HERMANSKY PUDLAK SYNDROME NETWORK INC

As filed

Subsection

03

NTEE code

P20Z

Classification

1000

Street

1 SOUTH RD

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

1 other organization in the IRS Business Master File lists the same street address. matched by us

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

• DARE TO BE RARE INC

  EIN 81-5240164

Mission and programs · 2024

• COMPILES PATIENT DATA TO ASSIST IN RESEARCH, RUNS CONFERENCES TO COLLECT AND PROVIDE DISEASE INFORMATION AND PROVIDES INFORMATION AND SUPPORT TO AFFECTED FAMILIES.

  Expenses $329,903

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

• 2024

  Revenue

  $425,468

  Expenses

  $447,480

  Contributions

  $425,375

  Grants paid

  $0

• 2023

  Revenue

  $323,223

  Expenses

  $459,209

  Contributions

  $323,067

  Grants paid

  $0

• 2023

  Revenue

  $323,223

  Expenses

  $459,209

  Contributions

  $323,067

  Grants paid

  $0

• 2023

  Revenue

  $323,223

  Expenses

  $459,209

  Contributions

  $323,067

  Grants paid

  $0

• 2022

  Revenue

  $293,005

  Expenses

  $424,551

  Contributions

  $292,852

  Grants paid

  $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $425,722

  Expenses

  $526,660

  Assets (EOY)

  $559,842

• 2020 · 990

  Revenue

  $632,452

  Expenses

  $385,076

  Assets (EOY)

  $648,592

• 2019 · 990

  Revenue

  $543,187

  Expenses

  $219,309

  Assets (EOY)

  $396,430

• 2018 · 990

  Revenue

  $383,943

  Expenses

  $381,896

  Assets (EOY)

  $71,538

• 2017 · 990

  Revenue

  $334,953

  Expenses

  $326,596

  Assets (EOY)

  $68,981

• 2016 · 990

  Revenue

  $354,830

  Expenses

  $344,555

  Assets (EOY)

  $59,037

• 2014 · 990

  Revenue

  $241,468

  Expenses

  $254,664

  Assets (EOY)

  $51,912

• 2013 · 990

  Revenue

  $218,854

  Expenses

  $212,766

  Assets (EOY)

  $65,126

• 2012 · 990

  Revenue

  — not reported

  Expenses

  $202,270

  Assets (EOY)

  $58,821

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

• SILICON VALLEY COMMUNITY FOUNDATION

  $150,000

  2022 · Human Services

• AMERICAN LEGION CHILD WELFARE FOUNDATION INC

  $17,350

  2023 · Provide a safe place with activities for kids with HPS while parent attend educational sessions.

• DONOR ADVISED CHARITABLE GIVING

  $12,500

  2023 · HUMAN SERVICES

• AMERICAN ONLINE GIVING FOUNDATION INC

  $8,651

  2022 · GENERAL SUPPORT

• THE BLACKBAUD GIVING FUND

  $6,460

  2022 · GENERAL SUPPORT

• THE BLACKBAUD GIVING FUND

  $5,158

  2025 · GENERAL SUPPORT

Other IRS files