Cell Training and Certification Program for Community Health Workers The Sickle Cell Disease Foundation SCDF has established a statewide Comprehensive Sickle Cell Training and Certification Program designed to strengthen the healthcare workforce by equipping Community Health Workers CHWs with the specialized knowledge and skills required to effectively support individuals and families living with sickle cell disease SCD. This program builds professional competency enhances career advancement opportunities and promotes sustainability of the CHW workforce within clinical and community settings. Through a structured multi-tiered curriculum CHWs receive education on the biology and management of SCD crisis prevention and intervention social determinants of health patient navigation and culturally responsive communication. The program includes online e-learning modules in-person workshops mentorship and continuing education opportunities that align with state and national standards for CHW practice. Training is delivered in collaboration with medical experts mental health professionals and experienced CHW leaders to ensure real-world application and clinical relevance. Upon completion participants receive certification recognizing their expertise in sickle cell care coordination enabling them to integrate into multidisciplinary healthcare teams and provide essential patient-centered support. This certification not only professionalizes the CHW role but also facilitates eligibility for reimbursement through Medi-Cal and other managed care systems. Outcomes and Impact To date SCDFs training and certification program has prepared more than 40 CHWs statewide many of whom now work in hospital-based and community care settings as part of the Networking California for Sickle Cell Care NCSCC network. These trained CHWs have contributed to improved patient follow-up after hospital discharge increased engagement in preventive care and communication between providers.
Expenses $1,309,584 · Grants $1,790,390
-
YAAM You Are A Marvel Project is a pioneering service that leverages longitudinal Real World Data RWD to enhance health literacy and augment quality of care. The program is dedicated to giving voice to the daily experiences of individuals with Sickle Cell Disease SCD by collecting documenting and visualizing their unique data. Our human centered design approach emphasizes collaboration with patients healthcare providers community health workers data scientists and data visualizers to foster a data service that is accessible and effective. Our first aim is to ensure that YAAMs collected RWD accurately mirrors the patients experience thereby enabling meaningful insights and contributing to improved quality of care. This involves verifying data integrity security and accuracy while adhering to HIPAA regulations identifying data gaps and assessing accessibility for the SCD community. The second aim focuses on creating a service that is usable and beneficial for those living with SCD empowering patients to be active participants in their care decisions. This includes involving patients in the service development process establishing a transparent and patient consented data system creating a visual language and identifying potential obstacles for adoption. The third aim explores the potential of YAAM evolving into an adaptive Learning System LS. This system would identify personalized optimum health activity and biometric ranges alerting when activity deviates from the recommended target. In collaboration with data scientists PHASE 1 deliverables envision the future of YAAM LS while outlining the necessary technical requirements. we aim to understand the integration potential of YAAM data with GENOME data Health Information Exchange data and Social Determinate data which could yield insights into effective treatments at both individual and group levels. We also aim to evaluate the services value proposition among diverse SCD stakeholders and assess potential barriers and risks in alignment with FDA regulations.
Expenses $339,970 · Grants $601,159
-
These are other grants including but not limited to The Public Health Institute Grant The San Manuel Grant The LA Transportation Grant and The Queenscare Mental Health Grant
Expenses $2,176 · Grants $172,662
As filed on the 2024 return.
Listed in Part VII
-
Mary Brown
President
- Total calculated
- $215,000
- From this org
- $215,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $215,000
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $215,000
-
Deborah Green
Director Health Education
- Total calculated
- $110,000
- From this org
- $110,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Diane Batham
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
David Wash
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Marilyn Batchelor
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Tony Gonzalez
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Shondrella Avery
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Charlotte Dixon-Burke
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Damon Oliver
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Diane Nugent
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Jamal Munnerlyn
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Michael Rogers
Treasurer
- Total calculated
- $0
- Hours/week
- 0
-
Rahman Cooper
Chairman
- Total calculated
- $0
- Hours/week
- 0
-
Lawnet Bates
Secretary
- Total calculated
- $0
- Hours/week
- 0
-
Erin Jordan
1st Vice Chair
- Total calculated
- $0
- Hours/week
- 0
-
Leslie Conliffe
2nd Vice Chair
- Total calculated
- $0
- Hours/week
- 0
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
None.
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 8 November 2025
- IRS schema version
- 2024v5.1
- Source object
- 202503129349300805
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.