Totals
- Total revenue
- $969,522
- Total expenses
- $687,891
- Contributions and grants received
- $756,607
- Grants paid
- $31,500
- Program service revenue
- $0
- Investment income
- $34,716
- Other revenue
- $178,199
- Total assets, end of year
- $1,447,200
- Total liabilities, end of year
- $6,987
- Net assets or fund balances, end of year
- $1,440,213
- Program services expenses (Part IX)
- $584,177
- Management and general expenses
- $47,719
- Fundraising expenses
- $55,995
- Program service expenses (Part III)
- $584,177
Program services were 84.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$174,142
-
1f · All other contributions, gifts and grants
$582,465
-
1g · Noncash contributions included above
$31,030
-
3 · Investment income
total $7,186 · excluded $7,186
-
7a · Gross sales of assets other than inventory
other assets $29,000
-
7b · Less cost or other basis and sales expenses
other assets $1,470
-
7c · Gain or loss
other assets $27,530
-
7d · Net gain or loss
total $27,530 · related or exempt $27,530
-
8a · Fundraising events: gross income
$306,540
-
8a · Fundraising events: contributions included on line 1c
$174,142
-
8b · Fundraising events: direct expenses
$128,341
-
8c · Net income from fundraising events
total $178,199
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $25,000 · program services $25,000
-
2 · Grants to domestic individuals
total $6,500 · program services $6,500
-
7 · Other salaries and wages
total $36,640 · program services $15,546 · management and general $11,954 · fundraising $9,140
-
10 · Payroll taxes
total $3,257 · program services $1,423 · management and general $1,039 · fundraising $795
-
11g · Fees: other
total $86,462 · program services $34,965 · management and general $16,694 · fundraising $34,803
-
13 · Office expenses
total $22,141 · program services $940 · management and general $9,944 · fundraising $11,257
-
14 · Information technology
total $1,491 · program services $1,491
-
22 · Depreciation, depletion and amortization
total $94,656 · program services $90,286 · management and general $4,370
-
23 · Insurance
total $6,554 · program services $2,836 · management and general $3,718
-
24a · Other expenses: MOBILITY FOR LIFE
total $201,315 · program services $201,315
-
24b · Other expenses: RESPITE CARE
total $112,262 · program services $112,262
-
24c · Other expenses: CLINIC & GENERAL SERVICES
total $61,808 · program services $61,808
-
24d · Other expenses: SUPPLIES
total $13,203 · program services $13,203
-
24e · All other expenses
total $16,602 · program services $16,602
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $667
-
2 · Savings and temporary cash investments
beginning of year $821,832 · end of year $900,605
-
3 · Pledges and grants receivable
beginning of year $50,000 · end of year $75,000
-
10a · Land, buildings and equipment: cost or other basis
$588,815
-
10b · Land, buildings and equipment: accumulated depreciation
$221,358
-
10c · Land, buildings and equipment, net
beginning of year $286,083 · end of year $367,457
-
12 · Investments: other securities
end of year $104,138
-
17 · Accounts payable and accrued expenses
end of year $6,987
-
27 · Net assets without donor restrictions
beginning of year $1,108,582 · end of year $1,364,613
-
28 · Net assets with donor restrictions
beginning of year $50,000 · end of year $75,600
Mission and programs · 2024
Mission
TO RAISE RESEARCH FUNDS TO FIND A CURE FOR ALS, TO SUPPORT PATIENTS AND THEIR FAMILIES THROUGH PATIENT SERVICES, AND TO RAISE AWARENESS.
-
TO PROVIDE RESPITE CARE GRANTS THAT PROVIDE FINANCIAL ASSISTANCE FOR CAREGIVING EXPENSES, TO PROVIDE LEGAL GRANTS WHICH PROVIDE FINANCIAL ASSISTANCE WITH WILLS AND OTHER LEGAL DOCUMENTS, TO PROVIDE ASSISTANCE WITH ACCESS TO HANDICAP ACCESSIBLE TRANSPORTATION THROUGH OUR VAN GIFTING PROGRAM AND RENTAL REIMBURSEMENT PROGRAM, TO PROVIDE FINANCIAL ASSISTANCE FOR ADA COMPLIANT HOME MODIFICATION, AND TO PROVIDE CAREGIVER SUPPORT GROUP AND OTHER EMOTIONAL SUPPORT SERVICES.
Expenses $511,045 · Grants $6,500
-
TO HELP EDUCATE AND RAISE AWARENESS TO ALS.
Expenses $48,132
-
FINANCIAL SUPPORT FOR ALS RESEARCH GIVEN TO VARIOUS INSTITUTIONS.
Expenses $25,000 · Grants $25,000
As filed on the 2024 return.
Listed in Part VII
-
Ray ManzoniRAY MANZONI
PRESIDENT
- Total calculated
- $0
- Hours/week
- 30
-
Jeremy CohnJEREMY COHN
CHAIRMAN
- Total calculated
- $0
- Hours/week
- 10
-
Janice RohlfJANICE ROHLF
1ST VICE CHA
- Total calculated
- $0
- Hours/week
- 2
-
Richard IannuzziRICHARD IANNUZZI
2ND VICE CHA
- Total calculated
- $0
- Hours/week
- 2
-
Frank SorrentinoFRANK SORRENTINO
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
Christina RaiaCHRISTINA RAIA
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
Rich PanicoRICH PANICO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Nancy BurnerNANCY BURNER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Nick HendraNICK HENDRA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Paul WeismanPAUL WEISMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Thomas BoerumTHOMAS BOERUM
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Thomas BuonaiutoTHOMAS BUONAIUTO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Courtney BarrettCOURTNEY BARRETT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Christine PendergastCHRISTINE PENDERGAST
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Marilyn SloanMARILYN SLOAN
EXECUTIVE DI
- Total calculated
- $79,053
- From this org
- $79,053
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$25,000
ALS RESEARCH
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 10 November 2025
- IRS schema version
- 2024v5.0
- Source object
- 202503159349304125
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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