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Nonprofiteer
← HERMANSKY PUDLAK SYNDROME NETWORK INC

Form 990 for tax year 2024

Filed by HERMANSKY PUDLAK SYNDROME NETWORK INC.

Totals

Total revenue
$425,468
Total expenses
$447,480
Contributions and grants received
$425,375
Grants paid
$0
Program service revenue
$0
Investment income
$93
Other revenue
$0
Total assets, end of year
$270,081
Total liabilities, end of year
$15,688
Net assets or fund balances, end of year
$254,393
Program services expenses (Part IX)
$329,903
Management and general expenses
$70,559
Fundraising expenses
$47,018
Program service expenses (Part III)
$329,903

Program services were 73.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $425,375

  • 3 · Investment income

    total $93 · related or exempt $93

Functional expenses

Part IX, the statement of functional expenses.

  • 6 · Compensation of disqualified persons

    total $21,600 · program services $15,120 · management and general $6,480

  • 7 · Other salaries and wages

    total $83,026 · program services $22,994 · management and general $28,863 · fundraising $31,169

  • 10 · Payroll taxes

    total $8,513 · program services $3,065 · management and general $2,809 · fundraising $2,639

  • 11c · Fees: accounting

    total $12,425 · program services $1,350 · management and general $11,075

  • 11g · Fees: other

    total $29,993 · program services $29,993

  • 13 · Office expenses

    total $10,363 · program services $2,322 · management and general $2,850 · fundraising $5,191

  • 14 · Information technology

    total $8,332 · program services $3,566 · management and general $4,109 · fundraising $657

  • 17 · Travel

    total $24,611 · program services $22,627 · management and general $72 · fundraising $1,912

  • 19 · Conferences, conventions and meetings

    total $184,324 · program services $184,324

  • 22 · Depreciation, depletion and amortization

    total $891 · management and general $891

  • 23 · Insurance

    total $1,868 · management and general $1,868

  • 24a · Other expenses: RESEARCH GRANTS

    total $21,001 · program services $21,001

  • 24b · Other expenses: DUES & SUBSCRIPTIONS

    total $13,895 · program services $10,921 · management and general $2,712 · fundraising $262

  • 24c · Other expenses: MEALS

    total $7,198 · program services $6,940 · management and general $56 · fundraising $202

  • 24d · Other expenses: FUNDRAISING EXPENSES

    total $4,834 · fundraising $4,834

  • 24e · All other expenses

    total $14,606 · program services $5,680 · management and general $8,774 · fundraising $152

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $245,183 · end of year $230,463

  • 10a · Land, buildings and equipment: cost or other basis

    $20,779

  • 10b · Land, buildings and equipment: accumulated depreciation

    $19,443

  • 10c · Land, buildings and equipment, net

    beginning of year $2,227 · end of year $1,336

  • 15 · Other assets

    beginning of year $35,847 · end of year $38,282

  • 25 · Other liabilities

    beginning of year $6,853 · end of year $15,688

  • 27 · Net assets without donor restrictions

    beginning of year $276,404 · end of year $254,393

Mission and programs · 2024

Mission

THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.

  • COMPILES PATIENT DATA TO ASSIST IN RESEARCH, RUNS CONFERENCES TO COLLECT AND PROVIDE DISEASE INFORMATION AND PROVIDES INFORMATION AND SUPPORT TO AFFECTED FAMILIES.

    Expenses $329,903

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Donna Appell

    PRESIDENT

    Total calculated
    $21,600
    From this org
    $21,600
    From related orgs
    $0
    Other
    $0
    Hours/week
    25

  • Richard Appell

    TREASURER

    Total calculated
    $0

  • Heather Kirkwood

    VP/SEC

    Total calculated
    $0

  • Nancy Lee

    BOARD MEMBER

    Total calculated
    $0

  • Becky Nieves

    BOARD MEMBER

    Total calculated
    $0

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
1 December 2025
IRS schema version
2024v5.0
Source object
202630379349301118

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