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← BARDET BIEDL SYNDROME FOUNDATION

Form 990 for tax year 2022

Filed by BARDET BIEDL SYNDROME FOUNDATION.

Totals

Total revenue
$372,565
Total expenses
$172,225
Contributions and grants received
$372,549
Grants paid
$100,000
Program service revenue
$0
Investment income
$16
Other revenue
$0
Total assets, end of year
$415,865
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$415,865
Program services expenses (Part IX)
$172,101
Management and general expenses
$124
Fundraising expenses
$0
Program service expenses (Part III)
$172,101

Program services were 99.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $117,583

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $254,966

  • 1g · Noncash contributions included above

    $0

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $16 · related or exempt $16 · unrelated business $0 · excluded $0

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $117,583

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $100,000 · program services $100,000

  • 2 · Grants to domestic individuals

    total $0 · program services $0

  • 3 · Grants to foreign organizations and individuals

    total $0 · program services $0

  • 4 · Benefits paid to or for members

    total $0 · program services $0

  • 5 · Compensation of officers, directors and key employees

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 6 · Compensation of disqualified persons

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 7 · Other salaries and wages

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 8 · Pension plan contributions

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 9 · Other employee benefits

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 10 · Payroll taxes

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11a · Fees: management

    total $7,084 · program services $7,084 · management and general $0 · fundraising $0

  • 11b · Fees: legal

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11c · Fees: accounting

    total $48 · program services $48 · management and general $0 · fundraising $0

  • 11d · Fees: lobbying

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11e · Fees: professional fundraising services

    total $0 · fundraising $0

  • 11f · Fees: investment management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11g · Fees: other

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 12 · Advertising and promotion

    total $13,695 · program services $13,695 · management and general $0 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $2,936 · program services $2,936

  • 24a · Other expenses: Bank Service Charges

    total $30 · program services $0 · management and general $30 · fundraising $0

  • 24b · Other expenses: Business Registration Fees

    total $94 · program services $0 · management and general $94 · fundraising $0

  • 24e · All other expenses

    total $48,338 · program services $48,338

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $0 · end of year $0

  • 2 · Savings and temporary cash investments

    beginning of year $215,525 · end of year $415,865

  • 29 · Capital stock, trust principal or current funds

    beginning of year $215,525 · end of year $415,865

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $0 · end of year $0

Mission and programs · 2022

Mission

Funding research for Bardet Biedl Syndrome

  • Grants to Marshfield Clinic Research Institute to support their CRIBBS registry.

    Expenses $100,000 · Grants $100,000

  • Fundraising

    Expenses $48,338 · Revenue $117,583

  • Conferences and Marketing Expenses

    Expenses $16,631

  • Contract services

    Expenses $7,084

  • Accounting fees

    Expenses $48

As filed on the 2022 return.

Listed in Part VII

  • Timothy Ogden

    President

    Total calculated
    $0
    Hours/week
    5

  • Alex Ogeka

    Vice-President

    Total calculated
    $0
    Hours/week
    5

  • Nathan Arnesen

    Treasurer

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
28 November 2023
IRS schema version
2022v5.0
Source object
202333399349300108

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