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Nonprofiteer
← BLOOD CANCER UNITED INC

Form 990 for tax year 2022

Filed by BLOOD CANCER UNITED INC.

Totals

Total revenue
$378,338,490
Total expenses
$386,072,968
Contributions and grants received
$357,670,634
Grants paid
$147,771,106
Program service revenue
$9,531,279
Investment income
$15,134,480
Other revenue
-$3,997,903
Total assets, end of year
$643,891,871
Total liabilities, end of year
$271,338,303
Net assets or fund balances, end of year
$372,553,568
Program services expenses (Part IX)
$277,116,716
Management and general expenses
$58,376,298
Fundraising expenses
$50,579,954
Program service expenses (Part III)
$277,116,716

Program services were 71.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $317,204

  • 1c · Fundraising events

    $144,824,080

  • 1f · All other contributions, gifts and grants

    $212,529,350

  • 1g · Noncash contributions included above

    $2,410,703

  • 2a · Program service revenue: SERVICE REVENUE

    total $9,531,279 · related or exempt $9,531,279

  • 3 · Investment income

    total $11,201,769 · excluded $11,201,769

  • 5 · Royalties

    total $1,864,647 · excluded $1,864,647

  • 7a · Gross sales of assets other than inventory

    securities $243,457,848

  • 7b · Less cost or other basis and sales expenses

    securities $239,525,137

  • 7c · Gain or loss

    securities $3,932,711

  • 7d · Net gain or loss

    total $3,932,711 · excluded $3,932,711

  • 8a · Fundraising events: gross income

    $16,964,118

  • 8a · Fundraising events: contributions included on line 1c

    $144,824,080

  • 8b · Fundraising events: direct expenses

    $22,854,323

  • 8c · Net income from fundraising events

    total -$5,890,205 · excluded -$5,890,205

  • 9a · Gaming: gross income

    $33,230

  • 9b · Gaming: direct expenses

    $5,575

  • 9c · Net income from gaming

    total $27,655 · excluded $27,655

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $47,337,227 · program services $47,337,227

  • 2 · Grants to domestic individuals

    total $92,361,116 · program services $92,361,116

  • 3 · Grants to foreign organizations and individuals

    total $8,072,763 · program services $8,072,763

  • 5 · Compensation of officers, directors and key employees

    total $2,682,939 · program services $1,061,429 · management and general $1,127,386 · fundraising $494,124

  • 7 · Other salaries and wages

    total $93,026,618 · program services $47,637,080 · management and general $24,804,672 · fundraising $20,584,866

  • 8 · Pension plan contributions

    total $3,247,539 · program services $1,560,427 · management and general $992,969 · fundraising $694,143

  • 9 · Other employee benefits

    total $14,299,798 · program services $6,897,106 · management and general $4,334,320 · fundraising $3,068,372

  • 10 · Payroll taxes

    total $6,642,989 · program services $3,191,923 · management and general $2,031,164 · fundraising $1,419,902

  • 11b · Fees: legal

    total $1,494,234 · program services $896,541 · management and general $403,443 · fundraising $194,250

  • 11c · Fees: accounting

    total $519,205 · management and general $519,205

  • 11d · Fees: lobbying

    total $3,445,639 · program services $3,445,639

  • 11e · Fees: professional fundraising services

    total $4,917,672 · fundraising $4,917,672

  • 11f · Fees: investment management

    total $216,836 · program services $159,794 · management and general $29,540 · fundraising $27,502

  • 11g · Fees: other

    total $35,980,021 · program services $25,536,784 · management and general $6,087,072 · fundraising $4,356,165

  • 12 · Advertising and promotion

    total $9,534,205 · program services $5,219,449 · management and general $1,403,758 · fundraising $2,910,998

  • 13 · Office expenses

    total $14,901,859 · program services $7,832,923 · management and general $2,023,194 · fundraising $5,045,742

  • 14 · Information technology

    total $12,947,167 · program services $976,216 · management and general $9,617,156 · fundraising $2,353,795

  • 16 · Occupancy

    total $5,356,295 · program services $2,647,657 · management and general $1,362,525 · fundraising $1,346,113

  • 17 · Travel

    total $8,204,269 · program services $5,542,948 · management and general $1,383,997 · fundraising $1,277,324

