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Nonprofiteer
← PARKINSONS FOUNDATION INC

Form 990 for tax year 2022

Filed by PARKINSONS FOUNDATION INC.

Totals

Total revenue
$48,333,484
Total expenses
$48,541,314
Contributions and grants received
$47,794,248
Grants paid
$12,653,388
Program service revenue
$0
Investment income
$539,236
Other revenue
$0
Total assets, end of year
$47,034,483
Total liabilities, end of year
$15,025,829
Net assets or fund balances, end of year
$32,008,654
Program services expenses (Part IX)
$39,308,989
Management and general expenses
$2,671,415
Fundraising expenses
$6,560,910
Program service expenses (Part III)
$39,308,989

Program services were 81.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $3,975,477

  • 1f · All other contributions, gifts and grants

    $43,818,771

  • 1g · Noncash contributions included above

    $603,639

  • 3 · Investment income

    total $889,150 · excluded $889,150

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0

  • 5 · Royalties

    total $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0

  • 7a · Gross sales of assets other than inventory

    securities $21,792,761 · other assets $50,000

  • 7b · Less cost or other basis and sales expenses

    securities $22,110,203 · other assets $82,472

  • 7c · Gain or loss

    securities -$317,442 · other assets -$32,472

  • 7d · Net gain or loss

    total -$349,914 · excluded -$349,914

  • 8a · Fundraising events: gross income

    $374,700

  • 8a · Fundraising events: contributions included on line 1c

    $3,975,477

  • 8b · Fundraising events: direct expenses

    $374,700

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0

  • 10a · Gross sales of inventory

    $0

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $9,961,787 · program services $9,961,787

  • 2 · Grants to domestic individuals

    total $160,662 · program services $160,662

  • 3 · Grants to foreign organizations and individuals

    total $2,530,939 · program services $2,530,939

  • 4 · Benefits paid to or for members

    total $0

  • 5 · Compensation of officers, directors and key employees

    total $2,598,309 · program services $2,046,314 · management and general $210,098 · fundraising $341,897

  • 6 · Compensation of disqualified persons

    total $0

  • 7 · Other salaries and wages

    total $11,380,895 · program services $8,965,871 · management and general $917,299 · fundraising $1,497,725

  • 8 · Pension plan contributions

    total $679,458 · program services $533,497 · management and general $56,657 · fundraising $89,304

  • 9 · Other employee benefits

    total $1,701,866 · program services $1,336,275 · management and general $141,907 · fundraising $223,684

  • 10 · Payroll taxes

    total $1,037,621 · program services $814,721 · management and general $86,520 · fundraising $136,380

  • 11a · Fees: management

    total $0

  • 11b · Fees: legal

    total $262,774 · program services $100,187 · management and general $152,840 · fundraising $9,747

  • 11c · Fees: accounting

    total $105,000 · management and general $105,000

  • 11d · Fees: lobbying

    total $0

  • 11e · Fees: professional fundraising services

    total $0

  • 11f · Fees: investment management

    total $175,967 · management and general $175,967

  • 11g · Fees: other

    total $5,510,302 · program services $3,626,050 · management and general $365,662 · fundraising $1,518,590

  • 12 · Advertising and promotion

    total $1,821,902 · program services $1,693,901 · fundraising $128,001

  • 13 · Office expenses

    total $2,130,106 · program services $952,315 · management and general $50,955 · fundraising $1,126,836

  • 14 · Information technology

    total $1,123,732 · program services $881,411 · management and general $106,677 · fundraising $135,644

  • 15 · Royalties

    total $0

  • 16 · Occupancy

    total $1,211,219 · program services $1,053,991 · management and general $99,218 · fundraising $58,010

  • 17 · Travel

    total $1,062,729 · program services $848,529 · management and general $73,340 · fundraising $140,860

  • 18 · Travel or entertainment for public officials

    total $0

  • 19 · Conferences, conventions and meetings

    total $685,157 · program services $674,340 · management and general $7,977 · fundraising $2,840

  • 20 · Interest

    total $0

  • 21 · Payments to affiliates

    total $0

  • 22 · Depreciation, depletion and amortization

    total $496,077 · program services $405,754 · management and general $20,822 · fundraising $69,501

  • 23 · Insurance

    total $208,567 · program services $170,222 · management and general $21,786 · fundraising $16,559

