Form 990 for tax year 2024
Filed by THE DOWN SYNDROME CONNECTION OF THE BAY AREA.
Totals
- Total revenue
- $1,204,470
- Total expenses
- $1,177,133
- Contributions and grants received
- $415,547
- Grants paid
- $6,000
- Program service revenue
- $38,727
- Investment income
- $161,185
- Other revenue
- $589,011
- Total assets, end of year
- $3,344,574
- Total liabilities, end of year
- $237,796
- Net assets or fund balances, end of year
- $3,106,778
- Program services expenses (Part IX)
- $940,895
- Management and general expenses
- $167,835
- Fundraising expenses
- $68,403
- Program service expenses (Part III)
- $940,895
Program services were 79.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$415,547
-
1g · Noncash contributions included above
$4,400
-
2a · Program service revenue: COMMUNICATION READINESS
total $2,857 · related or exempt $2,857
-
2b · Program service revenue: COMMUNITY EVENT
total $5,626 · related or exempt $5,626
-
2c · Program service revenue: CONFERENCE REGISTRATION
-
2d · Program service revenue: THRIVE PARTICIPATION FEES
total $30,244 · related or exempt $30,244
-
3 · Investment income
total $161,185 · related or exempt $161,185
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8a · Fundraising events: gross income
$848,436
-
8b · Fundraising events: direct expenses
$260,185
-
8c · Net income from fundraising events
total $588,251
-
9c · Net income from gaming
total $0
-
10a · Gross sales of inventory
$476
-
10c · Net income from sales of inventory
total $476 · related or exempt $476
-
11a · Other revenue: MISCELLANEOUS
total $284 · excluded $284
-
11e · Other revenue, total
$284
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $6,000 · program services $6,000
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $113,160 · program services $84,870 · management and general $11,316 · fundraising $16,974
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $570,687 · program services $456,489 · management and general $89,136 · fundraising $25,062
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $16,235 · program services $14,765 · management and general $1,323 · fundraising $147
-
10 · Payroll taxes
total $54,333 · program services $43,215 · management and general $8,250 · fundraising $2,868
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $0
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $17,134 · management and general $17,134
-
11g · Fees: other
total $183,660 · program services $135,879 · management and general $26,462 · fundraising $21,319
-
12 · Advertising and promotion
total $0
-
13 · Office expenses
total $0
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $88,317 · program services $80,305 · management and general $7,253 · fundraising $759
-
17 · Travel
total $0
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $6,287 · program services $6,287
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $25,116 · program services $25,116
-
23 · Insurance
total $10,462 · program services $8,683 · management and general $942 · fundraising $837
-
24a · Other expenses: EDUCATION AND OUTREACH
total $25,692 · program services $25,692
-
24b · Other expenses: COMMUNICATIONS
total $20,270 · program services $18,289 · management and general $1,981
-
24c · Other expenses: SUPPLIES
total $18,952 · program services $15,411 · management and general $3,541
-
24d · Other expenses: STAFF DEVELOPMENT
total $9,810 · program services $9,810
-
24e · All other expenses
total $11,018 · program services $10,084 · management and general $497 · fundraising $437
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $1,082,443 · end of year $1,090,178
-
2 · Savings and temporary cash investments
end of year $0
-
3 · Pledges and grants receivable
beginning of year $68,339 · end of year $8,924
-
4 · Accounts receivable
beginning of year $1,500 · end of year $1,500
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $10,230
-
10a · Land, buildings and equipment: cost or other basis
$273,087
-
10b · Land, buildings and equipment: accumulated depreciation
$227,756
-
10c · Land, buildings and equipment, net
beginning of year $75,349 · end of year $45,331
-
11 · Investments: publicly traded securities
end of year $0
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
beginning of year $2,036,801 · end of year $2,188,411
-
17 · Accounts payable and accrued expenses
beginning of year $31,714 · end of year $33,938
-
19 · Deferred revenue
beginning of year $5,000 · end of year $7,841
-
25 · Other liabilities
beginning of year $236,963 · end of year $196,017
-
27 · Net assets without donor restrictions
beginning of year $1,095,862 · end of year $1,478,226
-
28 · Net assets with donor restrictions
beginning of year $1,894,893 · end of year $1,628,552
Mission and programs · 2024
Mission
Our mission is to empower, inspire and support people with Down Syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.
