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← FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND

Form 990 for tax year 2024

Filed by FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND.

Totals

Total revenue
$7,006,271
Total expenses
$2,441,051
Contributions and grants received
$8,771,404
Grants paid
$1,000,000
Program service revenue
$0
Investment income
-$1,765,133
Other revenue
$0
Total assets, end of year
$59,633,698
Total liabilities, end of year
$103,316
Net assets or fund balances, end of year
$59,530,382
Program services expenses (Part IX)
$2,402,495
Management and general expenses
$38,556
Fundraising expenses
$0
Program service expenses (Part III)
$2,402,495

Program services were 98.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1d · Related organizations

    $8,771,404

  • 3 · Investment income

    total $234,849 · excluded $234,849

  • 7b · Less cost or other basis and sales expenses

    other assets $1,999,982

  • 7c · Gain or loss

    other assets -$1,999,982

  • 7d · Net gain or loss

    total -$1,999,982 · excluded -$1,999,982

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,000,000 · program services $1,000,000

  • 5 · Compensation of officers, directors and key employees

    total $639,542 · program services $639,542

  • 7 · Other salaries and wages

    total $341,392 · program services $341,392

  • 8 · Pension plan contributions

    total $42,691 · program services $42,691

  • 9 · Other employee benefits

    total $108,640 · program services $108,640

  • 10 · Payroll taxes

    total $56,761 · program services $56,761

  • 11a · Fees: management

    total $13,568 · program services $1,613 · management and general $11,955

  • 11b · Fees: legal

    total $86,585 · program services $86,585

  • 11c · Fees: accounting

    total $17,980 · management and general $17,980

  • 13 · Office expenses

    total $6,893 · program services $6,893

  • 16 · Occupancy

    total $11,637 · program services $11,637

  • 17 · Travel

    total $48,582 · program services $48,059 · management and general $523

  • 19 · Conferences, conventions and meetings

    total $59,523 · program services $57,685 · management and general $1,838

  • 24a · Other expenses: PRINTING & SUBSCRIPTION

    total $7,222 · program services $962 · management and general $6,260

  • 24e · All other expenses

    total $35 · program services $35

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $123,509 · end of year $123,221

  • 7 · Other notes and loans receivable

    beginning of year $3,250,000 · end of year $1,250,000

  • 9 · Prepaid expenses and deferred charges

    beginning of year $750 · end of year $800

  • 13 · Investments: program-related

    beginning of year $42,666,783 · end of year $53,199,218

  • 15 · Other assets

    beginning of year $6,419,765 · end of year $5,060,459

  • 17 · Accounts payable and accrued expenses

    beginning of year $85,288 · end of year $103,316

  • 27 · Net assets without donor restrictions

    beginning of year $52,375,519 · end of year $59,530,382

Mission and programs · 2024

Mission

THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.

Activities or mission (Part I)

SEE SCHEDULE O

  • THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND (RD FUND) AIMS TO DELIVER LIFE-CHANGING SOLUTIONS FOR INDIVIDUALS WITH RETINAL DEGENERATIVE DISEASES TODAY, WHILE CREATING A PIPELINE OF NEXT-GENERATION AND NOVEL THERAPEUTIC OPPORTUNITIES FOR TOMORROW. RD FUND IS FLEXIBLE IN HOW IT STRUCTURES INVESTMENTS LEVERAGING EQUITY, DEBT, ROYALTY, AND/OR PROJECT CO-FUNDING. ALL PROCEEDS OF THIS HIGH-IMPACT PHILANTHROPIC VEHICLE ARE RETURNED TO THE FOUNDATION TO PROVIDE RESOURCES FOR FURTHERING ITS MISSION. RD FUND ACCOMPLISHES THIS BY INVESTING IN EARLY STAGE BIOTECHNOLOGY COMPANIES THAT ARE FOCUSED ON ADVANCING PROMISING THERAPIES FOR RETINAL DEGENERATIVE DISEASES.

    Expenses $2,402,495 · Grants $1,000,000

As filed on the 2024 return.

Listed in Part VII

  • Adrienne Graves PhD

    CHAIRMAN

    Total calculated
    $12,500
    From this org
    $12,500
    From related orgs
    $0
    Other
    $0
    Hours/week
    1 + 1 related
  • Karen Petrou

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    1 + 10 related
  • Tony Adamis MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Jean Bennett MD PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Mark Blumenkranz MD Mms

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Catherine Bowes Rickman PhD

    DIRECTOR

    Total calculated
    $15,000
    From this org
    $0
    From related orgs
    $15,000
    Other
    $0
    Hours/week
    1 + 1 related
  • Jacque Duncan MD

    DIRECTOR

    Total calculated
    $75,000
    From this org
    $0
    From related orgs
    $75,000
    Other
    $0
    Hours/week
    1 + 5 related
  • Kelly Lisbakken

