Totals
- Total revenue
- $385,642
- Total expenses
- $350,856
- Contributions and grants received
- $388,753
- Grants paid
- $89,329
- Program service revenue
- $6,533
- Investment income
- $8
- Other revenue
- -$9,652
- Total assets, end of year
- $818,648
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $818,648
- Program services expenses (Part IX)
- $330,124
- Management and general expenses
- $20,732
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $330,124
Program services were 94.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$31,084
-
1f · All other contributions, gifts and grants
$357,669
-
2a · Program service revenue: PROGRAM REVENUE
total $6,533 · related or exempt $6,533
-
3 · Investment income
total $8 · excluded $8
-
8a · Fundraising events: gross income
$0
-
8a · Fundraising events: contributions included on line 1c
$31,084
-
8b · Fundraising events: direct expenses
$9,652
-
8c · Net income from fundraising events
total -$9,652 · excluded -$9,652
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $89,329 · program services $89,329
-
11g · Fees: other
total $3,480 · management and general $3,480
-
12 · Advertising and promotion
total $50,000 · program services $50,000
-
13 · Office expenses
total $16,866 · program services $16,866
-
19 · Conferences, conventions and meetings
total $173,929 · program services $173,929
-
24a · Other expenses: BANK FEES
total $17,252 · management and general $17,252
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $508,949 · end of year $764,607
-
2 · Savings and temporary cash investments
beginning of year $272,797 · end of year $50,516
-
9 · Prepaid expenses and deferred charges
end of year $3,525
-
27 · Net assets without donor restrictions
beginning of year $708,949 · end of year $768,132
-
28 · Net assets with donor restrictions
beginning of year $72,797 · end of year $50,516
Mission and programs · 2024
Mission
TO EDUCATE, SUPPORT AND PROVIDE ADVOCACY FOR THOSE AFFECTED BY GALACTOSEMIA.
Activities or mission (Part I)
TO SPREAD AWARENESS OF GALACTOSEMIA; TO PROVIDE SUPPORT FOR PARENTS OF CHILDREN WITH GALACTOSEMIA THROUGH EDUCATION AND FUNDING RESEARCH.
-
PROVIDED SUPPORT TO INDIVIDUALS WITH GALACTOSEMIA AND SPREAD AWARENESS BY PUBLISHING TWO NEWSLETTERS WORLDWIDE, SETTING UP A NATIONWIDE WEBSITE DISCUSSION FORUM, THROUGH TELEPHONE SUPPORT, AND A BIENNIAL CONFERENCE.
Expenses $209,697 · Revenue $6,533
-
HOSTED A BI-ANNUAL CONFERENCE FOR THOSE SUFFERING FOR GALACTOSEMIA AS WELL AS MEDICAL PROFESSIONALS AND RESEARCHERS.
Expenses $31,098
-
FUNDING RESEARCH GRANTS TO MEDICAL PROFESSIONAL/RESEARCH HOSPITALS.
Expenses $89,329 · Grants $89,329
As filed on the 2024 return.
Listed in Part VII
-
Nicole CasaleNICOLE CASALE
PRESIDENT
- Total calculated
- $0
- Hours/week
- 10
-
Jessica TaylorJESSICA TAYLOR
TREASURER
- Total calculated
- $0
- Hours/week
- 5
-
Mary LeimbachMARY LEIMBACH
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
Brittany CudziloBRITTANY CUDZILO
VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 2
-
Jodi SolariJODI SOLARI
COMMUNICATIONS LEAD
- Total calculated
- $0
- Hours/week
- 2
-
Keith TopperKEITH TOPPER
MEMBER AT LARGE
- Total calculated
- $0
- Hours/week
- 1
-
Kelly FoleyKELLY FOLEY
MEMBER AT LARGE
- Total calculated
- $0
- Hours/week
- 1
-
Gillain SapiaGILLAIN SAPIA
MEMBER AT LARGE
- Total calculated
- $0
- Hours/week
- 1
-
Scott SaylorSCOTT SAYLOR
MEMBER AT LARGE
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
RESEARCH
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 17 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202513219349324421
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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