  • 22 · Depreciation, depletion and amortization

    total $4,699,950 · program services $2,660,109 · management and general $1,181,954 · fundraising $857,887

  • 23 · Insurance

    total $1,459,206 · program services $847,284 · management and general $341,469 · fundraising $270,453

  • 24a · Other expenses: RESEARCH & DEVELOPMENT

    total $11,908,214 · program services $11,908,214

  • 24b · Other expenses: MISCELLANEOUS

    total $2,817,207 · program services $1,324,087 · management and general $732,474 · fundraising $760,646

  • 26 · Joint costs (an allocation of the lines above)

    total $18,113,659 · program services $10,544,026 · management and general $0 · fundraising $7,569,633

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $10,533,722 · end of year $1,093,408

  • 2 · Savings and temporary cash investments

    beginning of year $59,563,249 · end of year $87,996,059

  • 3 · Pledges and grants receivable

    beginning of year $24,346,058 · end of year $29,923,480

  • 9 · Prepaid expenses and deferred charges

    beginning of year $5,700,688 · end of year $5,045,849

  • 10a · Land, buildings and equipment: cost or other basis

    $29,353,185

  • 10b · Land, buildings and equipment: accumulated depreciation

    $16,102,001

  • 10c · Land, buildings and equipment, net

    beginning of year $10,534,101 · end of year $13,251,184

  • 11 · Investments: publicly traded securities

    beginning of year $560,279,919 · end of year $463,285,795

  • 12 · Investments: other securities

    beginning of year $20,361,812 · end of year $20,291,527

  • 13 · Investments: program-related

    beginning of year $2,356,657 · end of year $10,015,427

  • 14 · Intangible assets

    end of year $516,667

  • 15 · Other assets

    end of year $12,472,475

  • 17 · Accounts payable and accrued expenses

    beginning of year $29,802,071 · end of year $21,647,040

  • 18 · Grants payable

    beginning of year $278,233,023 · end of year $219,704,797

  • 19 · Deferred revenue

    beginning of year $13,697,650 · end of year $15,561,185

  • 25 · Other liabilities

    beginning of year $0 · end of year $14,425,281

  • 27 · Net assets without donor restrictions

    beginning of year $301,387,942 · end of year $281,881,454

  • 28 · Net assets with donor restrictions

    beginning of year $70,555,520 · end of year $90,672,114

Mission and programs · 2022

Mission

OUR MISSION IS TO CURE LEUKEMIA, LYMPHOMA, HODGKIN'S DISEASE AND MYELOMA, AND IMPROVE THE QUALITY OF LIFE OF PATIENTS AND THEIR FAMILIES.

Activities or mission (Part I)

CURE LEUKEMIA,LYMPHOMA,HODGKIN'S DISEASE, MYELOMA; IMPROVE QUALITY OF LIFE OF PATIENTS AND FAMILIES.

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $104,409,883 · Grants $55,409,990 · Revenue $9,531,279

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $141,014,110 · Grants $92,361,116