  • 24a · Other expenses: PRINTING & PUBLICATIONS

    total $1,807,124 · program services $1,125,803 · management and general $3,394 · fundraising $677,927

  • 24b · Other expenses: CATERING AND MEETINGS

    total $999,565 · program services $951,751 · management and general $10,258 · fundraising $37,556

  • 24c · Other expenses: BANK AND CREDIT CARD EXPENSES

    total $307,021 · program services $88,073 · management and general $197 · fundraising $218,751

  • 24d · Other expenses: REPAIRS & MAINTENANCE

    total $83,443 · program services $64,260 · management and general $10,707 · fundraising $8,476

  • 24e · All other expenses

    total $499,092 · program services $322,336 · management and general $54,134 · fundraising $122,622

  • 26 · Joint costs (an allocation of the lines above)

    total $3,586,271 · program services $1,161,838 · management and general $0 · fundraising $2,424,433

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $209,523 · end of year $390,460

  • 2 · Savings and temporary cash investments

    beginning of year $0 · end of year $0

  • 3 · Pledges and grants receivable

    beginning of year $6,138,927 · end of year $6,982,514

  • 4 · Accounts receivable

    beginning of year $0 · end of year $0

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $192,752 · end of year $190,681

  • 10a · Land, buildings and equipment: cost or other basis

    $3,690,829

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,202,957

  • 10c · Land, buildings and equipment, net

    beginning of year $1,480,883 · end of year $1,487,872

  • 11 · Investments: publicly traded securities

    beginning of year $43,678,031 · end of year $36,967,766

  • 12 · Investments: other securities

    beginning of year $0 · end of year $0

  • 13 · Investments: program-related

    beginning of year $0 · end of year $0

  • 14 · Intangible assets

    beginning of year $0 · end of year $0

  • 15 · Other assets

    beginning of year $0 · end of year $1,015,190

  • 17 · Accounts payable and accrued expenses

    beginning of year $4,072,033 · end of year $3,143,213

  • 18 · Grants payable

    beginning of year $16,771,095 · end of year $10,357,143

  • 19 · Deferred revenue

    beginning of year $701,538 · end of year $0

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $358,190 · end of year $1,525,473

  • 27 · Net assets without donor restrictions

    beginning of year $23,604,184 · end of year $22,581,042

  • 28 · Net assets with donor restrictions

    beginning of year $6,193,076 · end of year $9,427,612

Mission and programs · 2022

Mission

THE FOUNDATION'S MISSION IS TO MAKE LIFE BETTER FOR PEOPLE WITH PARKINSON'S DISEASE BY IMPROVING CARE AND ADVANCING RESEARCH TOWARD A CURE. IN EVERYTHING WE DO, WE BUILD ON THE ENERGY, EXPERIENCE AND PASSION OF OUR GLOBAL PARKINSON'S COMMUNITY.(CONTINUED ON SCHEDULE O)

Activities or mission (Part I)

MAKE LIFE BETTER FOR PEOPLE WITH PARKINSON'S DISEASE BY IMPROVING CARE AND ADVANCING RESEARCH TOWARD A CURE.

  • PILLAR 2 - UNDERSTANDING PARKINSON'S THROUGH RESEARCH: THE MOST INNOVATIVE IDEAS AND CREATIVE RESEARCH INITIATIVES OFTEN COME FROM NEW INVESTIGATORS. THE FOUNDATION CURRENTLY INVESTS NEARLY $10 MILLION ANNUALLY IN THE MOST PROMISING RESEARCH. NOT ONLY ARE WE WORKING TO UNDERSTAND THE CAUSE AND PROGRESSION OF PARKINSON'S, WE ARE ALSO ATTRACTING TALENTED SCIENTISTS TO A CAREER IN PARKINSON'S RESEARCH AND FUNDING MORE INVESTIGATORS TO START CAREERS WORKING ON PARKINSON'S. WE IDENTIFY AND ADDRESS THE UNMET NEEDS OF PEOPLE WITH PD BY DRIVING CUTTING-EDGE RESEARCH. (CONTINUED ON SCHEDULE O)

