Form 990 for tax year 2024
Filed by FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND.
Totals
- Total revenue
- $7,006,271
- Total expenses
- $2,441,051
- Contributions and grants received
- $8,771,404
- Grants paid
- $1,000,000
- Program service revenue
- $0
- Investment income
- -$1,765,133
- Other revenue
- $0
- Total assets, end of year
- $59,633,698
- Total liabilities, end of year
- $103,316
- Net assets or fund balances, end of year
- $59,530,382
- Program services expenses (Part IX)
- $2,402,495
- Management and general expenses
- $38,556
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $2,402,495
Program services were 98.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1d · Related organizations
$8,771,404
-
3 · Investment income
total $234,849 · excluded $234,849
-
7b · Less cost or other basis and sales expenses
other assets $1,999,982
-
7c · Gain or loss
other assets -$1,999,982
-
7d · Net gain or loss
total -$1,999,982 · excluded -$1,999,982
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $1,000,000 · program services $1,000,000
-
5 · Compensation of officers, directors and key employees
total $639,542 · program services $639,542
-
7 · Other salaries and wages
total $341,392 · program services $341,392
-
8 · Pension plan contributions
total $42,691 · program services $42,691
-
9 · Other employee benefits
total $108,640 · program services $108,640
-
10 · Payroll taxes
total $56,761 · program services $56,761
-
11a · Fees: management
total $13,568 · program services $1,613 · management and general $11,955
-
11b · Fees: legal
total $86,585 · program services $86,585
-
11c · Fees: accounting
total $17,980 · management and general $17,980
-
13 · Office expenses
total $6,893 · program services $6,893
-
16 · Occupancy
total $11,637 · program services $11,637
-
17 · Travel
total $48,582 · program services $48,059 · management and general $523
-
19 · Conferences, conventions and meetings
total $59,523 · program services $57,685 · management and general $1,838
-
24a · Other expenses: PRINTING & SUBSCRIPTION
total $7,222 · program services $962 · management and general $6,260
-
24e · All other expenses
total $35 · program services $35
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $123,509 · end of year $123,221
-
7 · Other notes and loans receivable
beginning of year $3,250,000 · end of year $1,250,000
-
9 · Prepaid expenses and deferred charges
beginning of year $750 · end of year $800
-
13 · Investments: program-related
beginning of year $42,666,783 · end of year $53,199,218
-
15 · Other assets
beginning of year $6,419,765 · end of year $5,060,459
-
17 · Accounts payable and accrued expenses
beginning of year $85,288 · end of year $103,316
-
27 · Net assets without donor restrictions
beginning of year $52,375,519 · end of year $59,530,382
Mission and programs · 2024
Mission
THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND'S MISSION IS TO ACCELERATE THE TRANSLATION OF RETINAL LABORATORY-BASED RESEARCH INTO CLINICAL TRIALS TO EXPEDITE THE COMMERCIALIZATION OF PATIENT THERAPIES.
Activities or mission (Part I)
SEE SCHEDULE O
-
THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND (RD FUND) AIMS TO DELIVER LIFE-CHANGING SOLUTIONS FOR INDIVIDUALS WITH RETINAL DEGENERATIVE DISEASES TODAY, WHILE CREATING A PIPELINE OF NEXT-GENERATION AND NOVEL THERAPEUTIC OPPORTUNITIES FOR TOMORROW. RD FUND IS FLEXIBLE IN HOW IT STRUCTURES INVESTMENTS LEVERAGING EQUITY, DEBT, ROYALTY, AND/OR PROJECT CO-FUNDING. ALL PROCEEDS OF THIS HIGH-IMPACT PHILANTHROPIC VEHICLE ARE RETURNED TO THE FOUNDATION TO PROVIDE RESOURCES FOR FURTHERING ITS MISSION. RD FUND ACCOMPLISHES THIS BY INVESTING IN EARLY STAGE BIOTECHNOLOGY COMPANIES THAT ARE FOCUSED ON ADVANCING PROMISING THERAPIES FOR RETINAL DEGENERATIVE DISEASES.
Expenses $2,402,495 · Grants $1,000,000
As filed on the 2024 return.