  • C) PUBLIC HEALTH EDUCATION:LLS BELIEVES KNOWLEDGE IS POWER. AS ALWAYS, LLS HAS OFFERED THEIR INFORMATIONAL PROGRAMS IN VIRTUAL FORMATS, CONTINUING TO PROVIDE VITALLY NEEDED EDUCATION AND EMOTIONAL SUPPORT FOR THOSE IMPACTED BY BLOOD CANCER.ONE-ON-ONE EDUCATION AND SUPPORTTRAINED ONCOLOGY INFORMATION SPECIALISTS IN OUR INFORMATION RESOURCE CENTER (IRC) PROVIDE PATIENTS AND CAREGIVERS WITH COMPASSIONATE, COMPREHENSIVE, AND TAILORED DISEASE AND TREATMENT INFORMATION, INCLUDING REFERRALS AND LINKS TO APPROPRIATE EDUCATIONAL RESOURCES AND LITERATURE; PSYCHOSOCIAL SUPPORT INFORMATION FOR ANY POINT IN THEIR TREATMENT JOURNEY; REFERRALS TO RELEVANT LOCAL, STATE AND/OR NATIONAL RESOURCES FOR ASSISTANCE; COVID-19 RELATED INFORMATION AND GUIDANCE; AND FINANCIAL RESOURCE INFORMATION TO COVER COSTS OF TREATMENT, TRAVEL, URGENT NEEDS AND MORE. OVER 25,000 INTERACTIONS BETWEEN THE IRC AND PATIENTS AND CAREGIVERS TOOK PLACE LAST YEAR.FACILITATING CLINICAL TRIAL ACCESSTHE LLS CLINICAL TRIAL SUPPORT CENTER (CTSC) GREW THROUGHOUT THE YEAR AS WE INCREASED OUR BI-LINGUAL AND PEDIATRIC EXPERTISE AMONG THE CTSC NURSE NAVIGATORS, AND CONTINUED TO EXPAND THE POSSIBILITY OF POSITIVE OUTCOMES FOR PATIENTS BY MATCHING THEM TO SUITABLE CLINICAL TRIALS. OUR NURSE NAVIGATORS ASSISTED 1,345 PATIENTS (AN INCREASE OF 34% OVER 2022). TWENTY THREE PERCENT OF THESE PATIENTS ENTERED A TRIAL.OUTREACH TO UNDERSERVED GROUPSWE AUGMENTED EFFORTS TO EXPAND ACCESS TO LLS SERVICES AND RESOURCES BY BOLSTERING RELATIONS WITH COMMUNITY GROUPS AND LEADERS, NOTABLY IN THE BLACK AND LATINO COMMUNITIES, AND INCREASED OUR NUMBER OF BILINGUAL STAFF AND VOLUNTEERS. WE ALSO INCREASED ACCESSIBILITY OF OUR EDUCATION PROGRAMS TO RURAL PATIENTS AND FAMILIES VIA OUR VIRTUAL OFFERINGS.MOREOVER, WE EXPANDED PARTNERSHIPS WITH ADDITIONAL AFFINITY GROUPS INCLUDING: THE BALM IN GILEAD, NCI'S NATIONAL OUTREACH NETWORK, MIGRANT CLINICIANS NETWORK, AND THE MEDICAL ORGANIZATION FOR LATINO ADVANCEMENT.THE LLS MYELOMA LINK PROGRAM, LAUNCHED IN 2017, CONTINUED TO GAIN TRACTION. WE IMPROVED UNDERSTANDING OF TREATMENT OPTIONS BY PROVIDING IMPORTANT INFORMATION TO AFRICAN AMERICANS, WHO ARE TWICE AS LIKELY TO BE DIAGNOSED WITH MULTIPLE MYELOMA AS CAUCASIAN AMERICANS. IN 2023, LLS REACHED OVER 60,000 PEOPLE THROUGH APPROXIMATELY 50 MYELOMA LINK EDUCATION AND OUTREACH ACTIVITIES IN 16 CITIES.IN 2023, THE LLS LATINO OUTREACH PILOT REACHED OVER 115,000 SPANISH-SPEAKING COMMUNITY MEMBERS THROUGH COMMUNITY PROGRAMS ACROSS 7 MAJOR HISPANIC MARKETS (INCLUDING PR) AND OUR PARTNERSHIP WITH ENTRAVISION AND PRIME TIME INTERVIEWS WITH BOTH UNIVISION AND TELEMUNDO. EDUCATION AND PATIENT CONNECTIONSOUR VIRTUAL EDUCATION PROGRAMS PROVIDED BOTH PATIENTS AND FAMILIES, AS WELL AS HEALTH CARE PROFESSIONALS, ACCESS TO CONTENT INCLUDING BLOOD CANCER CONFERENCES, LOCAL EDUCATION PROGRAMS, NATIONAL WEBINARS, VIDEOS, LECTURES, AND PODCASTS.LLS'S HIGHLY VIEWED WEBSITE CONTINUES TO PROVIDE THE MOST UP TO DATE BLOOD CANCER INFORMATION INCLUDING ACCESS TO BLOGS, BOOKLETS, WORKBOOKS, FACT SHEETS AND MORE. IN ADDITION, 950 CANCER PATIENTS WERE PROVIDED WITH PERSONALIZED NUTRITION CONSULTATIONS BY LLS'S REGISTERED DIETITIANS.OUR PATIENT & COMMUNITY OUTREACH TEAM CONTINUED TO BRING PATIENTS TOGETHER VIA ONLINE LOCAL SUPPORT GROUPS AND CHATS. THE PATTI ROBINSON KAUFMANN FIRST CONNECTION PROGRAM MATCHED NEARLY 1,900 PATIENTS WITH TRAINED VOLUNTEERS FACING THE SAME DISEASE.IN ADDITION, MEMBERSHIP IN LLS COMMUNITY-OUR ONLINE SOCIAL NETWORK- WAS 20,852, AN INCREASE OF 9% OVER FISCAL YEAR 2022.