    Expenses $12,573,516 · Grants $8,149,243

  • PILLAR 1 - ENSURING BETTER CARE FOR EVERYONE: WE SET STANDARDS FOR EXPERT PARKINSON'S CARE THROUGH A GLOBAL CARE NETWORK. THESE CENTERS OF EXCELLENCE ARE RENOWNED FOR OUTSTANDING PERFORMANCE IN PARKINSON'S RESEARCH, CARE AND OUTREACH. OVER THE NEXT FEW YEARS, WE WILL SIGNIFICANTLY INCREASE THE NUMBER OF CENTERS OF EXCELLENCE IN THE NETWORK, GREATLY EXPANDING OUR OVERALL COVERAGE, AND FACILITATE INNOVATIVE SOLUTIONS LIKE TELEMEDICINE CARE TO REACH THE 90% OF PEOPLE WHO ARE NOT RECEIVING CARE FROM TRAINED SPECIALISTS. RESPONDING TO A NATIONWIDE SHORTAGE OF TRAINED SPECIALISTS, WE ARE CLOSING THE GAP IN PD PROFESSIONAL TRAINING (CONTINUED ON SCHEDULE O)

    Expenses $11,342,739 · Grants $3,776,169

  • PILLAR 3 - EDUCATING AND EMPOWERING THE PARKINSON'S COMMUNITY: WE EDUCATE AND EMPOWER PEOPLE THROUGH THE NATIONAL NETWORK OF STAFF AND VOLUNTEERS. THE FOUNDATION IS THE FIRST ORGANIZATION TO FORM A PARKINSON'S ADVISORY COUNCIL AND THE FIRST TO TRAIN PEOPLE WITH PD TO PARTNER WITH SCIENTISTS ON RESEARCH. WE HELP PEOPLE LIVE WELL WITH PD BY PROVIDING FREE RESOURCES INCLUDING EDUCATIONAL BOOKS, WEBINARS, PODCASTS, A LIFE-SAVING HOSPITALIZATION KIT, AND A TOLL FREE NUMBER STAFFED BY PARKINSON'S SPECIALISTS WHO ANSWER NEARLY 25,000 CALLS ANNUALLY. (CONTINUED ON SCHEDULE O)

    Expenses $15,392,734 · Grants $727,976

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • JOHN L LEHR

    PRESIDENT & CEO

    Total calculated
    $530,192
    From this org
    $505,647
    From related orgs
    $0
    Other
    $24,545
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $390,147
    Bonus
    $115,500
    Other
    $0
    Deferred
    $15,250
    Nontaxable benefits
    $9,295
    Filer's total
    $530,192

  • KAYLN HENKEL

    SVP, Chief Advancement Officer

    Total calculated
    $296,884
    From this org
    $265,508
    From related orgs
    $0
    Other
    $31,376
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $222,660
    Bonus
    $42,848
    Other
    $0
    Deferred
    $13,275
    Nontaxable benefits
    $18,101
    Filer's total
    $296,884

  • CURTIS DE GREFF

    ASST TREAS/SVP, CFO THRU 12/22

    Total calculated
    $282,802
    From this org
    $251,650
    From related orgs
    $0
    Other
    $31,152
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $218,698
    Bonus
    $32,952
    Other
    $0
    Deferred
    $12,583
    Nontaxable benefits
    $18,569
    Filer's total
    $282,802

  • JAMES BECK

    SVP, CHIEF SCIENTIFIC OFFICER

    Total calculated
    $282,074
    From this org
    $264,871
    From related orgs
    $0
    Other
    $17,203
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $230,765
    Bonus
    $34,106
    Other
    $0
    Deferred
    $13,244
    Nontaxable benefits
    $3,959
    Filer's total
    $282,074

  • LEILANI PEARL

    ASSISTANT SECRETARY/SVP CCO

    Total calculated
    $260,698
    From this org
    $239,431
    From related orgs
    $0
    Other
    $21,267
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $209,211
    Bonus
    $30,220
    Other
    $0
    Deferred
    $11,972
    Nontaxable benefits
    $9,295
    Filer's total
    $260,698

  • CHRISTIANA EVERS

    VP, CHIEF COMM. ENG. OFFICER

    Total calculated
    $255,376
    From this org
    $217,867
    From related orgs
    $0
    Other
    $37,509
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $188,898
    Bonus
    $28,969
    Other
    $0
    Deferred
    $10,893
    Nontaxable benefits
    $26,616
    Filer's total
    $255,376

  • YASNAHIA CORTORREAL

    VP, CHIEF HR & ADMIN. OFFICER

    Total calculated
    $225,820
    From this org
    $211,313
    From related orgs
    $0
    Other
    $14,507
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $184,275
    Bonus
    $27,038
    Other
    $0
    Deferred
    $10,566
    Nontaxable benefits
    $3,941
    Filer's total
    $225,820

  • ELIZABETH POLLARD

    VP, CHIEF TRAINING & EDU. OFC.

