Form 990 for tax year 2022
Filed by SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA.
Totals
- Total revenue
- $2,848,547
- Total expenses
- $4,055,032
- Contributions and grants received
- $782,956
- Grants paid
- $0
- Program service revenue
- $2,017,417
- Investment income
- $0
- Other revenue
- $48,174
- Total assets, end of year
- $4,364,809
- Total liabilities, end of year
- $1,528,117
- Net assets or fund balances, end of year
- $2,836,692
- Program services expenses (Part IX)
- $3,697,649
- Management and general expenses
- $355,438
- Fundraising expenses
- $1,945
- Program service expenses (Part III)
- $3,697,649
Program services were 91.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1a · Federated campaigns
$0
-
1b · Membership dues
$0
-
1c · Fundraising events
$0
-
1d · Related organizations
$0
-
1e · Government grants (contributions)
$670,194
-
1f · All other contributions, gifts and grants
$112,762
-
1g · Noncash contributions included above
$0
-
2a · Program service revenue: Contracts
total $339,975 · related or exempt $339,975 · unrelated business $0 · excluded $0
-
2b · Program service revenue: Subawards
total $1,677,442 · related or exempt $1,677,442 · unrelated business $0 · excluded $0
-
2f · All other program service revenue
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
6c · Rental income or loss
real property $0 · personal property $0
-
7c · Gain or loss
securities $0 · other assets $0
-
8a · Fundraising events: contributions included on line 1c
$0
-
11d · All other revenue
total $48,174 · related or exempt $48,174 · unrelated business $0 · excluded $0
-
11e · Other revenue, total
$48,174
Functional expenses
Part IX, the statement of functional expenses.
-
5 · Compensation of officers, directors and key employees
total $293,206 · program services $244,702 · management and general $48,504
-
7 · Other salaries and wages
total $1,227,835 · program services $1,191,000 · management and general $36,835
-
8 · Pension plan contributions
total $2,638 · program services $2,515 · management and general $123
-
9 · Other employee benefits
total $132,307 · program services $125,486 · management and general $6,821
-
10 · Payroll taxes
total $115,376 · program services $107,300 · management and general $8,076
-
11c · Fees: accounting
total $0
-
12 · Advertising and promotion
total $4,791 · program services $1,415 · management and general $2,816 · fundraising $560
-
13 · Office expenses
total $85,465 · program services $31,280 · management and general $54,185
-
14 · Information technology
total $60,360 · program services $39,965 · management and general $19,010 · fundraising $1,385
-
16 · Occupancy
total $144,795 · program services $123,240 · management and general $21,555
-
17 · Travel
total $60,383 · program services $14,609 · management and general $45,774
-
22 · Depreciation, depletion and amortization
total $22,017 · program services $21,767 · management and general $250
-
23 · Insurance
total $0
-
24a · Other expenses: Consulting Services
total $204,483 · program services $127,972 · management and general $76,511
-
24b · Other expenses: Family Programs
total $77,735 · program services $77,422 · management and general $313
-
24c · Other expenses: NCSCC Program
total $1,600,458 · program services $1,588,458 · management and general $12,000
-
24d · Other expenses: Facilities, Equipment & Miscellaneous
total $23,183 · program services $518 · management and general $22,665
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $3,913,416 · end of year $4,053,309
-
4 · Accounts receivable
beginning of year $194,611 · end of year $163,801
-
5 · Loans and receivables from officers and key people
beginning of year $0
-
6 · Loans and receivables from disqualified persons
beginning of year $0
-
7 · Other notes and loans receivable
beginning of year $0
-
8 · Inventories for sale or use
beginning of year $0
-
9 · Prepaid expenses and deferred charges
end of year $23,798
-
10a · Land, buildings and equipment: cost or other basis
$165,862
-
10b · Land, buildings and equipment: accumulated depreciation
$41,961
-
10c · Land, buildings and equipment, net
beginning of year $131,716 · end of year $123,901
-
17 · Accounts payable and accrued expenses
beginning of year $48,622 · end of year $56,706
-
18 · Grants payable
beginning of year $0
-
19 · Deferred revenue
beginning of year $0 · end of year $1,471,411
-
20 · Tax-exempt bond liabilities
beginning of year $0
-
21 · Escrow or custodial account liability
beginning of year $0
-
22 · Loans and payables to officers and key people
beginning of year $0
-
23 · Secured mortgages and notes payable
beginning of year $0
-
24 · Unsecured notes and loans payable
beginning of year $0
-
25 · Other liabilities
beginning of year $0
-
27 · Net assets without donor restrictions
beginning of year $3,836,257 · end of year $162,453
-
28 · Net assets with donor restrictions
beginning of year $354,864 · end of year $2,674,239
Mission and programs · 2022
Mission
To build a world where individuals living with Sickle Cell Disease get the care and compassion they deserve.