    Expenses $19,597,702

  • D) PROFESSIONAL EDUCATION:LLS SERVES THE EDUCATIONAL NEEDS OF THE MEDICAL AND RESEARCH COMMUNITY THROUGH A NUMBER OF PROFESSIONAL EDUCATION SYMPOSIA OFFERED THROUGHOUT THE YEAR. THE EDUCATIONAL DEPARTMENT OFFERS VARYING FORMATS TO FACILITATE THE EXCHANGE OF INFORMATION AND IDEAS ON THE NEWEST DEVELOPMENTS IN CANCER RESEARCH AND TREATMENT. UPCOMING AND ARCHIVED CE/CME PROGRAMS ARE AVAILABLE AT WWW.LLS.ORG/CE. IN FY 2023:-LLS PROVIDED 21 (INCLUDING 2 MULTI SESSION SERIES) CME/CE-GRANTING VIRTUAL EDUCATIONAL PROGRAMS, WITH 2801 HEALTHCARE PROFESSIONALS IN ATTENDANCE.- OVER 21,000 PATIENTS AND PROFESSIONALS PARTICIPATED IN LIVE EDUCATION PROGRAMS DELIVERED VIRTUALLY AS WELL AS DELIVERED IN PERSON, LOCALLY AND REGIONALLY.--THERE WERE OVER 300,000 PAGE VIEWS FOR ARCHIVED WEB PROGRAMS, VIRTUAL LECTURES AND VIDEOS AND OVER 128,000 PODCAST DOWNLOADS. NEARLY 725,000 BOOKLETS AND FACT SHEETS WERE EITHER DOWNLOADED OR ORDERED IN HARD COPY.

    Expenses $12,095,021

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Jeff Sachs

    CHAIR

    Total calculated
    $0
    Hours/week
    4
  • Kathleen Meriwether

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    4
  • Freda Wang

    SECRETARY/TREASURER

    Total calculated
    $0
    Hours/week
    4
  • Ruben Mesa Facp MD

    AT LARGE

    Total calculated
    $0
    Hours/week
    4
  • Richard Bagger

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Michele Cameron - End 121522

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Renzo Canetta MD

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Casey Cunningham MD

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Janice Gabrilove MD

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • John Greene

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Francine Heller

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Lynne O'Brien

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Marla Persky

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Jim Reddoch

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Richard Rendina

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Robert Rosen

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Bart Sichel

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Alessandra Tocco

    BOD MEMBER

    Total calculated
    $0
    Hours/week
    4
  • Louis Jdegennaro-End 63023

    PRESIDENT & CEO

    Total calculated
    $931,409
    From this org
    $879,546
    From related orgs
    $0
    Other
    $51,863
    Hours/week
    40 + 1 related

    Schedule J breakdown matched by us

    Base
    $669,397
    Bonus
    $191,204
    Other
    $18,945
    Deferred
    $19,215
    Nontaxable benefits
    $32,648
    Filer's total
    $931,409
  • E Anders Kolb - Start 512023

    PRESIDENT & CEO

    Total calculated
    $0
    Hours/week
    40 + 1 related
  • Gwen Nichols

    EVP, CHIEF MEDICAL OFFICER

    Total calculated
    $600,712
    From this org
    $552,575
    From related orgs
    $0
    Other
    $48,137
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $429,866
    Bonus
    $89,255
    Other
    $33,454
    Deferred
    $13,546
    Nontaxable benefits
    $34,591
    Filer's total
    $600,712
  • Troy Dunmire

    EVP, CHIEF OPERATING OFFICER

    Total calculated
    $591,651
    From this org
    $537,877
    From related orgs
    $0
    Other
    $53,774
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $442,932
    Bonus
    $93,424
    Other
    $1,521
    Deferred
    $10,675
    Nontaxable benefits
    $43,099
    Filer's total
    $591,651
  • Dale Nissenbaum