    Total calculated
    $225,369
    From this org
    $189,315
    From related orgs
    $0
    Other
    $36,054
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $164,140
    Bonus
    $25,175
    Other
    $0
    Deferred
    $9,466
    Nontaxable benefits
    $26,588
    Filer's total
    $225,369

  • VERONICA TODARO

    EXE. VP, COO THRU 08/2022

    Total calculated
    $221,034
    From this org
    $193,430
    From related orgs
    $0
    Other
    $27,604
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $156,178
    Bonus
    $37,252
    Other
    $0
    Deferred
    $9,672
    Nontaxable benefits
    $17,932
    Filer's total
    $221,034

  • SHEERA ROSENFELD

    VP, STRATEGIC INITIATIVES

    Total calculated
    $210,462
    From this org
    $176,685
    From related orgs
    $0
    Other
    $33,777
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $175,685
    Bonus
    $1,000
    Other
    $0
    Deferred
    $8,834
    Nontaxable benefits
    $24,943
    Filer's total
    $210,462

  • NICOLE YARAB

    VP, CLINICAL AFFRS/INFO RSRCS

    Total calculated
    $197,406
    From this org
    $170,251
    From related orgs
    $0
    Other
    $27,155
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $170,251
    Bonus
    $0
    Other
    $0
    Deferred
    $8,513
    Nontaxable benefits
    $18,642
    Filer's total
    $197,406

  • ALEJANDRO BLANCO

    AVP Finance

    Total calculated
    $183,034
    From this org
    $166,021
    From related orgs
    $0
    Other
    $17,013
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $164,721
    Bonus
    $1,300
    Other
    $0
    Deferred
    $8,301
    Nontaxable benefits
    $8,712
    Filer's total
    $183,034

  • KATE NELSON

    AVP Individual Giving

    Total calculated
    $149,086
    From this org
    $140,754
    From related orgs
    $0
    Other
    $8,332
    Hours/week
    40

  • LINDA PORATH

    National Director INST. GIVING

    Total calculated
    $142,228
    From this org
    $133,643
    From related orgs
    $0
    Other
    $8,585
    Hours/week
    40

  • MARK KEAVEY

    ASST TREAS SVP CFO AS OF 12/22

    Total calculated
    $18,058
    From this org
    $17,000
    From related orgs
    $0
    Other
    $1,058
    Hours/week
    40

  • J GORDON BECKHAM

    CHAIR

    Total calculated
    $0
    Hours/week
    5

  • ANDREW B ALBERT

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5

  • CONSTANCE W ATWELL PHD

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

  • PAUL H NATHAN

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • STEPHEN ACKERMAN

    ASSISTANT TREASURER

    Total calculated
    $0
    Hours/week
    5

  • HOWARD D MORGAN

    IMMEDIATE PAST CHAIR

    Total calculated
    $0
    Hours/week
    5

  • JENA ABERNATHY

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • SARAH BROWN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • MARSHALL BURACK

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • ALESSANDRO DI ROCCO MD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • G PENNINGTON EGBERT

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • PAOLO FRESCO

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • MARY ELLEN GARRETT

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • PETER GOLDMAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • STEPHANIE GOLDMAN ROSEN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • PONDER HARRISON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • ALISON HERMAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • TRAVIS HOWE

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • MINDY MCILROY

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • JANIS MIYASAKI MD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • WILLIAM R MOLER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • MARCIA MONDAVI BORGER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • JAMES FT MONHART

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • JAMES MORGAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • JOSHUA RASKIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • JOHN THOMOPOULOS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • CHRISTINA WEAVER JACKSON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • ADAM WOLFBERG

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2022
Filed
31 October 2022
IRS schema version
2022v5.0
Source object
202333069349301663

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