-
In 2024, DSCBA provided the following services, support, and events:(i) Together Happy Respected Independent Valued Empowered (THRIVE):THRIVE is a unique program for individuals with Down syndrome. THRIVE is conducted by age group with a focus on developing strong core strength, gross and fine motor, executive functioning, and social and friendship-building skills. These sessions embody a unique combination of strengthening cognitive skills and social/behavioral interactions, all while fostering lifelong friendships and having fun.(ii) Music Therapy:Music therapy takes the joy and power of music and combines it with the goals of a traditional therapy session. Music therapy interventions such as singing, instrument playing, music improvisation, songwriting, music and movement, and musical games are used to address speech, physical, academic, cognitive, and behavioral goals. It can also strengthen family connections, as caretakers are encouraged to participate. Music therapy sessions are available for members from infancy to adulthood.(iii) New and Ongoing Family Support:Support services for families from the prenatal and/or postnatal diagnosis stage through childhood, school years, and adulthood. DSCBA offers Early Connections groups, where our families and their young children can bring their questions, connect, socialize, and learn. New families can be connected with a mentor family for additional connection and support. As DSCBA members grow older, DSCBA continues to support them with their needs in group settings and one-on-one support as needed. (iv) Connection Groups:DSCBAs Connection Groups offer opportunities for families to meet with those who have similar interests and are seeking peer support. Connection Groups available were Early Connections (0-3 years old), Parents with School Aged Children, Spanish Speaking, Parents/Caregivers of Adults with Symptoms of Dementia, Grandparents Group, Dual Diagnosis (Down syndrome and autism spectrum disorder), Moms Chat and Dads Night. The majority, but not all, of DSCBAs support groups were conducted virtually in 2024.(v) Webinars and Workshops:Throughout the year, DSCBA provided webinars and workshops to members on a variety of topics for all age groups. Webinars included topics such as education, mental health, caregiver self-care, and safety.(vi) Communication Readiness Program (CRP):A six-week intensive summer program for children ages 47 with complex communication needs stemming from Down syndrome or dual diagnoses such as Down syndrome and autism. CRP incorporates reading, writing, art, music, obstacle courses, speech, and socialization with communication and school-readiness skills at the programs core. Students are introduced to alternative ways to communicate so they can successfully participate in school, and parents and educational teams are provided with instruction, training, and ongoing support to facilitate successful communication. (vii) iCan Shine Bike Camp:During the summer, DSCBA hosts its weeklong iCan Bike Camp. Riders learn to balance, pedal, steer and take off on their own, by attending 5 days for 75 minutes each day. It is an adapted approach to each individual rider based on the accommodations they may need to benefit the most from the program. The success rate of riders independently riding a bicycle (at least 75 feet with no assistance) by the end of DSCBAs iCan Bike program is approximately 80% and all riders progress and gain skills during the week.(viii) Mental Health Alliance Pilot Program:The Mental Health Alliance (MHA) is a pilot program that began in 2021. The goal of the MHA is to train and support the mental health community in serving those with IDD so that people with Down syndrome and other IDD can better access high-quality mental health services. DSCBA provides training to mental health professionals in working with families with a child with Down syndrome, as well as the communication supports and training clinicians need to effectively serve this population, along with an array of treatment modalities.(ix) Medical Outreach:Partnership with dozens of Bay Area hospitals and hundreds of healthcare providers that serve people with Down syndrome. The alliance provides accurate, current information about Down syndrome to medical practitioners in new parent packets (in English and Spanish) they can share with their families welcoming a child with Down syndrome. The alliance also provides in-person trainings for doctors, genetic counselors, geneticists, nurses, social workers, and other healthcare workers covering how to deliver a Down syndrome diagnosis, how to support and form a strong team with families who have a member with Down syndrome, the abilities of people with Down syndrome, and the local and national resources available.(x) Down Syndrome Education Alliance:Partnership with dozens of Bay Area schools and districts to provide training, resources, and support for teachers and educational staff who serve students with Down syndrome. The DSEA offers direct training, ability awareness presentations, consultation, research-based materials, and an Alternative and Augmentative Communication (AAC) lending library.(xi) Ability Awareness Presentations:DSCBAs ability awareness presentations are a unique way to educate students about Down syndrome and allow them to ask questions. These presentations not only spread awareness in the DSCBA community but also allows us all to learn that we are more alike than different.(xii) Inclusion Resources:DSCBA Inclusion Resource Directory provides families and educators with resources to guide them to meaningful inclusion.(xiii) Expression Connection:Expression Connection is a program of the DSCBA Educational Alliance. Through this program, DSCBA ensures that children who have communication and speech difficulty due to Down syndrome have access to Augmentative Alternative Communication systems (AAC). It is DSCBAs goal to make sure every individual is empowered and has the ability to communicate. DSCBA offers a lending library for AAC devices, consultations and training presentations. In addition to the lending library, DSCBA offers a Low-Tech Library containing a variety of communication boards.(xiv) Lending Library:The DSCBA Lending Library contains a vast selection of books and learning resources. Books include topics on prenatal diagnosis, raising a child with Down syndrome, education, Down syndrome and autism spectrum disorder, and so much more. Through DSCBAs Lending Library, learning resources and kits are available to families including Handwriting Without Tears, Whole Child Reading and more.(xvi) Resource Directory:A variety of resource directories are available to members through Padlet. Resources listed on the directories are recommendations from members and local disability organizations. Directories available are general resource directories and recreation programs. (xvii) Community Events: Throughout the year, DSCBA hosted the following community events for and to benefit DSCBAs members:(a) World Down Syndrome Day Dance Party - In 2024, DSCBA hosted a Dance Party to celebrate WDSD. It is a free event for all DSCBA members and their families.(b) Holiday Parties - In 2024, the DSCBA hosted three Holiday Parties across different locations. All three celebrations were free for all DSCBA members and their families.
Expenses $940,895 · Grants $6,000
As filed on the 2024 return.
Listed in Part VII
-
Teresa DevincenziTERESA DEVINCENZI
Executive Dir.
- Total calculated
- $113,160
- From this org
- $113,160
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Mike LinMIKE LIN
Chairman
- Total calculated
- $0
- Hours/week
- 2
-
Steven PugsleySTEVEN PUGSLEY
Treasurer
- Total calculated
- $0
- Hours/week
- 2
-
Erick MontgomeryERICK MONTGOMERY
Treasurer
- Total calculated
- $0
- Hours/week
- 2
-
Julie SodestromJULIE SODESTROM
Secretary
- Total calculated
- $0
- Hours/week
- 2
-
Jean JohnstonJEAN JOHNSTON
Vice Chair
- Total calculated
- $0
- Hours/week
- 2
-
Jonas KriksciunusJONAS KRIKSCIUNUS
Director
- Total calculated
- $0
- Hours/week
- 1
-
Clay MauritsonCLAY MAURITSON
Director
- Total calculated
- $0
- Hours/week
- 1
-
Frank BenavidezFRANK BENAVIDEZ
Director
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 3 June 2025
- IRS schema version
- 2024v5.1
- Source object
- 202521549349301122
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