    EVP, GENERAL COUNSEL

    Total calculated
    $543,852
    From this org
    $504,418
    From related orgs
    $0
    Other
    $39,434
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $423,691
    Bonus
    $76,937
    Other
    $3,790
    Deferred
    $10,675
    Nontaxable benefits
    $28,759
    Filer's total
    $543,852
  • Gordon Miller Jr

    EVP, CHIEF FINANCIAL OFFICER

    Total calculated
    $504,481
    From this org
    $449,353
    From related orgs
    $0
    Other
    $55,128
    Hours/week
    40 + 1 related

    Schedule J breakdown matched by us

    Base
    $371,573
    Bonus
    $75,838
    Other
    $1,942
    Deferred
    $15,250
    Nontaxable benefits
    $39,878
    Filer's total
    $504,481
  • Coker Powell

    SVP, CHIEF DEVELOPMENT OFFICER

    Total calculated
    $465,663
    From this org
    $440,143
    From related orgs
    $0
    Other
    $25,520
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $354,360
    Bonus
    $64,410
    Other
    $21,373
    Deferred
    $10,675
    Nontaxable benefits
    $14,845
    Filer's total
    $465,663
  • Vanessa White

    SVP, CHIEF ADVANCEMENT OFFICER

    Total calculated
    $461,640
    From this org
    $431,334
    From related orgs
    $0
    Other
    $30,306
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $371,393
    Bonus
    $58,678
    Other
    $1,263
    Deferred
    $10,675
    Nontaxable benefits
    $19,631
    Filer's total
    $461,640
  • Susan Brown

    SVP, CHIEF DEI OFFICER

    Total calculated
    $471,435
    From this org
    $425,506
    From related orgs
    $0
    Other
    $45,929
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $361,415
    Bonus
    $60,596
    Other
    $3,495
    Deferred
    $15,250
    Nontaxable benefits
    $30,679
    Filer's total
    $471,435
  • Lee Greenberger

    SVP, CHIEF SCIENTIFIC OFFICER

    Total calculated
    $444,473
    From this org
    $401,142
    From related orgs
    $0
    Other
    $43,331
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $334,490
    Bonus
    $56,963
    Other
    $9,689
    Deferred
    $10,675
    Nontaxable benefits
    $32,656
    Filer's total
    $444,473
  • Florence Godfrey

    SVP, CHIEF EXPERIENCE OFFICER

    Total calculated
    $423,899
    From this org
    $381,803
    From related orgs
    $0
    Other
    $42,096
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $324,221
    Bonus
    $54,452
    Other
    $3,130
    Deferred
    $15,250
    Nontaxable benefits
    $26,846
    Filer's total
    $423,899

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
LLS AWARDS NON-FIXED PAYMENTS SUCH AS BONUSES ON A DISCRETIONARY BASIS TIED TO THE EMPLOYEE PERFORMANCE AND ORGANIZATION TARGETS. THE NAMES OF EMPLOYEES AND THE AMOUNTS THAT WERE PAID ARE FOUND ON SCHEDULE J, PAGE 2,PART II, COL (B) (II).

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Disregarded entities

Part I: entities that legally are the filer and file no return of their own.

  • BEAT AML LLC

    RESEARCH · NY · income $4,544,896 · assets -$1,597,319

    Directly controlled by LLS

  • LLS PEDAL INITIATIVE LLC

    RESEARCH · NY · income $7,456,139 · assets $1,143,657

    Directly controlled by LLS

  • LLS TAP MIRAGEN LLC

    RESEARCH · NY

    Directly controlled by LLS

  • LLS TAP X4 LLC

    RESEARCH · NY

    Directly controlled by LLS

  • LLS TAP LLC

    RESEARCH · NY · income $391,498 · assets $9,499,750

    Directly controlled by LLS

  • LLS TAP CONSTELLATION LLC

    RESEARCH · NY

    Directly controlled by LLS

  • LLS TAP KDAC LLC

    RESEARCH · NY

    Directly controlled by LLS

Provenance

Return type
form_990
Tax year
2022
Filed
23 February 2024
IRS schema version
2022v5.0
Source object
202400549349301500

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