- Revenue 2024
- $969,522
- Expenses 2024
- $687,891
Program services were 84.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G50
- Classification
- 1200
- Street
- SBU HSC SSW L2 ROOM 106
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
TO RAISE RESEARCH FUNDS TO FIND A CURE FOR ALS, TO SUPPORT PATIENTS AND THEIR FAMILIES THROUGH PATIENT SERVICES, AND TO RAISE AWARENESS.
-
TO PROVIDE RESPITE CARE GRANTS THAT PROVIDE FINANCIAL ASSISTANCE FOR CAREGIVING EXPENSES, TO PROVIDE LEGAL GRANTS WHICH PROVIDE FINANCIAL ASSISTANCE WITH WILLS AND OTHER LEGAL DOCUMENTS, TO PROVIDE ASSISTANCE WITH ACCESS TO HANDICAP ACCESSIBLE TRANSPORTATION THROUGH OUR VAN GIFTING PROGRAM AND RENTAL REIMBURSEMENT PROGRAM, TO PROVIDE FINANCIAL ASSISTANCE FOR ADA COMPLIANT HOME MODIFICATION, AND TO PROVIDE CAREGIVER SUPPORT GROUP AND OTHER EMOTIONAL SUPPORT SERVICES.
Expenses $511,045 · Grants $6,500
-
TO HELP EDUCATE AND RAISE AWARENESS TO ALS.
Expenses $48,132
-
FINANCIAL SUPPORT FOR ALS RESEARCH GIVEN TO VARIOUS INSTITUTIONS.
Expenses $25,000 · Grants $25,000
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Ray ManzoniRAY MANZONI
PRESIDENT
- Total calculated
- $0
- Hours/week
- 30
-
Jeremy CohnJEREMY COHN
CHAIRMAN
- Total calculated
- $0
- Hours/week
- 10
-
Janice RohlfJANICE ROHLF
1ST VICE CHA
- Total calculated
- $0
- Hours/week
- 2
-
Richard IannuzziRICHARD IANNUZZI
2ND VICE CHA
- Total calculated
- $0
- Hours/week
- 2
-
Frank SorrentinoFRANK SORRENTINO
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
Christina RaiaCHRISTINA RAIA
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
Rich PanicoRICH PANICO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Nancy BurnerNANCY BURNER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Nick HendraNICK HENDRA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Paul WeismanPAUL WEISMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Thomas BoerumTHOMAS BOERUM
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Thomas BuonaiutoTHOMAS BUONAIUTO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Courtney BarrettCOURTNEY BARRETT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Christine PendergastCHRISTINE PENDERGAST
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Marilyn SloanMARILYN SLOAN
EXECUTIVE DI
- Total calculated
- $79,053
- From this org
- $79,053
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $969,522
- Expenses
- $687,891
- Contributions
- $756,607
- Grants paid
- $31,500
-
2023
- Revenue
- $706,238
- Expenses
- $376,934
- Contributions
- $614,151
- Grants paid
- $29,026
-
2022
- Revenue
- $456,544
- Expenses
- $294,199
- Contributions
- $467,598
- Grants paid
- $23,400
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $378,242
- Expenses
- $239,144
- Assets (EOY)
- $666,933
-
2020 · 990
- Revenue
- $372,156
- Expenses
- $191,738
- Assets (EOY)
- $528,145
-
2019 · 990
- Revenue
- $406,722
- Expenses
- $439,332
- Assets (EOY)
- $347,665
-
2018 · 990
- Revenue
- $395,037
- Expenses
- $446,262
- Assets (EOY)
- $380,214
-
2017 · 990
- Revenue
- $471,310
- Expenses
- $666,317
- Assets (EOY)
- $432,660
-
2016 · 990
- Revenue
- $413,223
- Expenses
- $198,257
- Assets (EOY)
- $628,651
-
2015 · 990
- Revenue
- $454,756
- Expenses
- $383,907
- Assets (EOY)
- $411,776
-
2014 · 990
- Revenue
- $341,078
- Expenses
- $276,635
- Assets (EOY)
- $341,308
-
2013 · 990
- Revenue
- $290,589
- Expenses
- $315,419
- Assets (EOY)
- $278,271
-
2012 · 990
- Revenue
- not reported
- Expenses
- $326,231
- Assets (EOY)
- $307,509
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
-
$25,000
2023 ALS RESEARCH
-
$25,000
2024 ALS RESEARCH
-
2022 ALS RESEASRCH
Grants received
-
$39,704
2023
-
$27,958
2022 UNRESTRICTED
-
NEW YORK YANKEES FOUNDATION INC
$15,000
2024 GENERAL SUPPORT
-
$10,416
2024 GENERAL SUPPORT
-
$8,579
2023 UNRESTRICTED
-
2024 For grant recipient's exempt purposes
-
2023
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 11 November 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.