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GALACTOSEMIA FOUNDATION

EIN 13-3349708 ALBANY, NY

Browse the largest nonprofits in New York

Revenue 2024
$385,642
Expenses 2024
$350,856

Program services were 94.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
F197
Classification
1000
Street
350 NORTHERN BLVD STE 324-1079

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

TO EDUCATE, SUPPORT AND PROVIDE ADVOCACY FOR THOSE AFFECTED BY GALACTOSEMIA.

Activities or mission (Part I)

TO SPREAD AWARENESS OF GALACTOSEMIA; TO PROVIDE SUPPORT FOR PARENTS OF CHILDREN WITH GALACTOSEMIA THROUGH EDUCATION AND FUNDING RESEARCH.

  • PROVIDED SUPPORT TO INDIVIDUALS WITH GALACTOSEMIA AND SPREAD AWARENESS BY PUBLISHING TWO NEWSLETTERS WORLDWIDE, SETTING UP A NATIONWIDE WEBSITE DISCUSSION FORUM, THROUGH TELEPHONE SUPPORT, AND A BIENNIAL CONFERENCE.

    Expenses $209,697 · Revenue $6,533

  • HOSTED A BI-ANNUAL CONFERENCE FOR THOSE SUFFERING FOR GALACTOSEMIA AS WELL AS MEDICAL PROFESSIONALS AND RESEARCHERS.

    Expenses $31,098

  • FUNDING RESEARCH GRANTS TO MEDICAL PROFESSIONAL/RESEARCH HOSPITALS.

    Expenses $89,329 · Grants $89,329

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Nicole Casale

    PRESIDENT

    Total calculated
    $0
    Hours/week
    10

  • Jessica Taylor

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Mary Leimbach

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • Brittany Cudzilo

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • Jodi Solari

    COMMUNICATIONS LEAD

    Total calculated
    $0
    Hours/week
    2

  • Keith Topper

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1

  • Kelly Foley

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1

  • Gillain Sapia

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1

  • Scott Saylor

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $385,642
    Expenses
    $350,856
    Contributions
    $388,753
    Grants paid
    $89,329
  • 2023
    Revenue
    $477,376
    Expenses
    $258,143
    Contributions
    $488,299
    Grants paid
    $19,837
  • 2022
    Revenue
    $376,578
    Expenses
    $301,012
    Contributions
    $221,219
    Grants paid
    $36,153

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $229,742
    Expenses
    $181,534
    Assets (EOY)
    $489,043

  • 2020 · 990

    Revenue
    $229,496
    Expenses
    $88,338
    Assets (EOY)
    $440,835

  • 2019 · 990

    Revenue
    $116,235
    Expenses
    $123,371
    Assets (EOY)
    $299,650

  • 2018 · 990

    Revenue
    $207,101
    Expenses
    $143,788
    Assets (EOY)
    $306,309

  • 2017 · 990

    Revenue
    $124,727
    Expenses
    $184,659
    Assets (EOY)
    $321,184

  • 2016 · 990

    Revenue
    $234,419
    Expenses
    $121,030
    Assets (EOY)
    $302,878

  • 2015 · 990

    Revenue
    $175,025
    Expenses
    $106,045
    Assets (EOY)
    $189,886

  • 2014 · 990

    Revenue
    $215,146
    Expenses
    $291,198
    Assets (EOY)
    $120,906

  • 2013 · 990

    Revenue
    $153,367
    Expenses
    $115,735
    Assets (EOY)
    $196,958

  • 2012 · 990

    Revenue
    not reported
    Expenses
    $179,740
    Assets (EOY)
    $159,326

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 11 November 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.