SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA

As filed

Subsection

03

NTEE code

G30

Classification

1000

Street

3602 INLAND EMPIRE BLVD STE C3

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

• Networking California for Sickle Cell Care NCSCC - 2025 Program Accomplishments. In 2025 the Sickle Cell Disease Foundation SCDF in partnership with the Center for Inherited Blood Disorders CIBD continued to co-manage the Networking California for Sickle Cell Care NCSCC a statewide initiative designed to improve access to comprehensive care for adults living with sickle cell disease. The program supported a network of 12 multidisciplinary specialty clinics providing coordinated medical care Community Health Worker CHW services care coordination patient and family education behavioral health support and connections to community resources. During the year SCDF provided leadership in Community Health Worker for workforce development patient navigation community engagement performance monitoring data collection and statewide collaboration among clinical and community partners. The program continued to improve access to knowledgeable providers strengthen care coordination and reduce barriers to care while advancing sustainable reimbursement for CHW services through Californias Enhanced Care Management ECM program. These activities furthered the Foundations charitable mission of improving health outcomes and quality of life for individuals and families affected by sickle cell disease throughout California.

  Expenses $1,434,947 · Grants $1,465,390

• The GDSP Newborn Screening contract centers on statewide NBS follow-up and counseling. The core activity is following up on positive newborn screening test results for sickle cell disease trait and providing counseling to affected families

  Expenses $363,624 · Grants $363,550

• Mental Health Services: SCDF provides culturally responsive behavioral health services for individuals living with sickle cell disease and their families. Mental health professionals offer individual counseling emotional support crisis intervention and referrals to address anxiety depression chronic pain grief and other psychosocial challenges. Integrated with Community Health Workers and care coordination these services promote emotional well-being improve quality of life and support comprehensive whole-person care.

  Expenses $260,491 · Grants $260,491

• Other programs include the following: HRSA NBS PSCRC Family Programs and Services.

  Expenses $587,759 · Grants $2,646,821 · Revenue $1,949,385

As filed on the 2025 return.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

• 2025

  Revenue

  $1,949,385

  Expenses

  $3,106,319

  Contributions

  $1,537,940

  Grants paid

  $0

• 2024

  Revenue

  $3,526,531

  Expenses

  $3,581,889

  Contributions

  $105,154

  Grants paid

  $0

• 2023

  Revenue

  $1,090,039

  Expenses

  $4,095,069

  Contributions

  $1,088,275

  Grants paid

  $0

• 2022

  Revenue

  $2,848,547

  Expenses

  $4,055,032

  Contributions

  $782,956

  Grants paid

  $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $4,836,100

  Expenses

  $2,755,749

  Assets (EOY)

  $4,104,863

• 2021 · 990

  Revenue

  $5,015,117

  Expenses

  $2,804,371

  Assets (EOY)

  $4,239,743

• 2020 · 990

  Revenue

  $3,958,039

  Expenses

  $2,031,462

  Assets (EOY)

  $2,000,008

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

• CENTER FOR COMPREHENSIVE CARE AND DIAGNOSIS OF INHERITED BLOOD

  $3,111,913

  2022 · SUBCONTRACT HRSA & CDPH GRANTS SICKLE CELL TREATMENT DEMONSTRATION PROGRAM

• CENTER FOR COMPREHENSIVE CARE AND DIAGNOSIS OF INHERITED BLOOD

  $1,665,421

  2024 · SUBCONTRACT HRSA & CDPH GRANTS SICKLE CELL TREATMENT DEMONSTRATION PROGRAM

• CENTER FOR COMPREHENSIVE CARE AND DIAGNOSIS OF INHERITED BLOOD

  $515,362

  2023 · SUBCONTRACT HRSA & CDPH GRANTS SICKLE CELL TREATMENT DEMONSTRATION PROGRAM

• QUEENSCARE

  $100,000

  2024 · To fund outpatient healthcare services.

• DONOR ADVISED CHARITABLE GIVING

  $75,000

  2024 · HEALTH

• CALIFORNIA COMMUNITY FOUNDATION

  $26,412

  2024 · HEALTH

• CALIFORNIA COMMUNITY FOUNDATION

  $24,466

  2023 · HEALTH

• INLAND EMPIRE COMMUNITY FOUNDATION

  $20,000

  2023 · Community organizing/Building

• AMERICAN ONLINE GIVING FOUNDATION INC

  $15,885

  2023 · GENERAL SUPPORT

• CALIFORNIA COMMUNITY FOUNDATION

  $15,046

  2022 · HEALTH

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files