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Jose-Alain Sahel MD

    DIRECTOR

    Total calculated
    $15,000
    From this org
    $0
    From related orgs
    $15,000
    Other
    $0
    Hours/week
    1 + 1 related
  • Jonathan Steinberg MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1 + 1 related
  • Warren Thaler

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1 + 1 related
  • Jason D Menzo

    CEO

    Total calculated
    $723,931
    From this org
    $126,140
    From related orgs
    $504,560
    Other
    $93,231
    Hours/week
    8 + 32 related

    Schedule J breakdown matched by us

    Base
    $88,178 + $352,711 related
    Bonus
    $19,645 + $78,580 related
    Other
    $18,317 + $73,270 related
    Deferred
    $7,107 + $28,430 related
    Nontaxable benefits
    $11,539 + $46,155 related
    Filer's total
    $144,786 + $579,146 related
  • Peter L Ginsberg

    COO / ACTING TREASURER, RD FUND

    Total calculated
    $540,342
    From this org
    $91,006
    From related orgs
    $364,025
    Other
    $85,311
    Hours/week
    8 + 32 related

    Schedule J breakdown matched by us

    Base
    $65,948 + $263,793 related
    Bonus
    $8,916 + $35,664 related
    Other
    $16,142 + $64,569 related
    Deferred
    $6,909 + $27,635 related
    Nontaxable benefits
    $10,153 + $40,614 related
    Filer's total
    $108,069 + $432,275 related
  • Russell W Kelley

    MANAGING DIRECTOR, RD FUND

    Total calculated
    $533,294
    From this org
    $447,300
    From related orgs
    $0
    Other
    $85,994
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $326,079
    Bonus
    $42,765
    Other
    $78,456
    Deferred
    $32,428
    Nontaxable benefits
    $53,566
    Filer's total
    $533,294
  • Alicia Kemble

    SR. VENTURE ASSOCIATE

    Total calculated
    $212,884
    From this org
    $164,205
    From related orgs
    $0
    Other
    $48,679
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $151,872
    Bonus
    $12,211
    Other
    $122
    Deferred
    $9,665
    Nontaxable benefits
    $39,014
    Filer's total
    $212,884

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 4b · Supplemental nonqualified retirement plan
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

SCHEDULE J, PART I, LINE 3:
THE FOUNDATION FIGHTING BLINDNESS, INC., A RELATED ORGANIZATION, ESTABLISHES THE COMPENSATION FOR THE ORGANIZATION'S EMPLOYEES. THE FOUNDATION FIGHTING BLINDNESS, INC. USES AN EXECUTIVE COMMITTEE, INDEPENDENT COMPENSATION CONSULTANT, 990 OF OTHER ORGANIZATIONS, A COMPENSATION SURVEY OR STUDY, AND APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE. SCHEDULE J, PART I, LINE 4B: SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN FFB OFFERS A LONG-TERM INCENTIVE PLAN (LTIP) TO CERTAIN MEMBERS OF THE EXECUTIVE MANAGEMENT TEAM. THE PLAN OPERATES ON A THREE-YEAR CYCLE WHEREIN INCENTIVE PAYMENTS ARE ACCRUED ANNUALLY BASED UPON ACHIEVEMENT OF PERFORMANCE OBJECTIVES AND PAID OUT AT THE END OF THE THREE-YEAR PERIOD. THE LAST CYCLE COVERED FISCAL YEARS 2022, 2023, AND 2024, AND WAS PAID OUT IN THE FALL OF 2024. SUBSEQUENTLY, THE FOLLOWING AMOUNTS ARE INCLUDED AS TAXABLE COMPENSATION IN SCHEDULE J, PART II, COLUMN (B)(III): - JASON D. MENZO: $91,227 - PETER L. GINSBERG: $79,679 - RUSSELL W. KELLEY: $77,904 A NEW LTIP THREE-YEAR CYCLE COMMENCED JULY 1, 2024, AND WILL COVER FISCAL YEARS 2025, 2026, AND 2027. THE FOLLOWING AMOUNTS WERE ACCRUED IN CALENDAR YEAR 2024 AND ARE THEREFORE INCLUDED AS DEFERRED COMPENSATION IN SCHEDULE J, PART II, COLUMN (C): - JASON D. MENZO: $15,531 - PETER L. GINSBERG: $11,589 - RUSSELL W. KELLEY: $11,367 SCHEDULE J, PART I, LINE 7: FFB EMPLOYEES PARTICIPATE IN AN ANNUAL INCENTIVE PLAN. THE PLAN PROVIDES AN ANNUAL CASH BONUS DEPENDING UPON THE ACHIEVEMENT OF PRE-DETERMINED ORGANIZATION AND INDIVIDUAL PERFORMANCE CRITERIA.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

  • OPUS GENETICS INC

    $1,000,000

    RESEARCH FUNDING

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2024
Filed
3 November 2025
IRS schema version
2024v5.2
Source object
202533079349303093

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