-
Networking California for Sickle Cell Care (NCSCC). The main objective of NCSCC process is for providers, agencies, and the community to collaboratively implement this collectively developed cohesive plan. The plan articulates specific goals to ensure that individuals with sickle cell disease receive comprehensive, patient-centered, coordinated, accessible, safe, and high-quality care no matter where they live or seek care in California. The NCSCC partnering organizations are The Sickle Cell Disease Foundation and the Center for Inherited Blood Disorders (CIBD), a non-profit hematology center of excellence that provides education, support, and multidisciplinary, family-centered services to adults and children with all forms of an inherited disorders.
Expenses $2,035,764 · Revenue $1,491,576
-
Vaccine Access Grant. The SCDF was awarded a grant from the Health Resources Service Agency (HRSA) to educate and encourage individuals with sickle cell disease and the general public to get vaccinated. Funds were distributed throughout the state to other sickle cell programs and Arizona, Washington State, Oregon, and Nevada. It is a one-year grant for $1 mil.
Expenses $514,181 · Revenue $670,194
-
California Newborn Screening Program - Since 1978, the Sickle Cell Disease Foundation has provided counseling, education, and training services throughout California. Counseling for parents of newborns identified with a hemoglobin trait is offered free follow-up counseling and testing. The SCDF also provides a certification course in single-gene counseling. In addition, the Foundation offers classes in sickle cell disease and understanding the science.
Expenses $352,369 · Revenue $339,975
-
Other programs and services expenses and revenue includes: Family Programs, Special Projects, Pacific Sickle Cell Regional Collaborative, Health Resources Services Administration Newborn Screening.
Expenses $795,335 · Revenue $346,803
As filed on the 2022 return.
Listed in Part VII
-
Mary E Brown
President & CEO
- Total calculated
- $202,098
- From this org
- $202,098
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $202,098
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $6,778
- Filer's total
- $208,876
-
Deborah Green
Director, Health Education
- Total calculated
- $101,017
- From this org
- $101,017
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $101,017
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $11,213
- Filer's total
- $112,230
-
Gerald Miller
CFO
- Total calculated
- $91,108
- From this org
- $91,108
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $91,108
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $5,074
- Filer's total
- $96,182
-
Rahman Cooper
Board Chairman
- Total calculated
- $0
- Hours/week
- 0
-
Damon Oliver
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Charlotte Dixon- Burke
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Jamal Munnerlyn
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Diane Nugent
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
David Wash
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Diane Batham
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Marilyn Batchelor
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Shondrella Avery
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Tony Gonzalez
Board Member
- Total calculated
- $0
- Hours/week
- 0
-
Michael W Rogers
Treasurer
- Total calculated
- $0
- Hours/week
- 0
-
Leslie Conliffe
2nd Vice Chair
- Total calculated
- $0
- Hours/week
- 0
-
Erin Jordan
1st Vice Chair
- Total calculated
- $0
- Hours/week
- 0
-
Lawnet Bates
Secretary
- Total calculated
- $0
- Hours/week
- 0
-
Dr Yolanda Gorman
Emeritus
- Total calculated
- $0
- Hours/week
- 0
-
Charles Young
Emeritus
- Total calculated
- $0
- Hours/week
- 0
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 20 September 2023
- IRS schema version
- 2022v5.0
- Source object
- 202322989349301477
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