Listed in Part VII
-
Adrienne Graves PhDADRIENNE GRAVES PHD
CHAIRMAN
- Total calculated
- $12,500
- From this org
- $12,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 1 + 1 related
-
Karen PetrouKAREN PETROU
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 1 + 10 related
-
Tony Adamis MDTONY ADAMIS MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Jean Bennett MD PhDJEAN BENNETT MD PHD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Mark Blumenkranz MD MmsMARK BLUMENKRANZ MD MMS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Catherine Bowes Rickman PhDCATHERINE BOWES RICKMAN PHD
DIRECTOR
- Total calculated
- $15,000
- From this org
- $0
- From related orgs
- $15,000
- Other
- $0
- Hours/week
- 1 + 1 related
-
Jacque Duncan MDJACQUE DUNCAN MD
DIRECTOR
- Total calculated
- $75,000
- From this org
- $0
- From related orgs
- $75,000
- Other
- $0
- Hours/week
- 1 + 5 related
-
Kelly LisbakkenKELLY LISBAKKEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Jose-Alain Sahel MDJOSE-ALAIN SAHEL MD
DIRECTOR
- Total calculated
- $15,000
- From this org
- $0
- From related orgs
- $15,000
- Other
- $0
- Hours/week
- 1 + 1 related
-
Jonathan Steinberg MDJONATHAN STEINBERG MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Warren ThalerWARREN THALER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Jason D MenzoJASON D MENZO
CEO
- Total calculated
- $723,931
- From this org
- $126,140
- From related orgs
- $504,560
- Other
- $93,231
- Hours/week
- 8 + 32 related
Schedule J breakdown matched by us
- Base
- $88,178 + $352,711 related
- Bonus
- $19,645 + $78,580 related
- Other
- $18,317 + $73,270 related
- Deferred
- $7,107 + $28,430 related
- Nontaxable benefits
- $11,539 + $46,155 related
- Filer's total
- $144,786 + $579,146 related
-
Peter L GinsbergPETER L GINSBERG
COO / ACTING TREASURER, RD FUND
- Total calculated
- $540,342
- From this org
- $91,006
- From related orgs
- $364,025
- Other
- $85,311
- Hours/week
- 8 + 32 related
Schedule J breakdown matched by us
- Base
- $65,948 + $263,793 related
- Bonus
- $8,916 + $35,664 related
- Other
- $16,142 + $64,569 related
- Deferred
- $6,909 + $27,635 related
- Nontaxable benefits
- $10,153 + $40,614 related
- Filer's total
- $108,069 + $432,275 related
-
Russell W KelleyRUSSELL W KELLEY
MANAGING DIRECTOR, RD FUND
- Total calculated
- $533,294
- From this org
- $447,300
- From related orgs
- $0
- Other
- $85,994
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $326,079
- Bonus
- $42,765
- Other
- $78,456
- Deferred
- $32,428
- Nontaxable benefits
- $53,566
- Filer's total
- $533,294
-
Alicia KembleALICIA KEMBLE
SR. VENTURE ASSOCIATE
- Total calculated
- $212,884
- From this org
- $164,205
- From related orgs
- $0
- Other
- $48,679
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $151,872
- Bonus
- $12,211
- Other
- $122
- Deferred
- $9,665
- Nontaxable benefits
- $39,014
- Filer's total
- $212,884
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 4b · Supplemental nonqualified retirement plan
- 7 · Other non-fixed payments
Answered no
- 4a · Severance or change-of-control payment
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 8 · Paid under the initial-contract exception
The filer's explanations (Part III)
- SCHEDULE J, PART I, LINE 3:
- THE FOUNDATION FIGHTING BLINDNESS, INC., A RELATED ORGANIZATION, ESTABLISHES THE COMPENSATION FOR THE ORGANIZATION'S EMPLOYEES. THE FOUNDATION FIGHTING BLINDNESS, INC. USES AN EXECUTIVE COMMITTEE, INDEPENDENT COMPENSATION CONSULTANT, 990 OF OTHER ORGANIZATIONS, A COMPENSATION SURVEY OR STUDY, AND APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE. SCHEDULE J, PART I, LINE 4B: SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN FFB OFFERS A LONG-TERM INCENTIVE PLAN (LTIP) TO CERTAIN MEMBERS OF THE EXECUTIVE MANAGEMENT TEAM. THE PLAN OPERATES ON A THREE-YEAR CYCLE WHEREIN INCENTIVE PAYMENTS ARE ACCRUED ANNUALLY BASED UPON ACHIEVEMENT OF PERFORMANCE OBJECTIVES AND PAID OUT AT THE END OF THE THREE-YEAR PERIOD. THE LAST CYCLE COVERED FISCAL YEARS 2022, 2023, AND 2024, AND WAS PAID OUT IN THE FALL OF 2024. SUBSEQUENTLY, THE FOLLOWING AMOUNTS ARE INCLUDED AS TAXABLE COMPENSATION IN SCHEDULE J, PART II, COLUMN (B)(III): - JASON D. MENZO: $91,227 - PETER L. GINSBERG: $79,679 - RUSSELL W. KELLEY: $77,904 A NEW LTIP THREE-YEAR CYCLE COMMENCED JULY 1, 2024, AND WILL COVER FISCAL YEARS 2025, 2026, AND 2027. THE FOLLOWING AMOUNTS WERE ACCRUED IN CALENDAR YEAR 2024 AND ARE THEREFORE INCLUDED AS DEFERRED COMPENSATION IN SCHEDULE J, PART II, COLUMN (C): - JASON D. MENZO: $15,531 - PETER L. GINSBERG: $11,589 - RUSSELL W. KELLEY: $11,367 SCHEDULE J, PART I, LINE 7: FFB EMPLOYEES PARTICIPATE IN AN ANNUAL INCENTIVE PLAN. THE PLAN PROVIDES AN ANNUAL CASH BONUS DEPENDING UPON THE ACHIEVEMENT OF PRE-DETERMINED ORGANIZATION AND INDIVIDUAL PERFORMANCE CRITERIA.
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
OPUS GENETICS INC
$1,000,000
RESEARCH FUNDING
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
-
THE FOUNDATION FIGHTING BLINDNESS INC
501(C)(3) · RESEARCH · MD
-
MACULAR DEGENERATION INTERNATIONAL INC
501(C)(3) · FUNDRAISING · IL
Directly controlled by THE FOUNDATION FIGHTING BLINDNESS INC
-
NATIONAL RETINITIS PIGMENTOSA FOUNDATION
501(C)(3) · FUNDRAISING · MD
Directly controlled by THE FOUNDATION FIGHTING BLINDNESS INC
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 3 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202533079349303093
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