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← HERMANSKY PUDLAK SYNDROME NETWORK INC

Form 990 for tax year 2023

Filed by HERMANSKY PUDLAK SYNDROME NETWORK INC.

What the amendment changed

Compared with the return it replaced , filed 14 February 2025 — the latest of 2 it replaced. matched by us Only the Part I totals and the names listed in Part VII are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Both are the same on the two returns, so the amendment changed something else.

Totals

Total revenue
$323,223
Total expenses
$459,209
Contributions and grants received
$323,067
Grants paid
$0
Program service revenue
$0
Investment income
$156
Other revenue
$0
Total assets, end of year
$283,257
Total liabilities, end of year
$6,853
Net assets or fund balances, end of year
$276,404
Program services expenses (Part IX)
$362,057
Management and general expenses
$53,491
Fundraising expenses
$43,661
Program service expenses (Part III)
$362,057

Program services were 78.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $323,067

  • 3 · Investment income

    total $156 · related or exempt $156

Functional expenses

Part IX, the statement of functional expenses.

  • 6 · Compensation of disqualified persons

    total $19,640 · program services $13,748 · management and general $5,892

  • 7 · Other salaries and wages

    total $83,550 · program services $21,403 · management and general $29,572 · fundraising $32,575

  • 9 · Other employee benefits

    total -$12,917 · management and general -$12,917

  • 10 · Payroll taxes

    total $9,225 · program services $3,194 · management and general $3,177 · fundraising $2,854

  • 11c · Fees: accounting

    total $9,700 · management and general $9,700

  • 11g · Fees: other

    total $39,115 · program services $37,487 · management and general $1,628

  • 12 · Advertising and promotion

    total $1,174 · program services $1,174

  • 13 · Office expenses

    total $14,641 · program services $5,530 · management and general $3,381 · fundraising $5,730

  • 14 · Information technology

    total $8,100 · program services $3,957 · management and general $4,143

  • 17 · Travel

    total $31,235 · program services $31,109 · management and general $1 · fundraising $125

  • 19 · Conferences, conventions and meetings

    total $187,453 · program services $187,453

  • 22 · Depreciation, depletion and amortization

    total $890 · management and general $890

  • 23 · Insurance

    total $1,375 · management and general $1,375

  • 24a · Other expenses: DUES & SUBSCRIPTIONS

    total $18,980 · program services $17,111 · management and general $1,680 · fundraising $189

  • 24b · Other expenses: RESEARCH GRANTS

    total $18,489 · program services $18,489

  • 24c · Other expenses: MEALS

    total $14,080 · program services $14,006 · fundraising $74

  • 24d · Other expenses: EQUIPMENT LEASING

    total $4,369 · management and general $4,369

  • 24e · All other expenses

    total $10,110 · program services $7,396 · management and general $600 · fundraising $2,114

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $145,167 · end of year $245,183

  • 2 · Savings and temporary cash investments

    beginning of year $236,990

  • 10a · Land, buildings and equipment: cost or other basis

    $20,779

  • 10b · Land, buildings and equipment: accumulated depreciation

    $18,552

  • 10c · Land, buildings and equipment, net

    beginning of year $3,117 · end of year $2,227

  • 15 · Other assets

    beginning of year $33,947 · end of year $35,847

  • 25 · Other liabilities

    beginning of year $6,831 · end of year $6,853

  • 27 · Net assets without donor restrictions

    beginning of year $412,390 · end of year $276,404

Mission and programs · 2023

Mission

THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.

  • COMPILES PATIENT DATA TO ASSIST IN RESEARCH, RUNS CONFERENCES TO COLLECT AND PROVIDE DISEASE INFORMATION AND PROVIDES INFORMATION AND SUPPORT TO AFFECTED FAMILIES.

    Expenses $362,057 · Revenue $323,067

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Donna Appell

    PRESIDENT

    Total calculated
    $19,640
    From this org
    $19,640
    From related orgs
    $0
    Other
    $0
    Hours/week
    25

  • Richard Appell

    TREASURER

    Total calculated
    $0

  • Heather Kirkwood

    VP/SEC

    Total calculated
    $0

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2023
Filed
14 February 2025
IRS schema version
2023v6.0
Source object
202510649349301031

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