Totals
- Total revenue
- $477,376
- Total expenses
- $258,143
- Contributions and grants received
- $488,299
- Grants paid
- $19,837
- Program service revenue
- $1,336
- Investment income
- $104
- Other revenue
- -$12,363
- Total assets, end of year
- $781,746
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $781,746
- Program services expenses (Part IX)
- $242,955
- Management and general expenses
- $7,614
- Fundraising expenses
- $7,574
- Program service expenses (Part III)
- $242,955
Program services were 94.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$94,397
-
1f · All other contributions, gifts and grants
$393,902
-
2a · Program service revenue: PROGRAM REVENUE
total $1,336 · related or exempt $1,336
-
3 · Investment income
total $104 · excluded $104
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6c · Rental income or loss
real property $0 · personal property $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8a · Fundraising events: gross income
$0
-
8a · Fundraising events: contributions included on line 1c
$94,397
-
8b · Fundraising events: direct expenses
$12,363
-
8c · Net income from fundraising events
total -$12,363 · excluded -$12,363
-
9a · Gaming: gross income
$0
-
9b · Gaming: direct expenses
$0
-
9c · Net income from gaming
total $0
-
10a · Gross sales of inventory
$0
-
10b · Cost of goods sold
$0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $19,837 · program services $19,837
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $0
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $0
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $0
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $0
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $5,374 · management and general $5,374
-
12 · Advertising and promotion
total $140,000 · program services $140,000
-
13 · Office expenses
total $30,390 · program services $30,390
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $0
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $60,302 · program services $52,728 · fundraising $7,574
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $0
-
24a · Other expenses: BANK FEES
total $2,240 · management and general $2,240
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $507,580 · end of year $508,949
-
2 · Savings and temporary cash investments
beginning of year $56,643 · end of year $272,797
-
3 · Pledges and grants receivable
beginning of year $0 · end of year $0
-
4 · Accounts receivable
beginning of year $0 · end of year $0
-
5 · Loans and receivables from officers and key people
beginning of year $0 · end of year $0
-
6 · Loans and receivables from disqualified persons
beginning of year $0 · end of year $0
-
7 · Other notes and loans receivable
beginning of year $0 · end of year $0
-
8 · Inventories for sale or use
beginning of year $0 · end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $0 · end of year $0
-
10c · Land, buildings and equipment, net
beginning of year $0 · end of year $0
-
11 · Investments: publicly traded securities
beginning of year $0 · end of year $0
-
12 · Investments: other securities
beginning of year $0 · end of year $0
-
13 · Investments: program-related
beginning of year $0 · end of year $0
-
14 · Intangible assets
beginning of year $0 · end of year $0
-
15 · Other assets
beginning of year $0 · end of year $0
-
17 · Accounts payable and accrued expenses
beginning of year $0 · end of year $0
-
18 · Grants payable
beginning of year $0 · end of year $0
-
19 · Deferred revenue
beginning of year $0 · end of year $0
-
20 · Tax-exempt bond liabilities
beginning of year $0 · end of year $0
-
21 · Escrow or custodial account liability
beginning of year $0 · end of year $0
-
22 · Loans and payables to officers and key people
beginning of year $0 · end of year $0
-
23 · Secured mortgages and notes payable
beginning of year $0 · end of year $0
-
24 · Unsecured notes and loans payable
beginning of year $0 · end of year $0
-
25 · Other liabilities
beginning of year $0 · end of year $0
-
27 · Net assets without donor restrictions
beginning of year $507,580 · end of year $708,949
-
28 · Net assets with donor restrictions
beginning of year $56,643 · end of year $72,797
Mission and programs · 2023
Mission
TO EDUCATE, SUPPORT AND PROVIDE ADVOCACY FOR THOSE AFFECTED BY GALACTOSEMIA.
Activities or mission (Part I)
TO SPREAD AWARENESS OF GALACTOSEMIA; TO PROVIDE SUPPORT FOR PARENTS OF CHILDREN WITH GALACTOSEMIA THROUGH EDUCATION AND FUNDING RESEARCH.
-
PROVIDED SUPPORT TO INDIVIDUALS WITH GALACTOSEMIA AND SPREAD AWARENESS BY PUBLISHING TWO NEWSLETTERS WORLDWIDE, SETTING UP A NATIONWIDE WEBSITE DISCUSSION FORUM, THROUGH TELEPHONE SUPPORT, AND A BIENNIAL CONFERENCE.
Expenses $164,551 · Revenue $1,336
-
Hosted a Bi-Annual conference for those suffering for Galactosemia as well as medical professionals and researchers.
Expenses $58,567
-
Funding Research grants to medical professional/research hospitals.
Expenses $19,837 · Grants $19,837
As filed on the 2023 return.
Listed in Part VII
-
Nicole Casale
PRESIDENT
- Total calculated
- $0
- Hours/week
- 10
-
Scott Saylor
TREASURER
- Total calculated
- $0
- Hours/week
- 5
-
Cari MillerCARI MILLER
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
Brittany Cudzilo
Vice President
- Total calculated
- $0
- Hours/week
- 2
-
Jodi SolariJODI SOLARI
COMMUNICATIONS LEAD
- Total calculated
- $0
- Hours/week
- 2
-
Keith TopperKEITH TOPPER
MEMBER AT LARGE
- Total calculated
- $0
- Hours/week
- 1
-
Kelly Foley
MEMBER AT LARGE
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
Research-Peer Review
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 15 November 2024
- IRS schema version
- 2023v5.1
- Source object
- 202413169349303451
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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